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kiki87
Regular Member


Date Joined Oct 2008
Total Posts : 79
   Posted 2/12/2009 11:06 PM (GMT -7)   
Hi, i was just wondering how is that crohn's causes weight loss? i have been losing weight, but i dont have dirrahoea at the moment, i'm not deficient in anything and i believe i am eating enough food. I am 5'0 and weigh 41kg. My weight seems to fluctuate from 40kg-42kg, since being diagnosed. My GI wants me to be 44kg and my doctor says 45kg.
 
The main form of exercise i do is light walking about 20minutes i'd say. I do lose my appetite from time to time but i still try to force myself to eat. The doctors don't believe i am losing weight due to crohn's. I don't have a thyroid problem either. I just don't understand what's going on?? Here is a sample of what i would eat in a day:
 
Breakfast: porridge + 1/2 banana
               or toast and fruit salad
Lunch: Tuna sald
         or Sushi rolls
         or a sandwich
         or rice/pasta salad
 
Afternoon snack: things like yoghurt, fruit or a hot chocolate
 
Dinner: pasta or rice with chicken or tuna, homemade pizza, burritos, stirfries, curry, vegetables,
( dinner is usually my biggest meal)
 
Dessert: i choose from things like ice-cream/ fruit salad/ hedgehog slice/ a cookie/ energy bar
 
Late night snack: hot chocolate/ fruit/ yoghurt
 
maybe i am not eating enough fats? i don't know. i don't really treat myself that often to sugary things but i dont deprive myself of any food groups and i dont have an eating disorder. i do have fructose malabsorption so that limits a lot of foods i would like to eat.
 
i've recently started an office job so i am sitting most of the day so i should be putting on weight from not moving much, although i do have a walk from work to the train station. my family and doctors r worried about me and people think i look sick. i dont know what to do! i start to worry myself that something is wrong. i keep telling myself that i don't have crohn's just because there was nothing found internally but all my symptoms point to it and my gi says that whats it is, but i keep thinking it is just IBS. i'm so frustrated cos i feel like they are giving up on me!
 

lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 2/13/2009 4:57 AM (GMT -7)   
When I first got diagnosed I saw a dietician who gave me the following advice on how to gain weight. She said subtle changes are best, so that when your up to a good weight these can be changed easily so you don't go the opposite end of the spectrum and end up overweight and don't do it in unhealthy ways such as binging on donuts (much as I'd love it if my body allowed that!!)
 
She suggested things like using full fat/calorie options of products, extra butter in sandwiches - extra filling if you can manage it, slightly larger portions of foods, when you have a cup of tea have a biscuit too - little things like that which would be easy to remove from the diet at the end. And also to incorporate a few high calorie drinks in, I use meal replacement drinks.
 
I've always been a small eater and in a suspected flare at the moment and am trying to gain as I need weight behind me in case I get ill again (in savage flares I lose up to 6kg a week!) and at 46 kg (5'3") my body would be a right old mess if it were to drop a lot of weight again. I have meal replacement in the morning as I can't face food then, lunch is usually a sandwich - I've been going for doorstep bread (more cals than thin slice) with extra mayo on fillings and sometimes a sprinkling of cheese as well (if you can handle it then its a godsend for calorie content!) and dinner varies but again try and make it as calorie laden as possible and add as many meal replacements as I can. I also always carry some sweets or something on me to try and keep me munching during the day but without filling me up too much.
 
Ahhh what happened to the good old days when I used to have to go the gym 4 times a week to keep a good figure?!
Hope any of that helps, I'm sure the dietician had more tips but I just can't remember off the top of my head. Maybe you should see one? They could probably work out a good plan that'll fit to you.
 
 


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 2/13/2009 6:50 AM (GMT -7)   
I have just been diagnosed and haven't started treatment, but I am 5'3 and I have gone from 50 kg (110 lbs) to 39 kg (87 lbs). I would highly suggest seeing a dietitian - I know that I'm going start going to see one. I know that for me, gaining the weight back will be a struggle because I have never been able to gain weight, even when eating like a pig. Were you like this before you were diagnosed? You didn't say. It could be contributing. Like the post above me, I would suggest trying the meal replacement drinks like Ensure or Boost, but supplementing them into your diet as snacks so you don't lose weight instead. Try protein shakes and bars too. I wish I could help more, but I'm in the same boat as you are. :( Go to a dietitian!!

kiki87
Regular Member


Date Joined Oct 2008
Total Posts : 79
   Posted 2/13/2009 6:08 PM (GMT -7)   
thanks for your advice =).

yeh i am booked in to see a dietician early march. it will be good to finally get some proper help! before i was diagnosed i lost weight intentionally. i went from about 52kg to 48kg. then went to 45kg and stayed there. but once i was diagnsoed with the food intolerances my weight dropped more and was at 42kg for a bit and now it seems to go up and down between 40 and 42kg. so i havent really had a problem with maintaing weight before but now it seems to be a bit of an issue. i don't like people thinking i have an eating disorder or being able to see my bones sticking out. it's not very nice! a lot of the protein drinks and barsi can't have because they have fructose or inulin in them which i don't absorb properly because of the fructose malabsorption. i need to build up lean muscle mass too. i just recently had a blood test for my iron levels, b12 and fat levels etc.. but last time they came back all fine, apart from being borderline iron deficient, so i must be absorbing things properly. so i shouldn't be losing weight then? i dont know! is it still possible to lose weight from crohn's and be absorbing nutrients etc?

kiki87
Regular Member


Date Joined Oct 2008
Total Posts : 79
   Posted 2/13/2009 7:37 PM (GMT -7)   
also do u ever find that after you have eaten you sort of get the feeling that your about to have D but nothing happens? and soemtimes i find that after eating i am really hungry a short time after. it's like i havent eaten anything. could that mean i'm not absorbing food?

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/13/2009 7:43 PM (GMT -7)   
hi there. i just asked the same question on another post...same issue- sick and losing weight fast. it seems as if every time i jump on the scale i weigh a bit less...
is there a percentage of body weight where you should say "uh oh" and intervene in some way through a professional?
how much weight is it ok to lose this way before it is unsafe?

kiki87
Regular Member


Date Joined Oct 2008
Total Posts : 79
   Posted 2/13/2009 8:04 PM (GMT -7)   
if u have a bmi of under 18 then u r considered underweight. i think maybe if you are losing more than 2kg a week it would be time to go and seek some professional help.

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 2/13/2009 8:19 PM (GMT -7)   
The criteria for anorexia weight-wise is if you're 15% or more under the healthy weight for your height - I would use that as a benchmark. For me, that was when my doctor started to really worry about my weight.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/13/2009 8:27 PM (GMT -7)   
thanks guys! i will look into this...i think i've got a way to go...

kiki87
Regular Member


Date Joined Oct 2008
Total Posts : 79
   Posted 2/15/2009 12:11 AM (GMT -7)   
does anyone know how to build up lean muscle mass?
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