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hsmom
Regular Member


Date Joined Oct 2004
Total Posts : 35
   Posted 2/11/2009 5:18 AM (GMT -7)   
I have been reading posts on here for a long time and feel like you all are friends since you understand what it is like to have CD. I have been especially reading the posts on Humira as my doctor suggested it and I was afraid of it but finally decided to try it after reading how some people have been helped with it. Anyhow I took my first 4 shots yesterday (Tues) afternoon and they weren't bad at all. Just hard to get used to giving myself a shot in the stomach.
So far no site reactions. Does this usually happen right away or does it take a few days?
Was able to sleep for a few hours then have been up rest of the night with a little bit of headache and just can't sleep.
So anyhow just wanted to finally post on here. I had this feeling that I wanted my friends to know I have survived my first Humira shots and you all were the first ones I thought of. No one else would understand the fear of the unknown but you guys.
I have had Crohns for 36 years. Looking forward to talking to others who have been there.
 
Susie in OK

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 2/11/2009 5:22 AM (GMT -7)   
hsmom -

I don't know. But keep coming up and adding to your post.... as I am probably right behind you and want to know about EVERYTHING your go through.

Thanks!!

-Leslie a/k/a Texan with Crohn's

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/11/2009 5:42 AM (GMT -7)   
Hi Glad you posted and hope this works, I have not been on Hum. but there are lots here that have just wanted to say good luck.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/11/2009 5:51 AM (GMT -7)   
me too! my doc just mentioned it to me the other day as the next possible...

kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 2/11/2009 6:47 AM (GMT -7)   
IF I get a reaction at the site of the injection it's usually within a half hour. But I haven't had any real skin reactions since the first two months and I've been on Humira for almost 5 months now. I found that when I did it in my leg, it hurt more and more chance of a big red welt, so I've only been doing it in my stomach.
diagnosed w/Crohn's 11/06. 35f with 2 boys and a wonderful husband. 150 mg Imuran, bentyl, entocort, vicodin as needed, Humira, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/11/2009 6:58 AM (GMT -7)   
Glad your shots went well!!! Hopefully this med will do the trick for you.

Good luck,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 2/11/2009 7:55 AM (GMT -7)   
Hi HSMom! I sure hope it brings you relief!! I wish I wasn't allergic to it. It is relatively easy to take and so many have been helped by it. I hope it does for you too!
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


JAB
Regular Member


Date Joined Nov 2003
Total Posts : 351
   Posted 2/11/2009 7:57 AM (GMT -7)   
Shots in your stomach???!
This may be the next thing for me so any details on your experience are appreciated. Best wishes to you.
 
JAB

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 2/11/2009 8:31 AM (GMT -7)   

WELCOME!

I have been on Humira for about 6 months now and I love it. I did feel some improvement right away but it was not as good as I feel now. At first it seemed it was wearing off near the shot but now I don't get that anymore. I would give it some time before you really feel results.

I also rotate the shots like someone here said. I do a clockwise rotation, with each leg and each side of my stomach. I ice the area till I am numb and leave the shot out to warm up. sometimes it hurts and others I barely feel it. I think sometimes I hit a nerve or a tiny blood vessel when it hurts. I prefer the shot over the other pills I was taking so I don't mind the pain.

Welcome to the Humira club.
if you have ?'s let me know.


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


hsmom
Regular Member


Date Joined Oct 2004
Total Posts : 35
   Posted 2/11/2009 9:11 AM (GMT -7)   

I didn't ice before the shots but after I had been home a while one of the sites was getting a little raised up so iced it for a while and it went back down. This morn I just have a tiny bruise there and can see a faint little bruise at one other site but the other two are almost invisible now. Was so worried that the site reactions would be worse but guess everyone has a different reaction to it. Just as everything else about this disease differs from person to person.

I have crohn's, arthritis, fibromyalgia, a RVF--just to name a few of the things I deal with.

So I will let you know when I feel some improvement. I just finished 5 IV iron treatments and a month ago had two units of blood as my hemoglobin was down to 5 something and my hematacrit was 15 something. Thought it was my heart as was having lots of chest pain and trouble breathing but found out I was just severly anemic. So feeling lots better already now that I am making red blood cells again.


HanooN
Regular Member


Date Joined Dec 2008
Total Posts : 63
   Posted 2/11/2009 9:24 AM (GMT -7)   
good luck in your shot, actually I was about to take Humira, but the fade happen, I will not take it b/c I'm going to have a surgery soon. which means I might not need it any more.

but i was reading about it. Some people do very good taking it,i hope you are among them


best of luck
Age: 28
Diagnosed with CD JAN, 08.
Meds: Prednisone(40mg), Pentasa (4mg), Hydrocodone, prilosec, Fish oil, Multivitamins untill(01/27)
Surgeries: Right now I'm at the Hospital (Hotel) waiting for my Abscesses to be drained then I will have a Laparoscopic Resection Surgery. I’m very excited.
New med's at the hospital: Flagyl (1500mg/Day), levaquin(500mg/Day),Hydrocortisone(300mg/Day) ,Lovenox(40mg/Day) for clotting, regular insulin, dilaudid as needed (1 mg/4 Hr's)
TPN with lipids at night.
------------------------------------------------------------------------------
Words are, of course, the most powerful drug used by mankind.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 2/11/2009 9:28 AM (GMT -7)   
hsmom, definitely ice before you will notice a difference.
I have bruises sometimes but they are not too bad. I seem to be getting more used to it because it seems to bun less each time I give the shot.

good luck!
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


hsmom
Regular Member


Date Joined Oct 2004
Total Posts : 35
   Posted 2/24/2009 10:15 PM (GMT -7)   
Took my second set of shots tonight. so far so good. I could tell last few days that it seemed the first ones were wearing off. So was looking forward to taking these tonight to see if it helped. Now just hope I can sleep tonight. Hope Humira can help with this roller coaster of a life with Crohns.

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 2/24/2009 10:43 PM (GMT -7)   
Thanks for posting and I hope the Humirs helps you feel better with no side effects. Keeps us up to date.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 2/24/2009 10:44 PM (GMT -7)   
Oh Geeeez, now VV is going to come by and say I misspelled Humira...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 2/25/2009 1:10 AM (GMT -7)   
I have been on Humira for over a year. At first I didn't have site reactions, but gradually the redness and itching got worse. I started taking Benadryl 30 minutes before each shot, and it helped a lot. Also, I found that calamine lotion (like Caladryl or the generic store brand) helps when it itches much more than any other anti-itch cream. I only give myself the shot in the stomach though, because I found that it hurts a lot more in my legs. Like the others I rotate where I give the shot.

I hope it really helps you, as it's helped a lot of us here!
Becky

29 yr old female-dx with CD in '97 after emergency resection, 2nd surgery '05, currently on Humira, Prilosec, Wellbutrin

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