Severe Pain when Pooping

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mtgman
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Date Joined Mar 2005
Total Posts : 1285
   Posted 2/11/2009 9:53 AM (GMT -6)   
hi there.  i posted this issue a month or so ago but want to see if anyone else has any thoughts...
 
for approximately the past month I have been having SEVERE pain in the part of my stomach under my belly button when i poop...i guess the best way to describe it is a very bad cramp...it has been so bad that on 10 or so occasions now I have actually thrown up a bit while pooping...it's not really that much food or solids...more like bile -
 
any thoughts?  I have been flaring for a while now, but have never had this particular issue in 20 years with the disease.  It's scary and extremely painful...I feel like I lost a boxing match every time I come out of the bathroom.
 
I started a short course of prednisone a week and a half ago...60...50...40...30...20...etc...weekly and have been on 6-MP for approx. 3 weeks- nothing yet.
 
If anyone has/is expereiencing this type of issue I would be grateful for some insight.  Anything work to mitigate the pain/occurances?
Is it a stricture?
 
Help!!  Thanks so much!!!!!!!

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 2/11/2009 10:13 AM (GMT -6)   
Hi Mtgman,

I am so sorry you are experiencing such pain! Sounds awful! What does your doctor say about it? Could it be a stricture? I've never had one, but your description sounds similar to how others have described one. Have you had any tests for it? I hope you get relief ASAP!
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


caroline_r
Regular Member


Date Joined Apr 2004
Total Posts : 94
   Posted 2/11/2009 10:37 AM (GMT -6)   
Hey there :)

Maybe it's terminal ileum. Is it right next to your belly button? Like a little bit under it or a little bit on the right? Because that could be the reason your throwing up at the same time when you're pooping. Have you talked to your doctor about it?

6MP usually takes 3-6 months to start working :( but it could help you.
21 yr. old with crohn colitis. Diagnosed in March 2004. No surgeries so far.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1285
   Posted 2/14/2009 7:42 AM (GMT -6)   
thanks guys. i have tried to limit the amount of solid food i'm putting in me to see if that offers any relief...bought some Ensure yesterday too.
So far no improvement, but i know i need to give it more time.
spoke with doc last night- bumped me back up to 60 mg of pred til tues.
he took me off Asacol last week bc my liver #'s were high- he thinks the Asacol was driving these #'s higher with the 6-MP he started me on a couple of weeks ago.
I keep thinking stricture also...that scares me but it seems like it may be the case due to the severe pain primarily only when pooping.
I had a colonoscopy a couple of months ago though and he said it looked pretty darn good- i also had a contract CT scan/MRI can't remember which- he said looked ok
I need to find some relief fast though, becasue they could use this pain at Guantanamo--- I'D TALK!!!!

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/14/2009 8:16 AM (GMT -6)   
Hi Just wanted to ask if the pred. has helped make your bowels solid and if that is getting any better. The only other thing I could think of would be abscess or fistula but you say you had a scan. Have you had your stools tested lately for any problems? I used to get pain there before my operations and I think it was the things I mentioned or stricture. Are you having to push hard when you go? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1285
   Posted 2/14/2009 10:59 AM (GMT -6)   
hi Gail,

2 weeks ago when i started pred at 60 mg it seemed to be getting better- almost overnight of course...then a week later down to 50 and stopped Asacol due to liver issues. then things started getting worse again. hurts like hell and notthing improved so talked with doc last night at he bumped me back to 60 to see what that does. He said if that doesn't work he has a plan b in mind Tues so we'll see. I'm wondering if i should get another ct scan to sceck for stricture...is that the best test to identify?

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1285
   Posted 2/14/2009 11:14 AM (GMT -6)   
sorry Gail- i got distracted and did not get to the other part of your question...stools were more solid at 1st, now it's a mix...mostly not so...
and more blood, so something's pretty irritated.
haven't had any stool tests in a long time so maybe that's something we need to check also.
i don't push hard, bc i'm scared something may break...haha
i ususally just sit there for 45 minutes and let it happen...cramping basically the entire time until i'm done...then i need a nap.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/14/2009 11:29 AM (GMT -6)   
I had something similar right before I was admitted to the hospital last time...I could not believe how painful BM's were. I think it was a partial obstruction because IV steroids and a short liquid diet helped calm things down and open it up again.
I'm so sorry that's happening...as if it isn't bad enough to have to go several times an hour but to have it be painful. I really, really hope you get better soon....
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1285
   Posted 2/14/2009 11:32 AM (GMT -6)   
LMills said...
I had something similar right before I was admitted to the hospital last time...I could not believe how painful BM's were. I think it was a partial obstruction because IV steroids and a short liquid diet helped calm things down and open it up again.
I'm so sorry that's happening...as if it isn't bad enough to have to go several times an hour but to have it be painful. I really, really hope you get better soon....

thanks.  how long were you on a liquid diet for?  i've been trying to minimize solid foods, but i get SO hungry!  I did ok yesterday until nighttime and then I ate some cookies and a cheese quesadilla before bed...of course i woke up at 5:00 am and was on the can til 5:45 in serious pain...
any suggestions for staying "full" on a liquid diet?
 
thanks!

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 2/14/2009 11:39 AM (GMT -6)   
I'm not sure if it's just me, but I find on a liquid diet, my hunger passes very quickly. I will be starving, but then as long as I resist the urge to eat solids, the hunger pains are usually gone by the next morning and I don't even feel like eating by the next day.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/14/2009 12:40 PM (GMT -6)   
I feel the same as Valerie.
I will also try and find good drink supplements that don't bother me too much. I used to drink a lot of ensure and boost which helped quite a bit. I drink Silk soymilk-mostly the chocolate kind when I can handle it- and kefir(kefir is good at filling you up..) now when I feel like eating is just not a good idea. I've also found a lot of good vitamin powder supplements that don't have any sugar, dairy, or gluten in them at my local health food and organic markets.
I know it's difficult sometimes because you are STARVING, but that feeling has always subsided for me after the first couple of days.
Plus, I've always found that avoiding that terrible pain is good motivation...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/14/2009 12:40 PM (GMT -6)   
And I forgot to mention, drinking large quantities of water sometimes help get rid of hunger pangs. Especially in the evening.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1285
   Posted 2/14/2009 1:51 PM (GMT -6)   
thanks Valerie and LMills!
any specific suggestions on palatable drinks?
i just bought some coffee ensure and it's not so bad...like really sweet badly brewed coffee, but i can get it down...
i'm so picky when it comes to taste it's terrible!

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 2/14/2009 3:58 PM (GMT -6)   
Have you tried the Butter Pecan Ensure? It isn't that bad when it's ice-cold.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/14/2009 6:04 PM (GMT -6)   
Hi I had just a regular X-ray showed some narrowing,I did have a scan before resection that showed the narrowed TI I had .As far as filler up things I found creamed soups really helped me get something in .At first I mixed them with water.Hopefully this will get better as the pred. kicks in ..Yah the stool samples will help rule out other issues. Hope things get better soon. IV pred seems to work good too .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1285
   Posted 2/14/2009 6:06 PM (GMT -6)   
thanks guys! once again I REALLY appreciate all of the insight!!

ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 548
   Posted 2/15/2009 7:11 AM (GMT -6)   
mtgman, perhaps you ought to talk to your doc about switching to budesonide (Entocort) as an alternative to prednisone. The side-effects on budesonide are much less severe. I'm not saying this will work for sure, but anything is better than pain.

wishing you good health,
Robert
Crohn's since 1988
3 resections

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