Crohns impact on rectal area - Seeking advice

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SeanM
Regular Member


Date Joined Dec 2007
Total Posts : 44
   Posted 2/6/2009 8:37 AM (GMT -7)   
Hi All, just wanted to see if anyone could give me advice on what to do about having a moderately diseased rectal region due to Crohns.  The only thing that works on healing that area up is Remicade, but when I get towards the end of my treatment cycle my rearend gets enflamed.  So much to the point where leakage occurs frequently, typically at night.  Is there any other treatments or medication I can take to help out with this issue?  My GI has never been too helpful about treating these symptoms.  It's really frustrating and can be quite embarrassing. 
 
Thx
32 yr old male
Diagnosed with Crohns in 1994 (lower bowel/ileum)
Medication history:  prednisone, azacol, sulfasalazine, cipro
Current Medications: entocourt (periodically-as needed), Remicaid, flagyl
Surgeries: 2002 (remove fistula), 2004 (6" of ileum removed)


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 2/6/2009 8:51 AM (GMT -7)   
SOunds like you might need to get your remicade treatments moved up. How many weeks apart do you get them? You should be able to take the remicade frequently enough that it keeps you from flaring, otherwise, what is the point if you are always up and down and up and down? They did that to me when I first started it and tried to make me go 8 weeks in between infusions when I really needed it every 4. Ask your GI if you can get your infusions closer together. Maybe every 6 weeks? Or even every 4. If you can stay stable long enough then you can quell the flares. If your GI won't help - pick a new one. You shouldn't have to suffer, especially if you say that the remicade DOES help. That's such B.S. I know it's frustrating. Don't be embarrassed. We've all been there in one way or another.

SeanM
Regular Member


Date Joined Dec 2007
Total Posts : 44
   Posted 2/6/2009 9:15 AM (GMT -7)   
I get my remicade every 10 weeks but I am afraid to get it more regularly due to the fear of not knowing what this drug is doing to my liver and/or body. I was hoping to avoid going every 8 weeks or even every 6. Another reason is that it is taxing on our finances. Remicade ain't cheap, and using Humira as an alternative doesn't see like an option because Remicade does work for me.
32 yr old male
Diagnosed with Crohns in 1994 (lower bowel/ileum)
Medication history:  prednisone, azacol, sulfasalazine, cipro
Current Medications: entocourt (periodically-as needed), Remicaid, flagyl
Surgeries: 2002 (remove fistula), 2004 (6" of ileum removed)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/6/2009 9:18 AM (GMT -7)   
Have you tried contacting the maker of Remicade? They have a payment assistance program to help pay for the treatment. That way you could get the medication more often. Its better to avoid these frequent flares. JMHO
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/6/2009 12:27 PM (GMT -7)   
If your talking about your rectom (just inside the anus) then ask for cortifoam rectal steroid meds, it's a perscription med and for me it's the only thing that aids me when I get proctitis (inflammation of the rectom).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 2/6/2009 10:18 PM (GMT -7)   
my crohns was in the rectum/anus/sigmoid colon for years. surgery removed the sigmoid colon, but left the rectum and anus. it didnt fix that problem nor the abscesses i would get. i didnt respond to enemas or foams or creams. it really sucked. diet helped a lot. getting off processed and refined foods and sugars and limiting my grain intake and taking probiotics has done wonders for my arse. basically i eliminated the food for the bad beasties and reseeded with good beasties. it might be worth a try????
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 2/6/2009 11:22 PM (GMT -7)   
Have you ever tried Canasa suppositories? They (obviously) work in that area and I use them for when I get flares "down there". It's worth asking your doctor about.

fatlass
New Member


Date Joined Sep 2008
Total Posts : 6
   Posted 5/18/2009 10:27 AM (GMT -7)   
Hi, this is a message for KrazyHarry or anyone else who could give me some advice. I have had subtotal colectomy and an illeostomy with a mucus fistula. I was hoping to get linked back up , my small bowel to my sigmoid colon, but had a flexsigmoid test done last week and it is inflammed and strictured, very near the rectum. She said there is nothing that can be done and it would have to be taken out altogether. Can you tell me if there is anything that could be done, drugs, strictureplasty? Does anything work?

Did you have your large bowel attached to what was left of the sigmoid? I am not sure how much of my sigmoid I have left even!

Thanks for your advice
Fatlass!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/18/2009 4:30 PM (GMT -7)   
Fatlass, I think it would be better if you started a new topic for your question, as you're more likely to get answers that way.

Welcome to the forums!

Ivy.
Co-Moderator Crohn's Forum.

New meds thread

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