Update: I have been on the phone with insurance companies, drs and hospitals for the last 2 days. Come to find out, my insurance had been "coding" my treatments incorrectly for 18 months and I should been paying the 10% all along. My GI is in their 2nd tier network and they were paying as if he was in 1st tier. They said they found the mistake in Oct 08. No one ever contacted me though to let me know what was going on and the Nov 9 treatment I had was paid in full. The Dec 29 treatment was only paid 90% though. When I was explaining to the insurance lady about
how expensive these are and that now I have a huge bill that I wasn't expecting she very rudely said to me, "I'm not sure what you want me to do abou it Ma'm. You were getting more coverage then you should have all along. You should be thankful." HOW RUDE~!! I'm not saying that it shouldn't have been corrected, but some notice would have been nice. Now I have a $500 bill on top of what I was already paying on for my GI. UGH!
The suggestion was to go to a different
location for the treatments. My options were 90 miles away, 87 miles away or the local hospital (10 miles) that I HATE! I went to this hospital for 10 years and was misdiagnosed the entire time. I had over $250,000 in medical bills for "female problems" that was crohn's all along. I have some very negative feelings towards this place as you can tell. I called around and found out that they don't actually do remicade at the main hospital but they do at another branch about
20 miles from me. I called and got everything set up to go to this new place that is local. There were about
50 phone calls back and forth to all the places because of some issues (my dr is in IN and I live in OH so they were trying to make sure there were no legal issues because he isn't licensed in OH but that's where I will be getting the treatments) but FINALLY we have it on track! At least I hope so. I got everything verified and changed with my insurance as well. They wanted me to "re-certify" the treatments but I pitched a little fit (LOL) because they are the ones that told me I needed to change places because of their error and it's the same dr so I didn't understand what the deal was. They eventually agreed that there was no need to re-certify. I was glad because it's a 2-3 week process and I am scheduled for my next treatment on 2/26. There is a bonus about
the new place though! They do infusions from 7am to 1:30am so I don't have to find a babysitter and all that mess like I used to. My GI is an hour away from where I live so it was 6-7 hours of being gone with traveling and taking the kids to a sitter. Now I can wait till my husband is home from work and go in the evenings! YAY! Anyways, I'm GLAD it got worked out and I don't have to stress.
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks