'Tis human to question...

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miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 2/5/2009 12:11 PM (GMT -7)   
OK, if we always go with the status quo and not ask questions, how does knowledge get advanced? Yes, I am referring to the rules here. This is an honest question, and one most certainly worthy of a response, so I hope this is not delete and discarded. Specifically, I am referring to rule #1:

Rules (DON'Ts):

1. No discussion of any illegal activity or threats of violence. (ie. illicit drug use, including medical marijuana use,...)

With over 25% of the nation covered by laws that protect patients, anecdotal and scientific accounts of its effectiveness, and pending legislation in multiple states, WHY ON EARTH can't we discuss this???

If it is legal under the law, it should be allowed, NO??? Certainly Crohn's patients see benefit, as our condition is included in these laws.

Please respond and let's discuss this instead of treating it like the elephant in the room! wink

Post Edited By Moderator (Admin) : 2/5/2009 3:16:12 PM (GMT-7)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/5/2009 12:19 PM (GMT -7)   
I was wondering the same thing actually considering that it is legal, for medicinal purposes, in some places and becoming legal in an increasing number of other places. I guess I just wonder why, if it is used on topic as a medicinal substance, it is a forbidden topic. And yet we can talk about tincture of opium, painkillers, and alcohol without being reprimanded or warned even.
I suppose it's just that a few people up north I met through my cousins recently, acquaintances really, found no relief through anything else. So I feel like it hurts worse to condemn a subject and medicine that brings relief to people rather than to discuss it. Especially if, in many cases and not just in Crohn's, it may be beneficial. Or why scientific research brought up about it is not allowed either e.g. extract has properties that are anti-inflammatory.

And I'm not saying this to be difficult so please, don't take it that way. I just would really like to know why also. The only time it has ever been a controversial subject is not when discussed by members but when it's been discovered by an admin or moderator that it was being discussed. At which point, no one was actually offended. It was just deleted because the rules said it had to be...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/5/2009 12:22 PM (GMT -7)   
There have been a lot of issues when it comes to this particular topic, bottom line is the owner of this site has made it a rule therefore it should be respected, no different then some people that walk around in their house with their shoes on and those that don't...if I'm at someones house that doesn't wear shoes in their home then I'd take mine off too even if I was a person that normally wears them in my own home (not that I do, just an example).

Besides the CD and UC forums are the most active ones of them all here at HW, we already have tons to discuss, and like anything, when it comes to that particular subject, what works for some doesn't work for all anyways...not to mention there are not just adults on this site, it's kid friendly too, imagine some kid on here asking their parents if they could try "M" for their IBD? There are things to consider when it comes to that topic....I'm not saying I agree or disagree, there are plenty of boards that do discuss it with no issues, but I do prefer to respect the rules of the "house" that I'm in at the moment.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 2/5/2009 12:26 PM (GMT -7)   
Thanks for your contribution Lmills!

My mom of all people brought this topic to my attention last year because legislation was being debated in my state at the time. Multiple states have legislation in the works, and Obama has now stated that he will end Federal interference with state medical programs. I know people in my state too whose conditions are just not helped by any other meds, or they use it in combination with their other pharmaceuticals.
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
Remicade (First Infusion 11/3/08) yeah


miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 2/5/2009 12:30 PM (GMT -7)   
pb4 said...
There have been a lot of issues when it comes to this particular topic, bottom line is the owner of this site has made it a rule therefore it should be respected, no different then some people that walk around in their house with their shoes on and those that don't...if I'm at someones house that doesn't wear shoes in their home then I'd take mine off too even if I was a person that normally wears them in my own home (not that I do, just an example).

Besides the CD and UC forums are the most active ones of them all here at HW, we already have tons to discuss, and like anything, when it comes to that particular subject, what works for some doesn't work for all anyways...not to mention there are not just adults on this site, it's kid friendly too, imagine some kid on here asking their parents if they could try "M" for their IBD? There are things to consider when it comes to that topic....I'm not saying I agree or disagree, there are plenty of boards that do discuss it with no issues, but I do prefer to respect the rules of the "house" that I'm in at the moment.

:)

This is tantamount to burying our heads in the sand though. The children? Yes, I can see where you are going with this, but let's not disregard science in the name of "protecting children." I propose no one talks about pain killers, booze, or other "socially accepted" means of treatment and recreation too, if it weren't so completely ridiculous to propose as much. What's the difference between a kid raiding the medicine cabinet for pills other than they could never OD on medical marijuana?

Who is the owner, by the way? How do I get in contact with them?
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
Remicade (First Infusion 11/3/08) yeah


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/5/2009 12:42 PM (GMT -7)   
I can understand what you mean pb4. My only problem is that this is a public forum for discussion as opposed to a private abode...I can respect the rules regardless because I am grateful just to have this site, but it does bother me that there is no reasonable explanation other than 'don't do it.'

I'm a little iffy on the 'kids' subject. I think it could be just as surprising for a child to ask for narcotics. At least on medical and monitored M***.. your kids wouldn't be like this:
http://www.youtube.com/watch?v=txqiwrbYGrs&feature=related

But, like Miguel said, it's natural to question right? I'll refrain from using it in other threads to prevent upsetting the owner(I still have no idea who this is..), but I am strongly against censoring valid science and treatments for preserving outdated social rules.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/5/2009 12:49 PM (GMT -7)   
Peter Waite is the founder of Healingwell and you can reach him at admin@healingwell.com. I hope I have that right, you will find his email on a post at the top of the front page.

The reason it is not discussed here other than rules is because in the United States is still illegal.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 2/5/2009 12:50 PM (GMT -7)   
Thank you for the information on who the owner is.

Sorry, but if you live where it is legal, you are protected under the law. Your statement is not accurate. (Sorry.)
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
Remicade (First Infusion 11/3/08) yeah


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/5/2009 12:57 PM (GMT -7)   
I do live where it is considered legal with a doctors prescription. But US federal law says its illegal and the feds even raided a bunch of clinics in my state just this week.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 2/5/2009 1:00 PM (GMT -7)   
Nanners said...
I do live where it is considered legal with a doctors prescription. But US federal law says its illegal and the feds even raided a bunch of clinics in my state just this week.

Yes, I understand this. That's a whole 'nother topic in and of itself. Obama stated today that this will end very soon.
Legislation is pending in at least 6 states right now and 14 others already have programs in place. The diseases deemed to benefit from this medicine are numerous and included in the legislation, and there are subforums for all of these diseases here on healingwell also. smilewinkgrin
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
Remicade (First Infusion 11/3/08) yeah


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/5/2009 1:05 PM (GMT -7)   
Miguel you will have to take this up with Peter. His site, his rules. Sorry!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 2/5/2009 1:11 PM (GMT -7)   
Nanners said...
Miguel you will have to take this up with Peter. His site, his rules. Sorry!

I understand, but I don't wish to "take it up" with anyone. I want this to be a place where we can discuss what's on our minds within the context of our conditions and beyond. That is what a "discussion forum" is all about. I don't wish to have to frequent sites which also feature illegal drug use in addition to medical marijuana. That does not interest me.

I'm simply proposing this site stay relevant and up with the times. People DO benefit from this medication and they should be able to talk about it.
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
Remicade (First Infusion 11/3/08) yeah


miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 2/5/2009 1:18 PM (GMT -7)   
OK, E-mail sent to the owner. smilewinkgrin
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
Remicade (First Infusion 11/3/08) yeah


reynoldi
Regular Member


Date Joined Aug 2005
Total Posts : 244
   Posted 2/5/2009 2:03 PM (GMT -7)   
This may be stated as a Public Forum, but we all know this server is paid for by someone. they have the right to restrict content,  this person would be taking heat for our statements, if we were allowed. there are strides being made everyday as far as rescheduling its classification. Look up H.R. 5843 and 5842. 5843 basically gives no penalty for up to 100g and may give precedent to over-ride legislation already passed in states with medicinal. AND LOOK WE ARE HAVING A DEBATE WITH NO SPECIFIC REFERENCES. the discussion of bills going to legislation is not prohibited, is it?
"If thou wilt be observant and vigilant, thou wilt see at every moment the response to thy action. Be observant if thou wouldst have a pure heart, for something is born to thee in consequence of every action." -Rumi-
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/5/2009 2:27 PM (GMT -7)   
miguelblanco said...
pb4 said...
There have been a lot of issues when it comes to this particular topic, bottom line is the owner of this site has made it a rule therefore it should be respected, no different then some people that walk around in their house with their shoes on and those that don't...if I'm at someones house that doesn't wear shoes in their home then I'd take mine off too even if I was a person that normally wears them in my own home (not that I do, just an example).

Besides the CD and UC forums are the most active ones of them all here at HW, we already have tons to discuss, and like anything, when it comes to that particular subject, what works for some doesn't work for all anyways...not to mention there are not just adults on this site, it's kid friendly too, imagine some kid on here asking their parents if they could try "M" for their IBD? There are things to consider when it comes to that topic....I'm not saying I agree or disagree, there are plenty of boards that do discuss it with no issues, but I do prefer to respect the rules of the "house" that I'm in at the moment.

:)

This is tantamount to burying our heads in the sand though. The children? Yes, I can see where you are going with this, but let's not disregard science in the name of "protecting children." I propose no one talks about pain killers, booze, or other "socially accepted" means of treatment and recreation too, if it weren't so completely ridiculous to propose as much. What's the difference between a kid raiding the medicine cabinet for pills other than they could never OD on medical marijuana?

Who is the owner, by the way? How do I get in contact with them?

 
Like I said "I'm not saying I agree or disagree", so don't shoot the messanger, you asked a Q and I answered it.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/5/2009 2:30 PM (GMT -7)   
And don't expect the rules to change for you, if the rest of us can get along fine without discussing it then anyone eles that is also a member here should respect the owner of the site's rules (regardless if you or I agree or disagree on that particular rule).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 2/5/2009 2:37 PM (GMT -7)   
I'm exchanging e-mails with the owner right now.
The issue seems to not be with MEDICAL marijuana, but rather that others MIGHT talk about other illegal substances within the context of the conversation.
I can see that, but I have to say that I have been forced to use other forums (that allow talk of illegal substances.) Even though that talk is allowed at the other sites, people talk about JUST medical marijuana and are quickly reprimanded by the members themselves if they steer off course. The mods usually don't even get involved.

I've proposed to the owner here a slight modification in the rules to allow talk of medical marijuana ONLY, and that talk of any illicit behaviors would still remain off limits here at HW. I really cannot see why that would not work? This is, after all "legal" and there are laws in the works that will expand this treatment option to even more states. We might as well be "with it" and have our community be a reflection of the times.

I have to say, I've read about peoples' sex lives, alcohol usage, pain killer usage, bowel movements and other "unseemly" topics here.
Certainly we can be adult about this too. smilewinkgrin
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
Remicade (First Infusion 11/3/08) yeah


miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 2/5/2009 2:44 PM (GMT -7)   
pb4 said...
And don't expect the rules to change for you, if the rest of us can get along fine without discussing it then anyone eles that is also a member here should respect the owner of the site's rules (regardless if you or I agree or disagree on that particular rule).

:)

Please, I'm not being hostile, and the tone of your post is very hostile.

I am merely proposing an exchange of ideas and experiences. People talk about experimental, non-FDA approved treatments on here all the time.
Why is this issue any different? It is legal in over 25% of the country and growing.

I'm forced to go to other sites if I want to discuss this topic. I've met others that are members here that have to go to the other sites as well, so it's not "JUST ME." Why take such an exclusionary stance toward someone? Am I threatening anyone? No. I'd just like to talk about something that is important to me and others. Certainly as adults we can respect that. This isn't "radical hippy" information. This is reality and we're sticking our heads in the sand around here for no apparent reason.

There's a topic about parasitic worms below this one for Pete's sake! How is this any more "radical?" shocked
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
Remicade (First Infusion 11/3/08) yeah


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/5/2009 2:59 PM (GMT -7)   
Miguel, when you joined this forum you agreed to a set of rules. If you disagree with those rules, by all means contact the site owner, but please do not occupy valuable server space stirring controversy and debating the topic here.

Admin is the only person who can change the rules. If you are unhappy with the rules, either write to Admin (as you have done) or find another forum that meets your needs (as you are also doing).

I hope that doesn't sound harsh, but those are the forum rules, and you did agree to abide by them...

I would also ask that you make no further posts on this topic. This is a support forum, and this sort of discussion detracts from the atmosphere we are trying to cultivate here. Please keep discussing your concerns with Admin by email, but please, please, stop discussing it here. We don't make the rules - Admin is the only person who can change them - so it is pointless to keep arguing your point here.

Sincerely,

Ivy.
Co-Moderator Crohn's Forum.


Admin
Forum Administrator


Date Joined Jan 2003
Total Posts : 9658
   Posted 2/5/2009 3:15 PM (GMT -7)   
This statement hits the nail on the head - "bottom line is the owner of this site has made it a rule therefore it should be respected". I have reasons for this rule based on past experience. It really has less to do with the legality of the issue, than it does about forum behavior on such topics. It has nothing to do with the first amendment or the public domain as this is a privately owned web site. Thanks for your input.
Peter Waite, Founder/Editor
HealingWell.com - Community, Information, Resources
www.healingwell.com

Post Edited (Admin) : 2/5/2009 3:22:47 PM (GMT-7)

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