help! I need your input asap

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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/9/2009 7:06 PM (GMT -7)   
Our community has a relief truck heading down to the fires this afternoon, and I'm trying to put together a package for someone who might have Crohn's or IBD.

They're living on cakes and biscuits and bacon and eggs in the relief centres. Someone with Crohn's is going to get really sick if they're forced to live on that stuff.

So far I have:
* panadol (painkillers)
* dairy free chocolate
* soy milk
* dairy free enteral feed (Isosource - a meal replacement drink)
* a hot water bottle
* soft toilet paper

Any other ideas? I have about three hours to get it together and down to the truck, so can't do detailed shopping.

Ivy.
Co-Moderator Crohn's Forum.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/9/2009 7:16 PM (GMT -7)   
Can't do Degas, as it's not in tamper proof boxes and they won't accept it.

Gauze is great, though - I'll rummage and see if I can find any. I suppose they'll need menstrual pads or panty liners too?
Co-Moderator Crohn's Forum.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/9/2009 7:22 PM (GMT -7)   
Diaper wipes, the wet kind.
Immodium
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/9/2009 7:41 PM (GMT -7)   
I've found and included some apple puree too.
Co-Moderator Crohn's Forum.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/9/2009 7:42 PM (GMT -7)   
Oh, and great idea re Immodium. Found and included it - thanks.
Co-Moderator Crohn's Forum.


FallColors
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Date Joined May 2007
Total Posts : 1220
   Posted 2/9/2009 8:01 PM (GMT -7)   
You are wonderful!!  If you have a hand-held squirt bottle, that will help those with peri-rectal setons keep them clean.  And panty liners will be nice too.

Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 2/9/2009 8:41 PM (GMT -7)   
Yes Ivy, you are wonderful. What about pudding cups or soft bars that are individually wrapped? Pads for incontinence?
Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 2/9/2009 9:48 PM (GMT -7)   
Don't know if I am too late but protein bars! I could live off those if I had too. And with the heat, pedialyte??
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


randynoguts
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Date Joined Jan 2003
Total Posts : 6050
   Posted 2/9/2009 9:48 PM (GMT -7)   
good ideas all.
randynoguts 



     http://www.geocities.com/randynogutsweb/


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/9/2009 10:08 PM (GMT -7)   
Back again. I got one carload of household stuff to the truck and almost cried when I saw how many people and how much stuff was there already. Within another hour they had put out a general call for people to stop donating stuff (temporarily) because the truck was full, so the Crohn's pack won't be leaving today :-(.

My gp assures me that there will be another truck, so please keep the ideas coming, and that should give me time to put a better package together.
Co-Moderator Crohn's Forum.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/9/2009 10:12 PM (GMT -7)   
ps. All this makes me think that each of us should probably have a bag packed with this stuff for ourselves so that we can grab it at a moment's notice if we ever have to evacuate.

There's no way the Red Cross would be able to cater to our specific medical and dietary needs in a large-scale crisis...
Co-Moderator Crohn's Forum.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 2/9/2009 10:15 PM (GMT -7)   
Good for your Ivy! The displaced crohnies are going to love you :). My suggestion are those little cups of applesauce and jello. Also, maybe some Vaseline, Preparation H, or Tucks pads for some butt comfort.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/9/2009 10:17 PM (GMT -7)   
Sorry, what are pudding cups and protein bars?
Co-Moderator Crohn's Forum.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 2/9/2009 10:17 PM (GMT -7)   
A ps for me too: they say you should make a list of things you would need if you were given 10 minutes notice to evacuate your house. A pre-packed bag of crohn's essentials is definitely a great idea!

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 2/10/2009 2:32 AM (GMT -7)   
all, we had a 2 page thread a bit ago about an emergency pack to have. i dont recall what the title was but it was something like disaster pack or something. maybe look for it. ?
randynoguts 



     http://www.geocities.com/randynogutsweb/


survivor49
Regular Member


Date Joined Oct 2007
Total Posts : 241
   Posted 2/10/2009 7:42 AM (GMT -7)   
What about those little self warming heating pads. I wear them daily to help with the pain in my abdomen.

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 2/10/2009 9:34 AM (GMT -7)   
Protein bars are basically meals in a bar
I eat balance - the yogurt honey kind
http://www.balance.com/original/default.aspx

I also agree with others about at least knowing in your head what to grab if you have to leave. We had a gas leak in our neighborhood and I was told to leave and barely took anything I should have with me.

I probably wouldn't keep a stacked pack b/c it would be a waste of food if I never used it. But it is smart to keep that stuff in the house ready to go.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 2/10/2009 10:20 AM (GMT -7)   

How nice of you Ivy.

This thread is really good. I agree we should all be ready. I keep my Humira ice packs and the cooler they ship my meds in just in case the power goes out so i can keep it cold.

I would add the protein bars also. 

Also maybe, oatmeal, cereal, jello or pudding (pudding cups are just single servings of pudding, some can be left out of the fridge) , meal replacement drinks, wipes and TP, can veggies.

That is so nice you are making a CD person's pack.

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 

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