just wanted to share the good news !!

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daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 2/9/2009 2:10 PM (GMT -7)   
i have been on 40mg of pred for 2 months and 2 weeks and woo hoo my GI told me today that I can start tapering down 30 for a week and then 20 for a week and 10 for a week and then woo hoo down to 5 it wont be long and i'll be off this stuff !!! if you cant tell im just a little excited !!
 
just wanted to share the good news !! smilewinkgrin
> 27 year old female < 
 > Diagonsed with Crohns disease in 2000 <
 > In 2009 I was told my Crohns is Crohn's Colitis ~ they said it was in my rectum, colon and all through my small intestine <
 
 > Medication - pentasa(4000mg), imuran(100mg), prednisone(40mg 30mg), vitamin C, multivitamin, b-12, iron, and fish oil <
 
> I thank the Lord every day for my amazing husband and wonderful family <


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 2/9/2009 2:55 PM (GMT -7)   
I know how you feel :) i have been off this stuff now for two weeks what a relief.. after having been on them for 3 months :(
My moonface is slowly going away.. And i don't need to eat everything i see anymore..
24 year old female

Diagonsed with Crohns disease in December 2008..

Medication - Asacol, Remicade, Entocort


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/9/2009 3:46 PM (GMT -7)   
Hi Good news for sure and hope it helps you feel better. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 2/9/2009 8:59 PM (GMT -7)   
This is so cool, Daisy. I hope you do well, stay in remission, and can avoid the pred for a very long time t come!
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You
               I get by with a lotta help from my friends!     
 Crohn's DG 2003 , symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much.
      Followed SCD Strictly 2003-06, then modified by adding new things 10-12 days apart to avoid delayed reactions in the form of arthritis symptoms. Scope on 2-5-09 was great! Doc says no symptoms,No scope for 10 years!!!
                                                                                    Margie11


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/10/2009 8:45 AM (GMT -7)   
Sounds like you have been on this med for quite awhile. Your taper does sound kinda fast though. If you find yourself starting to feel bad, try going down 5 mg. a week instead. A slower taper sometimes works better. I know not the news you wanted to hear, but just wanted to give you a heads up.

Good luck,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 2/10/2009 10:12 AM (GMT -7)   
Yeah, I love good news!

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 2/10/2009 10:37 AM (GMT -7)   
you know nanners i was kind of thinking that myself .... i was kind of shocked when he told me i could go down that fast ... i thought it would be more like 20 for a month then 10 for a month and so on .... so i will keep that in mind if i start to get sick ... but i will try your idea and just go down 5 a week ... thanks
> 27 year old female < 
 > Diagonsed with Crohns disease in 2000 <
 > In 2009 I was told my Crohns is Crohn's Colitis ~ they said it was in my rectum, colon and all through my small intestine <
 
 > Medication - pentasa(4000mg), imuran(100mg), prednisone(40mg 30mg), vitamin C, multivitamin, b-12, iron, and fish oil <
 
> I thank the Lord every day for my amazing husband and wonderful family <


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 2/10/2009 4:13 PM (GMT -7)   
AWESOME, DAISY! Wooooooooo! :D... I tell you, getting off that stuff is the best! No more body acne! No more hunger spells! No more worrying about awful side effects! No more bad aftertaste! One less medication. Oh yeah.
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/10/2009 4:39 PM (GMT -7)   
Woohoo! Great news, Daisy!
Co-Moderator Crohn's Forum.


sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/10/2009 5:29 PM (GMT -7)   
Yay!!! That is worth celebrating!

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/10/2009 5:32 PM (GMT -7)   
COOL!!!!!
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 2/10/2009 5:42 PM (GMT -7)   
WOOHOO!!!!!!!!!!!!!!!!!!!!!!
 
THIS IS ME ON PREDNISONE devil devil
 
CELEBRATE smilewinkgrin
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