BC pills and Crohn's

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/7/2009 10:32 AM (GMT -7)   
I've decided to stop taking Loestrin BC pills, and I was wondering if any of you have done the same and what kind of side effects there are on your Crohn's symptoms? I heard it makes some worse and some better, but I am apprehensive about what will happen.
I started them last year during the summer.
Also, just wondering if there are any other side effects. I heard you can gt horrible acne even if you didn't have it before, but my skin is generally drier anyway and it's not like I'm eating junk food to exacerbate any skin skin problems...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/7/2009 5:07 PM (GMT -7)   
I wasn't on those type of BC pills, but what I found when I quit them is I got worse PMS and cramps each month. So bad actually, that I finally ended up getting a hysterectomy because I was done having kids, and couldn't stand being miserable 3 weeks out of the month.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 2/7/2009 5:08 PM (GMT -7)   
I stopped taking BC pills after using them for about six years. At the time I was not officially diagnosed with Crohn's yet. I don't think it had an effect. My GI symptoms improved for about five months, then I ended up sick--which was more related to pigging out over the Thanksgiving holiday.
 
I did notice that my mood improved after getting off the pills. I had no change in acne. Only down side is that after a while, maybe almost a year, pre-menstrual cramping was back to the same severity as before I was on the pills. One person I know experienced significant weight loss after stopping, but I think it is uneventful for most women.


July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying... Enteral Nutrition, Flax Oil, VSL#3, Folic Acid, Vitamin E


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/7/2009 8:22 PM (GMT -7)   
Made my symptoms worse, of course it's different for everyone, but for most I'm sure it exacerbates symptoms for them as well.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/8/2009 2:37 PM (GMT -7)   
pb4-You mean going off them made your symptoms worse or staying on them?

Also, I don't really know what to take for that kind of pain when it gets to be that time of the month. I've usually just toughed it out, but lately I have lower tolerance for the pain. Mainly because I like to know if it's something to worry about or if it's the body's natural way of saying it 'works.' Is pamprin safe?
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/8/2009 2:45 PM (GMT -7)   
Sorry, to clarify being on them made them worse on a regular basis, being off of them is for the most part better but during my monthly cycle my CD symptoms get exacerbated more so than usual.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


caroline_r
Regular Member


Date Joined Apr 2004
Total Posts : 94
   Posted 2/8/2009 3:01 PM (GMT -7)   
LMills said...
pb4-You mean going off them made your symptoms worse or staying on them?

Also, I don't really know what to take for that kind of pain when it gets to be that time of the month. I've usually just toughed it out, but lately I have lower tolerance for the pain. Mainly because I like to know if it's something to worry about or if it's the body's natural way of saying it 'works.' Is pamprin safe?


Maybe you could try paracetamol for the pain? I take it because my doctor told me it wasn't going to be as hard on my CD as other painkillers. I try to stay away from any other painkiller. The problem is that paracetamol might not be strong enough for you. But maybe you could try it, I think you can take like 8 pills a day or something like that. Try it and see if it helps at all. I hope it does because any other painkiller just doesn't have a good affect on CD...

I just have to say once again that the doctors in Europe (the ones that know what CD is and deal with it - I stress this because not every GI knows enough about CD as we all know) strongly advise that women with CD don't take birth control pills because they mess with you hormones and with CD it's just not ok. I just think there's a pretty good reason why they say this. Don't kill me for saying this hehe.
21 yr. old with crohn colitis. Diagnosed in March 2004. No surgeries so far.

Post Edited (caroline_r) : 2/8/2009 3:05:33 PM (GMT-7)


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 2/8/2009 5:35 PM (GMT -7)   
I am the same as pb4...I was much worse on the pill. Once I stopped taking them, my periods and crohns symptoms at that time of the month got much better.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/8/2009 5:46 PM (GMT -7)   
I must be a strange one then, because the hormones made life much happier/healthier for me. I have had a complete hysterectomy and take a estrogen replacement and I have no probs with that either. I guess it shows the individualism of the disease.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 2/8/2009 9:39 PM (GMT -7)   
I was on bc forever - started as a young teen for ovarian cysts. I recently started having side effects from them and switched pills several times and finally just went off of them. Overall health wise I feel the same, some less naseau and less hormonal feeling (that constant pms feeling). However, 2 days before my period I get every sign of a crohns flare. Then it turns out to just be my period. I also think I lost some water weight since stopping. I am going to give it a few more months to weigh how I generally feel. If I find I feel about the same as I did on them I might go back on. If the time of the month side effects stay this bad I may also go back on.

It is a very individual disease and we each react differently to everything we do.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 2/8/2009 9:58 PM (GMT -7)   
I've been various forms of BC (from microgestin, to nuvaring, to orth tri cyclen lo, etc etc) since I was 16 (never got my period so it had to be induced) and am now on Yaz. Since I've never been off of it nor do I plan to soon, I haven't been able to notice any difference with symptoms. But I would guess that it doesn't affect me, though my mood swings has been a bit worse the past couple months.
20 y/o, diagnosed 6/2007. On Humira, no wheat or corn syrup, low sugar, low dairy.


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 2/9/2009 9:48 AM (GMT -7)   
Loestrin in most forms is a low dose estrogen pill(BC can vary on the estrogen and Progesterone content)...that's why I take loestrin as well. Me, makes my life so much better(I have tried both ways). Menses are so much lighter, shorter, and less painful, less headaches, mood swings, that sort of thing. But every person has different needs, some women feel horrid on them, some feel better on them (and wouldn't give them up...ever!)
Oh, and I flare worse during my time of the month...think all the pain and activity in the lower abdomen doesn't help my DD.

deg5046
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 2/9/2009 6:25 PM (GMT -7)   
Ive been on loestrin for a few years now and i love it, mostly because without it my period doesnt always come. I dont really suffer any side effects from it, no more acne than usual. i didnt notice any change at all in crohns symptoms either. I say give it a shot, and if something gets worse you can always stop the pill

hope it works out =)

misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 2/10/2009 12:22 PM (GMT -7)   
hey there! I don't think getting off of the BC pills will have a major effect either way on your Crohn's. In fact, I've been on BC since before I was diagnosed and I seem to have really bad flare ups around the time I PMS, its like I'm in the bathroom twice as much!

As far as acne goes, b/c your hormones will be out of "whack" for a while due to getting off the pill, it may cause a flare up of acne, especially in your chin/cheeks region. This is perfectly normal and should subside after a month or two at the most. If it doesn't, then I recommend seeing a good esthetician or a dermatologist for other options. As long as you're cleansing, toning, moisturizing and putting on sunscreen, then you are most likely doing all that you can to keep acne at bay. B/c usually when acne is severe, the dr. will suggest you go on birth control.

(I forgot to say, I'm an esthetician...so if you have any skincare questions, I might be able to help.)
26 y/o, diagnosed with Crohn's Disease at 25 y/o
Asacol 400mg 3 pills 3x daily
Entocort, 3 pills daily
Upset stomach daily, tired all the time (except when on Prednisone), occasional abdominal pain and sometimes mysterious rashes
Getting married Oct. 2009 and am ready to get into remission!!


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 2/10/2009 1:19 PM (GMT -7)   
I started my periods when I was 10 (lucky me!) 5 years before I was diagnosed, every month I'd have to do have about 3 days off school as my periods were agony and would also cause stomach upset, with hindsight we know now that was probably the Crohn's, I was put on the pill at 12 to help control it and things settled down amazingly. I stopped the pill when I got diagnosed (was just to ill to bother with remembering it) and was then too underweight to get periods for about a year. I then went back on the pill but I hated the withdrawal period as it became painful when I bled and got lovely D, and then I was recommended either the injection or the implant by the family planning nurse was also concerned that I may not be able to absorb the pill properly as apparently with IBD things like the morning after pill doesn't work. I didn't go for the injection due to my arthritis as it can apparently cause bone and joint problems and I didn't like the idea that once its in you its stuck for 3 months so if it didn't agree with me I'd have to wait it out! 
 
I got the implanon implant 2 and half years ago and its been brilliant, apparently when you look at all the different types of birth control and the hormone levels in your body on a graph it would like:
The pill - jaggedy line - hormones fluctuating according to breaks etc
The injection - diagonal line from up to down - hormone levels going from high to way down and then back up again when next jab issued.
The implant - one long straight line - hormone rate very steady
I may not have explained that very well but thats pretty much how the FP lady explained it and apparently its the steadiness of the implant which makes it good as your hormones aren't all over the place so your moods and everything stay steady and the best bit - no periods for the majority! But for me its been brilliant, especially as my stomachs always been very reactive to my mood and as a once bad PMS sufferer I don't think my poor tum would be able to handle PMS emotions!!
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/10/2009 1:38 PM (GMT -7)   
misspriss82 said...
hey there! I don't think getting off of the BC pills will have a major effect either way on your Crohn's. In fact, I've been on BC since before I was diagnosed and I seem to have really bad flare ups around the time I PMS, its like I'm in the bathroom twice as much!

For many it can make a world of difference as to how their CD is affected by birth control pills (either good or bad).
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


SallyC
Regular Member


Date Joined Nov 2004
Total Posts : 158
   Posted 2/10/2009 7:19 PM (GMT -7)   

I just had the mirena removed. Not due to crohns. Had a horrible flare shortly after it was put in but otherwise fine. However, I wanted it in to help control hormones more than anything and the birth control part was fine too because we weren't sure if we wanted anymore children.

I had lighter periods with it but didn't notice it controlling my hormones. Anyways, I had it removed because I was sick of wondering if different hormone issues I have been experiening were caused from the Mirena, the birth of twins 15 months ago, or my crohns meds. My husband is scheduled for a vasectomy. I feel better eliminating one more thing that has possible side effects. I have had more zits in the last 8 months then I have had in my whole life. That was another reason I had the Mirena put in. It didn't help so I still have a lot of zits:)

Good Luck! I will keep you posted if my crohns symptoms get worse in the next few weeks.

Sally

 


Post Edited (SallyC) : 2/10/2009 7:23:34 PM (GMT-7)


Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 2/11/2009 10:42 AM (GMT -7)   
I also take loestrin; well, i did up until last month when I was admitted to the hospital and they told me I couldn't take them while I was there... the reasoning behind this? I have no idea. But on top of being sick at the hospital, I of course got my period! So now I'm waiting til I get it again so that I can go back on them. The only side effect that I have noticed so far is that I'm breaking out; and I NEVER break out! I am also now on prednisone, so I can't say for sure if it's from coming off of the pills or going on the pred or a combination of both. But being on the pills gives me light to no periods so that is a definite plus, since with Crohn's the heavier the period the more impact it can have on flares.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 2/11/2009 2:34 PM (GMT -7)   
The pill helps me with my Crohn's actually. I always had more cramping up and D around that time of the month. Now I don't. I also skip all my periods (I have them twice a year), which can help me since I have had blood loss with my Crohn's in the past. I've been on it for many years also due to ovarian cysts.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Lexapro.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/11/2009 3:54 PM (GMT -7)   
Thank you guys SO much for your responses!!

My reasoning behind even quitting loestrin at all is to save money every month and not contribute to the trace amounts of hormones that ultimately end up back in city water supplies.

I'm just afraid to mess with hormones by going off of them, and, as shallow as it sounds, acne would just be one more appearance issue that I don't want to deal with right now...I am already mildly upset with the fat face, fat stomach, and fat legs!! And then skinny everything else hah.

I still have two weeks of this round of pills left to decide so we'll see I suppose.

Your answers have really helped :)
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 10:59 PM (GMT -7)
There are a total of 2,734,515 posts in 301,218 threads.
View Active Threads


Who's Online
This forum has 151336 registered members. Please welcome our newest member, depressionexam.
250 Guest(s), 7 Registered Member(s) are currently online.  Details
0311, depressionexam, Butterflywings1974, AnnabelleLee, Sarakt, puppylover, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer