Breastfeeding on Budenofalk (Entokort)

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joohana
Regular Member


Date Joined Feb 2009
Total Posts : 66
   Posted 2/14/2009 10:00 AM (GMT -7)   
Hi, have had Crohn´s for 4 years, currently am 38 weeks pregnant and want to try breastfeeding. Am taking Pentasa and Budenofalk (Entokort) and my doc. wants me to go off Budenofalk before starting breastfeeding. I am worried about a flareup and would like to carry on taking B. Does anyone have an experience with this ? What would be the risks when breastfeeding with B.? Does the baby have to be checked for smtng? Thanks for all advice !

Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 2/14/2009 5:31 PM (GMT -7)   

Budenfalk [Entocort for those reading in the US] passes into breast milk and to the baby. There is a good recommendation from the manufacturer in the UK about taking Budenfalk and breastfeeding. http://www.netdoctor.co.uk/medicines/100003140.html I think it important to also talk with the pediatrician that will be caring for the baby. The baby will have to be checked for effects of the  budesonide.

I cannot recall for sure, but I think we might have had one member breastfeed while taking it. Also, congratulations on your impending motherhood!


Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


joohana
Regular Member


Date Joined Feb 2009
Total Posts : 66
   Posted 2/15/2009 1:24 AM (GMT -7)   
Thank you for the answer ! Will do more research on this...
J.
Diagnosed with Crohn´s 4 yrs ago, 3 surgeries, currently 37 weeks pregnant with second child. Pentasa 2x2, Budenoflak 1x2, 30 yrs old


carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 2/15/2009 4:18 PM (GMT -7)   
When I was breastfeeding and had to go on entocort, I was told I had to stop the breastfeeding, that was 8 years ago..
Maybe things have changed..
 
Thanks
Carmen

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 2/15/2009 5:13 PM (GMT -7)   
Check the med on this site:
http://neonatal.ama.ttuhsc.edu/cgi-bin/discus/discus.cgi?pg=topics&access=guest

Dr. Hale is the leader in research of medicine and mother's milk. I've been breastfeeding for 5.5 months on Pentasa alone. That's kept me out of a flare (though I had a blip when I stopped the Pentasa). Good luck. Hope you can find something that works. Congrats on your pregnancy and enjoy you little one, it's the best thing in the world.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


inflamed
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Date Joined Nov 2005
Total Posts : 1340
   Posted 2/15/2009 5:16 PM (GMT -7)   
Actually, here's a link for entocort: http://66.230.33.248/discus/messages/58/2703.html

Sounds pretty good. If you call a lactation consultant they will have his book and can give you the real info. Take that to your doc to help make the decision.

Here's another link too:

http://66.230.33.248/discus/messages/58/22677.html
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


joohana
Regular Member


Date Joined Feb 2009
Total Posts : 66
   Posted 2/16/2009 5:40 AM (GMT -7)   
Thank you all for the support, found doc. Hale´s forum and his opinion on Entocort and breastfeeding, unfortunately I live in the Czech Republic and have no idea whether anyone has heard of him here confused .
But will ask in the materniny hospital where I should be giving birth, hopefuly I will get to a doc who knows or at least is willing to research a bit.

I was recommended to stop breastfeeding when I had been put on Pentasa last time round, but at that time I had virtually no milk left anyway due to bad state of the illness so I didn´t mind. Maybe the same will happen again, who knows.

Thank you !
Diagnosed with Crohn´s 4 yrs ago, 3 surgeries, currently 37 weeks pregnant with second child. Pentasa 2x2, Budenoflak 1x2, 30 yrs old


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 2/16/2009 7:39 AM (GMT -7)   
For Pentasa 8.7% goes into breast milk. If you take the full 4g adult dose it may be a concern. I've been taking just 2g a day and take one dose right after her last nursing session, so I have 11 hours to get it out of my system. That won't work the first few months though.

Enjoy your little one. Hope you stay healthy.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


SallyC
Regular Member


Date Joined Nov 2004
Total Posts : 158
   Posted 2/17/2009 6:55 PM (GMT -7)   
I nursed twins while taking Entocort (8 week duration). They were 11 - 13 months while I was on it. All involved in my care and theirs didn't have an issue with it. I take all my medication in one shot before bed when they would have the longest stretch of not nursing. However, I nursed them during the first 5 months while taking predinsone and 100mg of 6mp. I don't do my research too often on the internet but trust my doctor, peditrician, lactation specialist, and pharmacist to tell me what to do.

I just finished nursing about 2 months ago for the last time. I always loved it for the bonding and quiet time it gave us! And by the way, the twins are smart, happy and healthy! But I guess I don't know what I am supposed to look for because no one told me not to take the entocort and nurse because it would cause xy or z. So I can't help you with that. Best of luck to you and I hope your crohns settles down soon!

Sally

Post Edited (SallyC) : 2/17/2009 7:00:31 PM (GMT-7)


joohana
Regular Member


Date Joined Feb 2009
Total Posts : 66
   Posted 2/18/2009 1:22 AM (GMT -7)   
SallyC, thank you for your encouragement ! I have been on Entocort for ages now, at leat two years, am corticoid dependent and so my doc replaced the Prednisone with Entocort as it has less side effect...
Diagnosed with Crohn´s 4 yrs ago, 3 surgeries, currently 37 weeks pregnant with second child. Pentasa 2x2, Budenoflak 1x2, 30 yrs old

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