How Do You Know It's Crohn's?

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catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted 2/12/2009 8:59 AM (GMT -7)   
I just returned from a wonderful island vacation. I was really sick before I left, so I started Entocort again and it worked quickly, and within days I was feeling great. I felt really well the entire trip with just a few exceptions.

The day before I came back, I weened down on the Entocort as the doc said. The day I got back I was ok, but that night I was horribly sick. However, I was also tired from the long plane ride, I had just returned to work, and I had visited my husband's grandma in the hospital, which was emotional.

Then ever since Monday I have not felt great. Currently, my stress level is fine, but my stomach is back to its old ways despite being on a lower dose of Entocort. Plus the cold sores have returned and my legs are constantly achy. I am seeing my GI next week.

Does anyone else feel like they have a hard time knowing if what is going on is a Crohn's flare or just a normal reaction to stress? It's so hard for me to determine the difference. Or is it always Crohn's once you are diagnosed?

Thanks everyone!
Diagnosed with Crohn's Disease; Meds: Entocort & Asacol; female in late 20s.


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 2/12/2009 12:31 PM (GMT -7)   
Well, this disease is so unpredictable.... so it's hard to tell whether you're just having a bad day or couple of days... or the making of a flare.... Generally, I reserve judgement until after a couple of weeks... if I've had consistent problems after a couple of weeks, I figure I'm probably having a flare....
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/12/2009 5:34 PM (GMT -7)   
I find it difficult to know if it is Crohn's as well. Generally I figure if it doesn't go away in a few days it is Crohn's.

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 2/13/2009 3:34 AM (GMT -7)   
Sometimes it can be hard to tell. I agree with the above posters. I give it a few days to see how I feel, then make a judgement call from there..... I hope you feel better real soon! Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 2/13/2009 6:49 AM (GMT -7)   

its hard to tell for me.  sometimes i get symptoms where its very obvious...i will have urgency to go, blood, etc.

however more recently, my flares have started with joint pain that got worse each day...then fatigue that wouldnt go away no matter how much i rested...then general ill feeling followed by evening fevers...and finally diareha, cramping, blood and just feeling horrible.    The start of the flare(joint pain) until it showed it was the disease took a few weeks.  I guess thats how my body reacts these days to flare ups. 

I like what sassy said... if it doesn't go away in a few days... seems to be a good rule of thumb. 

Vin


History: UC/Chrons since age 22, now 27.  Several huge flares since then.  Entire colon diseased at some point from cecum to rectum.  Also had previous inflammation in terminal ileum.
Currently: flare -9/19/08 - now|Panic Disorder - 6/25/08 - now|Lyme Disease - 12/09/08 - now|Dysplastic Nevus Syndrome - 6 recent mod dysplasia moles excised, and many more to shave biopsy.
Drugs: prednisone 50 mg|6mp 75 mg|lialda 4.8 mg|Cipro/Flagyl|Paxil 50 mg|Klonopin .25 mg|Trazodone 50 mg|
 
 
 
 

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