New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

jtaylor
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 2/16/2009 12:43 PM (GMT -7)   
Hi everyone, I've been occasionally browsing this forum for a few days now and I just decided to make an account. Just some quick background on myself: I'm a 25 year old male, and I was diagnosed with Crohn's about a year ago. It started with consistent drops of blood in my stool which, of course, was diagnosed at hemorrhoids and I went through all of the possible treatments for that. After none of the treatments worked they sent me in for a colonoscopy and low and behold, I have Crohn's disease. At this point I've gone through many medications and either they haven't worked or I've had a bad reaction to them. I'm currently on Entocort, which is my doctor's last ditch effort to medicate me before moving on to Remicade (and if that doesn't work he is apparently sending me to the Mayo Clinic).

So anyway, my question to the community is: Does anyone experience night sweats? For me they started in early January, and they came with about a month long bout with nightly low-grade fevers. I went to my general physician for the fevers and I was treated with an antibiotic and the fevers disappeared, but the night sweats remain. Every night I wake up soaked in sweat and it doesn't seem to make a difference what I wear to bed or how few blankets I use. I was also recently diagnosed as anemic and low on iron, and for that I'm not taking an iron supplement but still no change in the sweats.

Thanks for reading and any responses are appreciated.
Diagnosed with Crohn's in 2008. Currently taking Entocort and Pentasa.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/16/2009 1:11 PM (GMT -7)   
I had night sweats last year before my flare. It's probably related, just part of the DD.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 8mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.


Ladybugs
Regular Member


Date Joined Jan 2006
Total Posts : 158
   Posted 2/16/2009 1:34 PM (GMT -7)   

Welcome to the forum.

I have awful night sweats.  I have for years.  I was diagnosed 3 years ago, when I was 29 years old.  Hardly a night goes by that I don't wake up completely drenched.  I never had a problem with this before Crohn's.  Usually the sweats come with the chills for me.  Strange, huh?  I've never achieved remission but I would imagine this would be something that would go away once you're in remission.

 

 


Veronica Ballerina
Regular Member


Date Joined Nov 2007
Total Posts : 69
   Posted 2/16/2009 1:57 PM (GMT -7)   
Hi
I used to have night sweats too, all night long and with the chills too, it could be because of the disease and not only this disease but anyone that causes any kind of inflammation, once the meds got effect you will not have them anymore, if you are on pred, it could be because of it too.
Well Remicade is your last resort, there is also Humira, and Cimzia and other drugs, so please do not pack your bags to Mayo Clinic, have you not tried Azathioprine yet?
Veronica Nunes - 27 years - Brazil


HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 2/16/2009 4:14 PM (GMT -7)   
I have night sweats several days a mo.....like 5-10. I thought it was my hormones, however my GYN ran hormone tests to see if I was starting menopause early due to the Crohns and my levels are well within the normal range. I was very happy to hear that considering I am only 36 and have come to accept them as part of either my meds or just the disorder.

35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily


daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 2/16/2009 4:52 PM (GMT -7)   
yeah i have night and day sweats ... and some times it comes with chills ....
> 27 year old female < 
 > Diagonsed with Crohns disease in 2000 <
 > In 2009 I was told my Crohns is Crohn's Colitis ~ they said it was in my rectum, colon and all through my small intestine <
 
 > Medication - pentasa(4000mg), imuran(100mg), prednisone(40mg 30mg), vitamin C, multivitamin, b-12, iron, and fish oil <
 
> I thank the Lord every day for my amazing husband and wonderful family <


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 2/16/2009 5:27 PM (GMT -7)   
I tend to get chills during the day, and sweats during the night, so you're definitely not alone!

Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 2/16/2009 5:55 PM (GMT -7)   
Hi,

Welcome! I have had crohn's for 29 years. I sometimes have night sweats, but my GI taught me long ago to rule out the possibility of an abscess when this occurs. I hope you feel better soon, and find a medication that works for you.

Julia

jtaylor
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 2/16/2009 6:42 PM (GMT -7)   
Thanks for all of the responses. I do get the chills during the day and then sometimes at night as I'm going to bed and then I'll wake up covered in sweat. Its comforting to know that I'm not alone.

Veronica, I have tried Azathioprine and it strongly disagreed with my body. I haven't tried Humira or Cimzia, but I'll ask my doctor about those before he puts me on Remicade. I have a good feeling about the Entocort though, so hopefully I won't have to worry about it.
Diagnosed with Crohn's in 2008. Currently taking Entocort and Pentasa.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/16/2009 7:09 PM (GMT -7)   
hi there. i do have night sweats at times...i think they may be due to the prednisone when the doses have been higher...50-60 mgs...

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 2/16/2009 8:09 PM (GMT -7)   
Jtaylor - I'm just curious, are your chills during the day accompanied by pain? I notice that usually my chills are when I have a particularly strong wave of pain.

RxCrohnie
Regular Member


Date Joined Sep 2006
Total Posts : 146
   Posted 2/16/2009 8:28 PM (GMT -7)   
I am going through a bad flare now and I too have night sweats.  I wake up drenched in sweat and also experience chills. I too get cold during the day and I get hot before bedtime.  This happenend before I started the Pred again but it has been worse on the Pred. Unfortunately, it is just another bad occurance of this disease and mine does indicate my crohns severity at the time.

35 yo--Crohns since 2000, Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2008, 2 Ulcers Rectum, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007 and IC in 2008.  Now receiving Cimzia, Topamax 300mg daily, Cymbalta 60mg daily, Prevacid 30mg, Maxalt, Vicodin as needed, Fish Oil, and Multivits   
 
RxCrohnie 


sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/16/2009 8:31 PM (GMT -7)   
I get night sweats pretty often, I have to sleep on a towel to absorb the sweat, then when it gets too wet I just switch towels (saves changing sheets or sleeping in a puddle). It never occurred to me that this was related to Crohn's. Wow, there are so many aspects to this disease other than just the obvious.

Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 2/16/2009 9:43 PM (GMT -7)   
pred usually makes me sweat...or running fevers. when im off pred i tend to get fevers after 4 pm'ish...peak around 8-10...and then return back to normal around midnight.. quite strange indeed!

Vin
History: UC/Chrons since age 22, now 27.  Several huge flares since then.  Entire colon diseased at some point from cecum to rectum.  Also had previous inflammation in terminal ileum.
Currently: flare -9/19/08 - now|Panic Disorder - 6/25/08 - now|Lyme Disease - 12/09/08 - now|Dysplastic Nevus Syndrome - 6 recent mod dysplasia moles excised, and many more to shave biopsy.
Drugs: prednisone 30 mg|6mp 75 mg|lialda 4.8 mg|Paxil 50 mg|Klonopin .25 mg|Trazodone 50 mg|PRN Perc/Tramadol
 
 
 
 
 


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 2/16/2009 9:49 PM (GMT -7)   
I too didn't realize this was part of the package! I get the sweats at night and the chills in the waking hours sometimes. Love the towel idea! I learn so much from reading here.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/17/2009 7:45 AM (GMT -7)   
hahahahahaha...OF COURSE right after this thread...last night I woke up soaked!! fun stuff! I was so tired a grabbed the heating pad next to the bed, turned it on and laid on it...hahahahaha

jtaylor
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 2/17/2009 8:00 AM (GMT -7)   
Valerie: My chills usually come after a particularly rough visit to the bathroom.

Vin: Interesting that you say that. When I was getting fevers for a month straight they would always start in the early evening and then go away sometime in the night. I haven't been on pred for a long time though and when I was I only took it for a few days so I don't think it was related.

I have no idea why I've never tried sleeping on a towel. I'll try that out tonight.
Diagnosed with Crohn's in 2008. Currently taking Entocort and Pentasa.


Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 2/17/2009 1:22 PM (GMT -7)   
I had high fevers, chills, and night sweats. It happened several times for a short duration, until I was diagnosed and started some kind of treatment (first just diet and then Entocort). Every time it coincided with pain and my bloodwork showing inflammation.

I think it's interesting that your symptoms changed after you took antibiotics...Maybe you have a lingering infection, an abscess or fistula?
July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying... Enteral Nutrition, Flax Oil, VSL#3, Folic Acid, Vitamin E


BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 2/17/2009 8:25 PM (GMT -7)   
I get night sweats as well, I think more from the Pred than anything else. I sleep in a top that will absorb the sweat and if I wake up I just make sure I have another tshirt to hand to change into.
37yr old woman UK. Diagnosed with crohns in 95. Currently on 2400mg asacol, 100mg Azathioprine. Been on Remicade once which worked well for me, but they took me off it. Flared up again. Took Humira but it didn't seem to agree with me, but thinking it was now an infection rather than side effects from Humira. Now back on Remicade, had 3 infusions so far and no reactions as yet. Consultant wants me to have a colostomy bag fitted, I've refused and want to try as many options as possible. On Elemental 028 extra diet for 6 weeks.


jtaylor
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 2/17/2009 8:42 PM (GMT -7)   
I did have a CT scan about 2 weeks ago and there were no signs of an abscess. Would the CT have shown a fistula if there is one present?
Diagnosed with Crohn's in 2008. Currently taking Entocort and Pentasa.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/17/2009 10:28 PM (GMT -7)   
Wow jtaylor, your story sounds very similar to mine but I didn't have droplets or any kind of blood, I had/have perianal crohn's skin tags that were misDX as being hemmies and had them banded while flaring which was a big no no, then after that surgery my CD really hit me hard internally, although just before that surgery I was starting to notice multiple daily BM's (and I was always a one a dayer) but they were still formed/normal looking, the D came after the surgery, that's when the CD hit me internally and then lots of mucus and blood followed about a yr after that.

I too am either allergic or non responsive to traditional oral RX used to treat CD. I don't have issues with the night sweats though at least not in the way you describe, I have woken up sweaty (not very sexy for a lady) but simply throwing the duvet off and using just the top sheet aids with those episodes.

One suggestion I do have, taking a probiotic daily can be very beneficial, especially when taking antibiotics and even when not it's a good idea to take them...I ended up resorting to the "natural" route, I use natural anti-inflammatories along with probiotics and fibre supplements and it's certainly helped compared to using nothing at all. Good luck, I hope you find relief soon.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/18/2009 6:29 AM (GMT -7)   
I had night sweats but only when I was on high dose of prednisone.It did go away when I weaned done some.

frar
Regular Member


Date Joined Jul 2003
Total Posts : 365
   Posted 2/18/2009 10:41 AM (GMT -7)   
I have had night sweats for years....with a flare or without....doesn't matter the night sweats continue. This disease acts differently with everyone and can involve every organ of the body.
F.

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 5:33 PM (GMT -7)
There are a total of 2,736,123 posts in 301,354 threads.
View Active Threads


Who's Online
This forum has 151451 registered members. Please welcome our newest member, YoEve.
304 Guest(s), 8 Registered Member(s) are currently online.  Details
bluelyme, YoEve, porkysgal, astroman, rocckyd, maddysmom2015, myrawens, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer