Good news bad news

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lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 2/6/2009 9:54 AM (GMT -7)   
I had my follow up with my gi yesterday for the CT enterography results and supposed stricture.  It turns out that the pain I've been in is due to what I was always told was calcified barium that "should never pose a problem."  WRONG.  Apparently, it is now pushing against my anastamosis causing me varying degrees of pain.  That's the bad news part, I'm going to require surgery to remove it and relieve the pain. 
 
The good news is the most unexpected.  I have NO current disease activity!!!! yeah
I couldn't believe it when he told me.  I hope anyone who is newly diagnosed takes my good news as something to potentially look forward to in their own lives.
That is DD can go into remission.
 
Take care all
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/6/2009 12:07 PM (GMT -7)   
Hi That old barium is awful stuff and glad your showing no signs of disease ..whoo. So when do you have to get the operation and how the dickens do they get it out? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 2/6/2009 2:45 PM (GMT -7)   
I've seen several people refer to DD. What is that?
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 6 months ago. Now on Remicade and iron. Feeling like a champ!
God Bless. Tony


lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 2/6/2009 3:03 PM (GMT -7)   
Gail -- Not sure when, basically when the pain is no longer tolerable for me. Right now it's not so bad. My GI said they should be able to do laproscopic procedure unless I have too much scar tissue. I haven't talked to the surgeons yet, I'll find out more then.

yellow fin -- Sorry for the abbreviation....it means darned disease.

lamb61
 


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 2/6/2009 4:32 PM (GMT -7)   
All right... Soon as ya get that barium stuff taken care of, you'll be feeling better! That is SO awesome! :D... Great news!
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/6/2009 5:33 PM (GMT -7)   
That's pretty amazing actually. Did they say how that gets stuck? Like not drinking enough water after taking it in or something? Goodness knows I didn't hah..

I'm glad to hear everything else is healthy and normal!!! That's so great!!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/6/2009 7:18 PM (GMT -7)   
Hi Could I ask when you drank the barium. I remember when I had some a few years bach and had to go for a x-ray off and on for a month or two to see if that stuff was out of me and it stayed in quite awhile before I was clear. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


pjleger
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 10/13/2009 1:13 PM (GMT -7)   
Hi, I'm new to the forum. I'm looking for information and help.
In 2004, I had a bowel obstruction however jus prior to the operation I had a barium swallow test perform. I has closed up and they left the barium inside me with nowhere to go. A couple of hours after the operation the barium rupture my intestine ultimately spinning a double dose of the barium smoothie into my abdominal cavity. This caused me pain of 12 on the pain scale (0 to 10). I was promptly reopened and cleanup as best the could however some barium was still present. I was hospitalize for 4 months for an operation that would have taken 1 week before discharge.
Since then I have been on pain medication to relieve the pain which the calcified barium is causing me. Hydromorphone, Lyrica, Gabapenten these are some of the medications I have been on. Without mentioning the anti-depression meds and all of the associated issues with chronic pain. I have been told that there is nothing to be done. Is this true?
Any information would be expremely helpful, I have had difficulty finding any information on this condition other that several people have died when this has happened.
Thank you.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/13/2009 1:31 PM (GMT -7)   
yellowfin43 said...
I've seen several people refer to DD. What is that?

 

DD= damed diseases, darned disease, dumb disease, disgusting disease, ect.

 

 

:)


bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

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