pentasa and problems

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carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 2/7/2009 8:06 AM (GMT -7)   
Is anybody on pentasa? and what side effects do you have? Pentasa helps my crohns the best, but the side effects are harsh.
 
Thanks
Carmen
 
 

mojowo4
Regular Member


Date Joined Jul 2007
Total Posts : 137
   Posted 2/7/2009 8:14 AM (GMT -7)   
When I was on it I didn't notice side effects other than having the tiny beads in my stool still when I had a bm. Didn't seem to do anything for me so I moved on.

Dx CD 2003 but probably had it 10 years prior

Dx Primary Sclerossing Cholangitis 2006

GB out '95, Appendix out '96, Kidney stent '02/stone removal '02, Resection '04, fistulectomy '06 2x, tubal '05

Currently on 100mg 6mp-50 mg,  and Remicade every 8 weeks, Ambien, predsnisone, humira 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/7/2009 8:29 AM (GMT -7)   
I didn't have any side effects when I was on Pentasa other than as mojowo4 said the little beads in my poops. Well I did have softer poops when I was on it. I am on the sister med Asacol and it works well for me. What exactly do you mean when you say side effects?
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/7/2009 8:36 AM (GMT -7)   
I don't have any side effects other than what the others said too. And I don't really count that as a side effect..
It affected me pretty badly initially(possibly but I was also taking antibiotics). I had bad cramping and even bloodier stool. But, like I said, I was also starting a round of antibiotics with it too so I'm thinking pentasa never gave any side effects.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 2/7/2009 9:33 AM (GMT -7)   
I just switched from asacol to pentasa, yet my GI says there shouldn't be any side effects I didn't have with asacol. What type of side effects are you having?

35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily


carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 2/7/2009 12:58 PM (GMT -7)   
Thanks all for responding, I am in Canada and they are tablets versus capsules, I am no sure if that makes a difference...
It gives me worse backache than i usually have , and makes my feet feel weird. Makes me feel flu like symptoms...I have
tried all the other asa's for crohns, but this works the best , but gives me the worst side effects...Can't win.

Thanks
Carmen

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/7/2009 5:00 PM (GMT -7)   
I am wondering if what you are feeling is not from the Pentasa, but the joint pain many of us Crohnies suffer with. Just a thought!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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