One word description for Crohn's

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Kittikatt
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Date Joined Jul 2004
Total Posts : 422
   Posted 2/8/2009 4:07 PM (GMT -7)   
If you had to describe your Crohn's Disease in ONE word, what would that word be?
 
Mine would be:  UNPREDICTABLE! rolleyes
Diagnosed in October, 2004 at age 32.
37/F/SC
Current Rx's: Colazal (generic), Omeprazole, Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 2/8/2009 4:19 PM (GMT -7)   
Crappy
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/8/2009 4:22 PM (GMT -7)   
Painful

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/8/2009 5:48 PM (GMT -7)   
Miserable!!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/8/2009 6:01 PM (GMT -7)   
Sniper took mine so I'll elaborate and go with crappy.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


WantRelief
Regular Member


Date Joined Feb 2006
Total Posts : 261
   Posted 2/8/2009 6:15 PM (GMT -7)   
Annoying

32 year old female
CD of Terminal Illeum and Rectum Diagnosed 12/04
Unable/Unwilling to use immunosuppressents due to Melanoma history in 2000.
Illeocolonic Resection 1/08  (18 inches of terminal illeum, illeocecal valve, right colon and appendix)
Current Meds: Pentasa, Fosomax, Iron, Vitamin b12 injections, Vicodin, Flagyl


snohare
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Date Joined Oct 2004
Total Posts : 2088
   Posted 2/8/2009 6:20 PM (GMT -7)   
idea Bummer !

nruth
Regular Member


Date Joined Mar 2006
Total Posts : 195
   Posted 2/8/2009 6:45 PM (GMT -7)   
Another vote for crappy.

justjenjen
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Date Joined Nov 2003
Total Posts : 518
   Posted 2/8/2009 6:47 PM (GMT -7)   

LMills
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Date Joined Apr 2008
Total Posts : 1753
   Posted 2/8/2009 6:55 PM (GMT -7)   
Enlightening
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 2/8/2009 7:01 PM (GMT -7)   
Frustrating!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 2/8/2009 7:08 PM (GMT -7)   
Limiting.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 2/8/2009 7:12 PM (GMT -7)   
Stinky!

Jodi

Remicade and 6MP


HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 2/8/2009 7:40 PM (GMT -7)   
I too vote for Frustrating

35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 2/8/2009 9:28 PM (GMT -7)   
Surprising!!
I am always learning something new about Crohn's :)
24 year old female

Diagonsed with Crohns disease in December 2008..

Medication - Asacol, Remicade, Entocort


aquagirl900
New Member


Date Joined Nov 2008
Total Posts : 17
   Posted 2/8/2009 11:04 PM (GMT -7)   
Curse

andorable
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Date Joined Jun 2005
Total Posts : 981
   Posted 2/8/2009 11:21 PM (GMT -7)   

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/9/2009 1:35 AM (GMT -7)   
Isolating.
Co-Moderator Crohn's Forum.


kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 2/9/2009 1:54 AM (GMT -7)   
Irritating, in so many different ways!
diagnosed w/Crohn's 11/06. 34f with 2 boys, a lovable dog, and a wonderful husband. <S>150 mg Imuran</S>, bentyl, entocort, vicodin as needed, Humira, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/9/2009 2:21 AM (GMT -7)   
:-) kimberlayn
Co-Moderator Crohn's Forum.


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 2/9/2009 4:11 AM (GMT -7)   
hopeless

cayer
Regular Member


Date Joined Jan 2009
Total Posts : 76
   Posted 2/9/2009 4:13 AM (GMT -7)   
bloating
Tina 26yrs old Diagnosed in 2000 with Crohn's surgery for perianal abscess and fistulas
currently on Imuran 100mg used in the past Remcide, salofalc, pred.
Worst pain equal to child labor was after eating home made Granola...i can still hear the screams ha ha.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 2/9/2009 5:22 AM (GMT -7)   
Insidious
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


GemaRaven
New Member


Date Joined Feb 2009
Total Posts : 2
   Posted 2/9/2009 5:42 AM (GMT -7)   
PANTS!!

Lizard99
Regular Member


Date Joined Apr 2006
Total Posts : 192
   Posted 2/9/2009 6:41 AM (GMT -7)   
lifesaver.


It's made me appreciate all the good days, the wonderful people in life, and makes me realize how healthy and well I need to treat my body. I try to look at it in the positive. We're different, and that's what's makes us special. It's definatley a challenge and hard, and miserable at times, don't get me wrong. But it's also made me look at life in such a different way, and appreciate it more than ever.
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