Migraines and Crohn's

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Regular Member

Date Joined Mar 2008
Total Posts : 176
   Posted 2/10/2009 10:09 PM (GMT -6)   
Do any of you with Crohn's also have migraines?  I would really appreciate some suggestions on what some of you do to stop the cycle when the migraines come and go for days on end.  I'm at my wits end, and all the weather changes this time of year is triggering them!!
Today will be my FIFTH day of taking pain meds to help stop the pain, but I know that if I take any pain meds beyond this timeframe, that I will be subjecting myself to rebound headaches.  I'm really getting panic-y and somewhat depressed, as the thought of having to suffer through another migraine without anything to subdue the pain is almost unbearable.  I already see a neurologist, and have been told that after the 5 days of pain meds, I just have to tough out the migraine.  Any suggestions from any of you on how to reduce some of the suffering involved with this? 
Please let me know if I should be posting this on the migraine forum, instead.  I'm posting it here for now, as I also have Crohn's and feel more comfortable on the Crohn's forum since that's where I do all my posting.  Thanks!

54 year old female;
Have had Crohn's of terminal ileum for over 9 yrs, but finally accepted diagnosis when it was confirmed Feb. 2008.
Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  Recently started Humira in December.

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 2/10/2009 10:47 PM (GMT -6)   
I started having really bad headaches when I started humira. Are you sure that's not what the problem might be? My GI said if they persisted that I needed to make an appointment with the neurologist.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."

Regular Member

Date Joined Mar 2008
Total Posts : 176
   Posted 2/11/2009 12:29 AM (GMT -6)   

Hi LMills,

Thanks so much for your reply.  I've had lifelong migraines since the age of 6; and they're definitely hereditary---both parents (and several extended family members) had them.  Your input about Humira, however, is good "food for thought".  Since so many different things can trigger migraines, Humira could possibly be just one more trigger.  I'll have to pay closer attention and see if there's any pattern.

Are your headaches worse during the first few days after your Humira injection?  Or, are they fairly continuous?

54 year old female;
Have had Crohn's of terminal ileum for over 9 yrs, but finally accepted diagnosis when it was confirmed Feb. 2008.
Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  Recently started Humira in December.

Regular Member

Date Joined Sep 2008
Total Posts : 457
   Posted 2/11/2009 5:55 AM (GMT -6)   
I take Imitrex and I found it has worked for me. Do you get an aura before your migraine? This helps me take action right away before I get too sick. I have found that if I walk or just move around and not lie down after taking my meds that this will work also. I know it sounds odd but I have had miigraines for 30 years so I have a little regiment. I hope you find relief soon!!!
dx'd with Crohns 1984, I was in remission for 12 years
Bowel Resection surgery 2006, Now weaning off  Predisone after another flare. Started taking my Asacol again.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 2/11/2009 9:16 AM (GMT -6)   
I had a really bad time with migraines last fall.  I ended up having to change neurologists because the one I was seeing just couldn't come up with anything to help.  The end result was an increase of Topamax, an addition of Atenanol (sp? blood pressure med) these are daily, Fioricet when a migraine hits, and Imitrex injection if needed.  I had a migraine that lasted for 11 weeks last fall and ended up having to get a nerve block to finally kill it.  But since the change in meds I have hardly needed the Fioricet and only needed to use the injection twice.  Good luck, I hope your doctor can come up with something to help you.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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