lingzhi - my miracle cure

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ozonehole
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Date Joined Dec 2006
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   Posted 2/14/2009 12:21 AM (GMT -7)   
Sorry for the dramatic choice of words in the subject title, but I had to get your attention. This may be my most important post yet.

Lingzhi isn't a "cure" for Crohn's, but comes darn close. It has proven to be more effective in treating my Crohn's than Asacol, prednisone and Entocort - the three medications that I was formerly taking but have now stopped. Lingzhi is cheap and available without a prescription. The reason why it's of interest to Crohnies is that it has strong anti-inflammatory properties. The results for me have been extremely positive - I'm just kicking myself for not having stayed on lingzhi all these years (more on that below).

Let me clarify just what I'm talking about. Lingzhi is a mushroom - an herb - used in Chinese medicine for centuries. Wikipedia has a good page about it:

http://en.wikipedia.org/wiki/Lingzhi

Where I live - in Taiwan - lingzhi is sold in just about every pharmacy. In Western countries, it's usually sold under the Japanese name reishi, even though almost the entire world's supply comes from China. Although many inflated claims are made about lingzhi's health benefits, it's anti-inflammatory properties make it useful for a wide range of illnesses (arthritis, asthma, bronchitis, etc). I do not consider it a cure-all (even though it gets promoted as such). After badly flaring and getting almost no improvement from Asacol and Entocort (and unwilling to go back on prednisone which gave me glaucoma), I turned to lingzhi in desperation and saw almost immediate improvement. After two months on lingzhi, I feel like I'm in total remission.

Ironically, I knew about lingzhi 20 years ago, and only rediscovered it recently. Before my Crohn's was diagnosed, I was in a lot of pain and the doctors didn't know why. A Taiwanese friend of mine thought I might have cancer, and suggested that I take lingzhi (since it's touted as a cancer treatment too). In desperation I tried it, and my condition improved dramatically. However, about six months later I suffered a total obstruction, had surgery, and my Crohn's was discovered. After that, I followed my doctor's advice and went with tried-and-trusted Western drugs. I put aside my lingzhi it was forgotten. It was only about three months ago - frustrated that my condition was deteriorating despite the Western medications - that I turned to lingzhi again. And it was worked miracles.

I'm assuming that few, if any, of you live in Taiwan, Korea or Japan where lingzhi is widely available at just about every pharmacy. However, it can be bought online. Doing a google search on "buy reishi" brings up a lot of vendors. I can't vouch for any of these products since they are not the same brands available in Taiwan. There may well be junk reishi on the market - I'm suspicious of brands that are overly cheap. With that in mind, here are a couple of hits I came up with:

http://www.amazon.com/Natures-Way-Reishi-Standardized-capsules/dp/B00014FLMM

http://www.nextag.com/reishi-mushroom-extract/search-html

I should add that here in Taiwan, rather than buy the mushroom-extract capsules, I usually buy the dried mushrooms themselves, and cook them in a rice cooker for two hours, then drink the liquid (which I also refrigerate and use for several days). The dried mushrooms need to be kept refrigerated too, or else they get moldy. In Western countries, it might be difficult or impossible to buy the dried mushrooms. I've gotten good results with the capsules too, which I use whenever I'm traveling (since cooking mushrooms while traveling is rather inconvenient).

If lingzhi is so great, why don't doctors prescribe it to all their Crohn's patients? I asked my local doctor (here in Taiwan) that question. His response was that nobody does controlled studies on herbal medicines, and without such proof of effectiveness he can't prescribe them. Herbal medicine is popular here in Taiwan and is even covered by our National Health Insurance plan, but for that you've got to visit a traditional Chinese doctor - the Western-trained doctors don't venture into this realm.

As for drug studies - they are paid for by drug companies which aren't interested in lingzhi since they can't patent it. Unless the government wants to step in and do such studies, they won't get done. Outide of Taiwan, health insurance companies won't pay for lingzhi, even though they'll pay for vastly more expensive drugs such as Humira. I guess that the situation with lingzhi is the same as with low-dose naltrexone (also unpatentable) - without a financial incentive, drug companies are not interested. Indeed, their financial interest is to promote expensive drugs - they'd get lingzhi and LDN banned if they could.

Anyway, if anybody here has taken lingzhi, or plans to start taking it now, I'd love to hear what results, if any, you're getting.

Wishing good health to all,
Robert
Crohn's since 1988
3 resections


gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 2/14/2009 5:06 AM (GMT -7)   
Hi Haven't seen you around for awhile and thanks for the post. Glad to hear it is helping.. Just wandered the first time you were on it, if you were on it at the time you obstructed? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


mtgman
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Date Joined Mar 2005
Total Posts : 1289
   Posted 2/14/2009 9:16 AM (GMT -7)   
anyone else tried these? i googled them and everything seemed to indicate they are very safe...4000 year history in herbal medicine and no side effects...
i think i' going to run to a few health food stores today to see if i can pick some up.
ozonehole- thanks for the info. if you make a tea how does it taste?

LMills
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Date Joined Apr 2008
Total Posts : 1753
   Posted 2/14/2009 9:19 AM (GMT -7)   
That's interesting..I just like hearing about what you try and/or do in Taiwan in general.
I'm really glad to hear it is helping you. I'd be more inclined to try things like that in the countries they come from, but not if they are exported. There are too many risks of consuming something you really don't want to that way...which is a shame. I think each country has many things they could share but for that.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/14/2009 9:24 AM (GMT -7)   
Kasper--?????
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 2/14/2009 11:40 AM (GMT -7)   

My dad is VERY in to Chinese medicines.  At the Kung Fu class he takes his Sensei told him that there is a chinese medicine that would "cure" just about any disease out there, just not too many people know about it.  He gave my dad a list of things for Crohns disease..the list included Slippery Elm, Marshmallow, Cats Claw, and Boswellia.  He said theres a whole bunch more but those were the basics and the easiest to find.  Im going to tell my dad to ask his Sensei about those mushrooms, and see what he says :)


Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Humira (bi-weekly)
 

mtgman
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Date Joined Mar 2005
Total Posts : 1289
   Posted 2/14/2009 11:53 AM (GMT -7)   
hey Kasper- I see in your sig you're taking wobenzyme...
an er doc mentioned it to me years ago (under the table if you know what i mean)
i took it for a while and it seemed liked it did good...
then i stopped- i tried it once again a few years later but don't recall it doing much
what's your take on it?
i know it's a huge supplement used in Germany etc...

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/14/2009 1:45 PM (GMT -7)   
mag some of those herbs that you listed can be risky because they can interact with other things... so please folks just be very careful and do your research
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


MAG102886
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Date Joined Jul 2008
Total Posts : 674
   Posted 2/14/2009 2:59 PM (GMT -7)   
Of course MMMNAVY, just because things are natural doesnt mean it wont mess with your other meds, or create a bad mix with each other. Everyone should check into those things before trying them.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Humira (bi-weekly)
 

ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 2/14/2009 6:36 PM (GMT -7)   
Hello again everyone. Glad to see that some of you are interested in lingzhi, and I hope it helps all of you as much as it has me.

To answer some of the questions...

gachrons said...
Hi Haven't seen you around for awhile and thanks for the post. Glad to hear it is helping.. Just wandered the first time you were on it, if you were on it at the time you obstructed? lol gail


I was obstructed dozens of times over the course of nine months. In and out of the emergency room almost every week. All this happened in Taiwan where Crohn's disease is extremely rare - I was the first case this hospital (one of the largest in Taiwan) had ever seen, so they weren't able to diagnose it. So about six months into my illness, a Taiwanese friend of mine suggested lingzhi - I noticed a quick improvement. No more trips to the emergency room for the next three months. But I was running a constant low-grade fever (turned out this was caused by internal fistulas) that never went away. I could feel something strange inside of me (turned out it was adhesions). Then one day I did obstruct again after eating a big meal - went back to the hospital, and my GI doctor decided that an exploratory surgery was called for. As soon as the surgeon opened me up, he recognized it as classic Crohn's disease (the surgeon - not my GI doc - did his residency at New York's Mt Sinai Hospital, so he had seen many Crohn's cases before).

mtgman said...
i think i' going to run to a few health food stores today to see if i can pick some up.
ozonehole- thanks for the info. if you make a tea how does it taste?


The tea is bitter, though I've come to like the taste. You can sweeten it with sugar or artificial sweetener, but I usually don't. However, in a Western country you probably won't find the whole mushrooms for making tea, unless you live near a Chinatown. Health food stores will probably sell only the capsules, which contain an extract from the mushrooms. You just swallow the capsules whole, like any other pill. The capsules do work OK, but are more expensive. If you do find the dried mushrooms for sale, you have to keep them refrigerated - otherwise, they get moldy fast. I believe the capsules contain some kind of anti-fungal preservative. You do not eat the mushrooms - you cook them and drink the liquid. The mushrooms themselves are as tough as rubber.

LMills said...
That's interesting..I just like hearing about what you try and/or do in Taiwan in general.
I'm really glad to hear it is helping you. I'd be more inclined to try things like that in the countries they come from, but not if they are exported. There are too many risks of consuming something you really don't want to that way...which is a shame. I think each country has many things they could share but for that.


Actually, you do raise a good point about exported medicine. China in particular has earned a notorious reputation for putting harmful things into their products to make them more marketable. There have been scandals in the past where Chinese companies were caught adding steroids to their medicines - this makes the medicines work "miracles", until the side-effects kick in. That's one more reason why I prefer to buy the actual lingzhi mushrooms, as opposed to capsules - you can't fake the mushrooms. However, I think if you find a reputable company (preferably one based outside of China), their product should be OK. That's why I'm suspicious of ridiculously cheap reishi capsules - if it's a deal that sounds too good to be true, it probably is. Remember that the herbal medicine industry is not regulated (at least in the USA) by the FDA or any other government agency, so the reputation of the manufacturer is your only real protection.

As for Taiwan, and what I'm doing here... Taiwan is a pretty modern place, and boasts good health care. Totally socialized medicine, like Canada and Western Europe. It's crowded here though - horrendous traffic, but good train service, not much English spoken. If you ever visit, be prepared for considerable culture-shock. I'm not Taiwanese myself - I'm married to a Taiwanese, which is why I can live here legally. I'm now retired, but I used to be a journalist. If you want to know more about Taiwan, it's economy, politics, etc, check out our online newspaper: http://www.taipeitimes.com

Kasper87 said...
PREDNISONE???


Prednisone worked very well for me, until it gave me glaucoma. I nearly went blind. My father was on prednisone for cancer - worked well for him too, until it gave him osteoporosis. His bones became so fragile that he was afraid to move. I won't touch prednisone now with a ten-foot pole.

Kasper87 said...
Ozone, I found Lingzhi Reishi Tablets. Like the three (2) times a day ones

Those are not as good as the real deal?


Should be fine as long as they are a reputable brand. As I mentioned in my original post, I do take the capsules when I'm traveling since carrying mushrooms (that need to be refrigerated and cooked) is very inconvenient. Try it for a month and see how it works, and please let us know. I'm very interested to see what results others are getting.

Kasper87 said...
Ozone, I found Lingzhi Reishi Tablets. Like the three (2) times a day ones

Those are not as good as the real deal?


I don't think you need to dissolve the capsules in water. They'll dissolve in your stomach just fine. As I understand it, the capsules are made by cooking the mushrooms, drying out the resulting solution and mixing it with some powder that gives it bulk and prevents mold.

MAG102886 said...
My dad is VERY in to Chinese medicines...


I asked the (Western-trained) GI doc that I see here in Taiwan what he thinks about traditional Chinese medicine. His reply was that there's no such thing - as he put it: "There are only two kinds of medicines - those that work, and those that don't." 'Nuff said.

best regards,
Robert
Crohn's since 1988
3 resections


EruditePaul
Regular Member


Date Joined Jan 2006
Total Posts : 266
   Posted 2/14/2009 7:24 PM (GMT -7)   
I originally came from China, but now I live in the U.S.  I heard some positive stories about Linzhi, when I was in China.  I guess it works well for some people.  I did not try it.  Maybe I was very cautious, as I just stick to my Chinese herbal drink.  I have an herbal doctor in China, who wrote the herbal prescriptions for me.  My herbal mix consists of some 16 different herbs, which I think should be more potent than just one.  I am not sure how to translate those herb names into English.  But what you said is encouraging. 

Diagnosed with CD in 1994;

In 1994 I was treated with Pentasa of no avail.  Have being treated with Chinese herbal medicines for over 10 years.


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 2/14/2009 11:13 PM (GMT -7)   

Ozone and Forum,

   One of the first Crohn's support diets I found when I was DG'd was macrobiotics, a vegan lifestyle that included the use of healing mushrooms. It told how to use a few types in cooking, and were one of  a dozen ideas I continued to use from that discipline. After I followed the SCD, some of the first things I added back to my diet post SCD were these mushrooms. Later in my research, I learned that most disciplines avoid strengthening the immune system in Crohn's Disease and other autoimmune disorders, but I felt the mushrooms had been helpful.
   When I went to work in the health food industry in 2004, I first heard of the Reishi mushroom. I had the privilege of working with a gentleman who practiced and taught acupuncture and some other forms of Chinese healing and we had several discussions about various mushrooms. We discussed private research early on that indicated many worked best when used in the place they grew, some worked best on people who were indigenous to the same areas as the mushrooms, and a few could only be grown where they had originated. When various supplements manufacturers believed they had accounted for and overcome some of these obstacles, several products were marketed in the USA. Around the same time, my coworker brought a large bag of whole Reishi mushrooms and passed them around to several of our fellow coworkers. It was most bitter. I do think the week or so that I sipped on the slow simmered tea from the refrigerator, my health improved. I have also experimented with some capsules, and most seemed to be helpful. It seems they regulate the immune system, rather than stimulate it and that is how/why it is beneficial to autoimmune sufferers. Magic Johnson became  a spokesman for a mushroom supplement, and Jordan Ruben marketed RM-10, a mushroom product he developed for a family member.

    Here are a few links to some of my favorites.

This company is awesome:

http://www.newchapter.com/product-categories/lifeshield-mushrooms

 And this one has a interesting red food mushroom product:

http://www.shop-enzymatictherapy.com/store/product42.html

 Some do have strong actions in the body, so please do your homework, and keep in touch with your pharmacist, and other health care providers.

 


  Never go faster than your guardian angel can fly! Be Patient And Tough, Someday This Pain Will Be Useful To You I get by with a lotta help from my friends!    
 Crohn's DG 2003 , symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Followed SCD Strictly 2003-06, then modified by adding new things 10-12 days apart to avoid delayed reactions in the form of arthritis symptoms. Scope on 2-5-09 was great! Doc says no symptoms,No scope for 10 years!!!
                                                                                    Margie11


carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 2/16/2009 1:02 PM (GMT -7)   
I just called a store in china town, they stated they have lingzhi mushroom that I would boil, is this the same thing? I am desperate to try anything?


Thanks
Carmen

carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 2/16/2009 1:04 PM (GMT -7)   
Can I ask another question, how much mushroom do I boil in the rice cooker with how much water? Then how much do I drink in one sitting?
How often do I drink a day?

Thanks
Carmen

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 2/16/2009 1:44 PM (GMT -7)   
This is a great thread, ozonehole! Thanks!

So are reishi and lingzhi the same mushroom? I've heard of the reishi for years, but lingzhi is new to me.

Also, along these lines, Dr. Oz was suggesting Kombucha tea for its overall health benefits; its history dates back to the Qin Dynasty, according to Wiki. Here's a link where it mentions that it is used to aid digestion, among other things:

http://en.wikipedia.org/wiki/Kombucha

Keep us posted!
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too.


carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 2/16/2009 3:40 PM (GMT -7)   
I just came back from china town , and they showed me the mushroom in its full form , and then they cut it for me. It is in its dry form,
a weeks worth, I am now boiling it.

Thanks
Carmen

FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 2/16/2009 4:02 PM (GMT -7)   
Ozone - can you cook the mushroom into food or is it only effective your way (boiling and drinking?)
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 2/16/2009 9:58 PM (GMT -7)   
Fitzy,

This is a very woody textured and bitter tasting mushroom. Even after slow simmering for a few hours, the texture is very much like the trees from which it grows. The mushrooms I used for health were crapake and mitake mushrooms that are usually found dried. I have found them in gourmet and health foor stores. They are strong and earthy, and even after I got used to them I prefered the taste with beef stews and gravys.
  Never go faster than your guardian angel can fly! Be Patient And Tough, Someday This Pain Will Be Useful To You I get by with a lotta help from my friends!    
 Crohn's DG 2003 , symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Followed SCD Strictly 2003-06, then modified by adding new things 10-12 days apart to avoid delayed reactions in the form of arthritis symptoms. Scope on 2-5-09 was great! Doc says no symptoms,No scope for 10 years!!!
                                                                                    Margie11


ozonehole
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Date Joined Dec 2006
Total Posts : 559
   Posted 2/17/2009 7:22 AM (GMT -7)   
Hi All,

Apologies if I'm a bit late in responding to the questions asked. It's been a long day, plus there is quite a time zone difference between Taiwan and where most of you live.

So without further ado...

Margie11 said...

After I followed the SCD, some of the first things I added back to my diet post SCD were these mushrooms. Later in my research, I learned that most disciplines avoid strengthening the immune system in Crohn's Disease and other autoimmune disorders, but I felt the mushrooms had been helpful.


I don't want to pretend to be an expert, but my guess is that it's the anti-inflammatory trait of lingzhi that benefits us Crohnies. As to what effect it has on the immune system, I confess to ignorance.

carmen said...

I just called a store in china town, they stated they have lingzhi mushroom that I would boil, is this the same thing? I am desperate to try anything?


It certainly sounds like we're talking about the same thing. Since you're calling on the phone and not showing them the Chinese characters, it might help to know how to pronounce it correctly because the Romanized spelling is deceptive. The "ling" is pronounced just like it looks (rhymes with "ring"), but "zhi" is pronounced like the "jur" in "jury."

If you're emailing them, the traditional Chinese characters are 靈芝 and simplified Chinese is 灵芝.

Remember that the dried mushrooms should be kept refrigerated, or else they can get moldy.

carmen said...

Can I ask another question, how much mushroom do I boil in the rice cooker with how much water? Then how much do I drink in one sitting?
How often do I drink a day?


My wife (bless her heart) cooks it for me, but I went and asked just know. She talks a big handful of the dried mushrooms (they're already sliced) and cooks them in about 3 quarts of water. To squeeze a little more mileage out of it, she then puts the rice cooker pot into this big thermos thing we have. I'm going to try to post some photos to show you what all this looks like.

Anyway, once you got a nice bitter "tea," it's ready for drinking. I drink one cup each time, 3 times a day. Although the bitter taste at first put me off, I've actually come to like it. However, you can add sugar or sweetener if you prefer.

After the mixture has cooled down, the liquid should be put into a container and kept refrigerated. When I want to drink some, I put it in a cup and heat it in the microwave for a minute since I prefer it warm. The used cooked mushrooms aren't useful for anything (except maybe composting) so you can discard them.

EMom said...

So are reishi and lingzhi the same mushroom? I've heard of the reishi for years, but lingzhi is new to me.


Yes, they are the same. Lingzhi is the Chinese name. It's reishi in Japanese name and yeongji in Korean.

EMom said...
http://en.wikipedia.org/wiki/Kombucha
Also, along these lines, Dr. Oz was suggesting Kombucha tea for its overall health benefits; its history dates back to the Qin Dynasty, according to Wiki. Here's a link where it mentions that it is used to aid digestion, among other things:

http://en.wikipedia.org/wiki/Kombucha


Thanks for mentioning Kombucha - I hadn't heard of it before, but the Wikipedia link was interesting. However, it's probably not a good idea to mix lingzhi with Kombucha - I have no idea what that would do to you, but the Wikipedia page did include some pointed warnings about possible side-effects of Kombucha, including liver damage and increased stomach acidity. I admit that I don't know anything about Kombucha - I'll have to find out its Chinese name before I can even ask our local herbal specialists.

Kasper87 said...

Carmen, If you have a Vitamin Shoppe or a health food suppliment store, Get a product called Reishi muchroom extract.
Reishi is another name for lingzhi here in the states.

The reason they have you "boil it" is because Mushrooms have chitin in them which i guess prevent our bodies from taking advantage of the medicinal properties or breaking it down.

The Extract tablets have already been boiled and put in pill form. Which is the point of boiling.

I take the pills and open them in a small cup of water and drink it down twice a day.

Get a product with the highest "extract" mg dosage. 250+


Thanks Kasper for mentioning that the lingzhi extract capsules on the market to vary in their strength. There is a price difference, with the higher dosage capsules obviously costing more.

carmen said...

I just came back from china town , and they showed me the mushroom in its full form , and then they cut it for me. It is in its dry form,
a weeks worth, I am now boiling it.


That's great that you could get it so easily. Out of curiosity, which Chinatown do you live near?

FitzyK23 said...

Ozone - can you cook the mushroom into food or is it only effective your way (boiling and drinking?)


Don't try to eat the mushrooms - they are as tough as rubber. I tried biting into one once (after it was cooked), and it was like chewing on a bicycle tire.

Margie11 said...

Fitzy,

This is a very woody textured and bitter tasting mushroom. Even after slow simmering for a few hours, the texture is very much like the trees from which it grows.


You couldn't be more right. Your comment reminds me of the first time I tried to eat sugarcane. As I discovered to my chagrin, you don't swallow the sugarcane, you chew it for the sweet juice. Unfortunately, I did swallow my first bite - rather like dining on balsa wood.

cheers,
Robert
Crohn's since 1988
3 resections


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 2/17/2009 7:33 AM (GMT -7)   
Hi again,

I'm going to try posting a few pictures - hope this works. Forgive the crappy photography.


VIEW IMAGE
Uncooked lingzhi in package. Enough to last me almost a month. Costs about US$10 here in Taiwan.


VIEW IMAGE
Cooked lingzhi. Note that it swells to about double its size after cooking. The amount shown here easily makes 3 quarts of the drink.


VIEW IMAGE
Our rice cooker.


VIEW IMAGE
The Thermos that my wife uses to keep the lingzhi "tea" warm for hours, to let it steep. Not entirely necessary, but she gets a little more extract by using this thing.


VIEW IMAGE
The Thermos with the lid closed - gives you an idea of the size. Do they sell these things in Western countries?
Crohn's since 1988
3 resections

Post Edited (ozonehole) : 2/17/2009 7:42:41 AM (GMT-7)


jtaylor
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 2/17/2009 8:26 AM (GMT -7)   
I'm going to try and locate some Reishi extract in pill form today. Any results for you yet Kasper?
Diagnosed with Crohn's in 2008. Currently taking Entocort and Pentasa.


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 2/17/2009 4:47 PM (GMT -7)   
My own experience was that after about 24 hours, I noticed a small reduction in my diarrhea (at that time I was going to the toilet about once per hour and could barely eat solid food). After about 2 weeks, my diarrhea stopped completely though my stools were still loose. After about a month, my stools were solid, the annoying bowel sounds were gone, and I was beginning to eat like a normal person. Now, after nearly 3 months, I don't even feel like I have Crohn's disease anymore - I'm even able to eat salad and drink coffee. If I dared to drink a cup of coffee 3 months ago, I probably would have wound up in the emergency room.

So yes, give it a month or so. And please let us know how it's working (or not working) for you. I really want to know if others are able to benefit from this treatment, and that it's not just me who reacts to lingzhi this way. I have a step-brother in Florida who's a doctor - I'd like to be able to pass this info to him, though I'm not sure he'd use lingzhi on his Crohn's patients.

best wishes for good health,
Robert
Crohn's since 1988
3 resections

Post Edited (ozonehole) : 2/17/2009 4:54:56 PM (GMT-7)


jtaylor
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 2/17/2009 8:48 PM (GMT -7)   
I was able to find some Reishi mushroom pills at my local grocery store. It doesn't look like its an extract, but rather just powdered Reishi mushrooms in capsule form. I'm going to try the recommended dose of 1800mg twice a day and see if I have any results.
Diagnosed with Crohn's in 2008. Currently taking Entocort and Pentasa.


73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1499
   Posted 2/17/2009 8:55 PM (GMT -7)   
The only reishi that I'm able to get is the one recommended by Natures Way. It seems that there are precautions noted when taking Reishi with Immunosuppressants. Does Reishi actually bolster the immune system, and if so wouldn't that in fact be counter-productive?
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Initially, 9 weeks of Prednisone, currently taking 2000mgs of Pentasa.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/17/2009 9:34 PM (GMT -7)   
I've found a few links with safety concerns. But who knows it could be fine.

Tom if you're considering this I'd suggest you go with one or the other, and certainly don't start both around the same time. If something happens you wont know the culprit...

Plus you aren't dealing with an adult immune system so....
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 8mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.

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