crohn's disease

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monia
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 2/15/2009 9:26 AM (GMT -7)   
Has anyone tried natural products  to help control their crohn's  disease.I was on Humira for almost a year and I had to stop taking it ...too many side effects .Then he doctor tried Imuran and the same thing happen. I can't take the doctors medications ...I have too much side effects.  I am despertly trying to find another way to control my crohn.Has anyone tried Transfer factor tri factor.It is a natural product suppose to  balance the immune system or have you tried some other natural medications that works. I take omega 3 and probiotics but it is not working so well ,I still have some  diarhea at times  and  have  constant pain , gases with almost everything I eat. I  just started to drink alkaline ionized water hoping it will  help some..
 
Mona,Canada
 

Lizard99
Regular Member


Date Joined Apr 2006
Total Posts : 192
   Posted 2/15/2009 10:08 AM (GMT -7)   
I find that working on my diet has the biggest improvements in crohns for me. I try to eat all natural. Tons of fruit and veggies. THe more I cut out processed foods, meat, fat (except avocado's in moderation), I feel much better. Even table salt/pepper really bothers me. So the more I can eat close to the earth, the better I feel. Soft food is the best, though I just love salads and can't get enough. Just my 2 cents. Good luck to you. Remember we are all different and just have to find what works for you. It takes a while but it's worth it. It's taken me about 5 years to realize just a few things that really trigger my chrons.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/15/2009 11:48 AM (GMT -7)   
I use natural anti-inflammatory supplements, bee propolis, omegas 3-6-9, vitamin A, vitamin C-Calcium ascorbate, chamomile tea, I also use a good probiotic daily and a fibre supplement daily as well and I've altered my diet, no more junk-food (fast-food, processed foods/beverages, animal fats, caffeine, refined sugar, artificial sweetners, instead I use Stevia or honey), has most definitely helped my symptoms, not 100% full remission because I have some complications with my IBD but it's better than when I was going 30+ ties a day with tons of blood, mucus and lower back pain putting me in tears on a daily basis.

Just know what works for some doesn't work for all and that often it is a combination of a few things that work better than just one supplement.


I'm either non-responsive or allergic to traditional oral RX so I had no choice but to try the natural route and I'm glad I did, some relief is better than none, no more bleeding, very little mucus, no more pain, formed BM's about 5x/day, definitely better than before.



:)
My bum is broken....there's a big crack down the middle of it! LOL :)


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 2/15/2009 11:54 AM (GMT -7)   
Hello Monia,

What other medications have you taken for Crohn's?
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 2/17/2009 2:06 AM (GMT -7)   
In addition to new meds, a steady diet of Spaghetti with low fat mozarella cheese melted on top of it has put me into remission. I'd like to say it was all the meds, but every time I run out of cheese or spaghetti, I flare up. The flares are much lighter than they used to be, though, so I think the combination is the trick.

edit: thats not ALL i eat, but if i dont have at least a serving a day my guts start complaining.
20, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)


Armbuster
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 2/25/2009 8:46 AM (GMT -7)   
Hello All,  has anyone heard of Ray Lala ? He has a 48 day viral detox system for Crohns of course for the low sum of $300.00. Please let me know feed back.
willing to look at anything.
Armbuster

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/6/2009 11:52 AM (GMT -7)   
Detoxification may aggrivate things more and not likely help any, it's along the same lines as prepping for a colonoscopy in my opinion, but of course to each their own.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


CDfreesince93
Regular Member


Date Joined Mar 2009
Total Posts : 20
   Posted 3/6/2009 4:00 PM (GMT -7)   
I agree wholeheartedly with lizard99 - anything processed makes me have a lot of gas, cramping, and D. I eat as much organic as I can afford - for my entire family - milk, eggs, fruits, veggies, etc. I try to stay away from packaged and prepared foods as much as possible. Also, spicy stuff makes me go too. I am lactose intolerant, so I avoid most products with milk although I can eat cheese and yogurt and small quantities. Recently, I have added fiber and so far so good. I stay away from anything rich or spicy. High fat stuff like bacon, pork roll, sausage, fast food, is like poison for me. Ditto, for caffeine, which affects my heart rate and only compounds my problems.

Watching my diet and getting to know my triggers has definitely been successful for me.

I also agree with pb4 that a cleanse sounds scary - too much like a bowel prep - which makes me just not right for days

Keep monitoring your diet. I believe doing so is what has kept me in remission for a long time.
41, diagnosed 1992 (25), resection 1993, remission for 16 years, no current meds


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 3/6/2009 6:08 PM (GMT -7)   
Mona, I can tell you that one thing that will not improve your gut health is having lots of alkaline substances going into your gastrointestinal tract ! nono Your stomach is acid not just to help in breaking down foods into chyme - which is vital by the way, so you will really disrupt nutrition absorption - but also to filter out bacteria. In essence, an alkaline stomach or gut is just an easy beachhead for any bacteria that want to get deep into the body. The gases you talk of are as a result of bacteria that are producing either methane or sulfides; normally not a problem, but if your intestinal flora is less diverse than usual (and alkaline substances will make that problem worse, IMHO) then you will end up with larger colonies of fewer types of more aggressive bacteria. I would guess that the inflammatory process makes things worse, it certainly does with me; any day I have gas, I write off my day. Time to hit the peppermint tea. My (amateur, non-medical) suggestion to you would be to take a much higher dosage of probiotics - a wider variety of strains if possible - and expect diarrhoea to begin with as the nasties get killed off and expelled, with a gradual improvement over the long term as the gaseous bacteria stop producing so many nasty free radicals etc.
Armbuster, I know little of detoxification, so cannot comment directly on the product you mention. But I do know that viruses are something that have never to my knowledge been suggested as being implicated in causing Crohn's Disease, except perhaps indirectly as a trigger for expression of a contributory gene. I would be more inclined to be looking at anti-MAP triple antibiotic therapy, what I believe is known as RMAT therapy. The microbiology picture there ( nono in my totally unqualified opinion !) is beginning to seem quite compelling; ie that many current medications like Humira and Remicade and even some antibiotics such as ciproflaxin, cause an alteration in immune system function that leads to further activity by strains of bacteria (Mycobacteria avium Paratuberculosis spp) that actively infect and then lurk inside macrophages and cause over expression of inflammatory genes in the gut and elsewhere, leading to further damage and infective activity. Even the fact that dairymen and other workers with cattle have a lower incidence of CD than usual (the smallpox/cowpox idea) and that MAP is known to survive in pasteurised milk, as well as being widespread in the food chain and ecology, tends to support this theory.
idea But I read all that stuff late at night, so don't take my word for it ! smilewinkgrin
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