Should I consider surgery or a new med

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Benisone
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 2/17/2009 5:21 AM (GMT -7)   
 
       I am currently on prednizone(tapering down) and lialda, the lialda is not working well and the prednizone I am trying to taper off from. Now I have distention and pain and the inflammation is coming, in which the prednizone had under control. I thought lialda(mesamalamine) was going to supercede the prednizone, but it has'nt. Now I am back on high dosages of prednizone. All this incorporation of these meds started a month ago. Seeing my doc today and may suggest to him surgery. Why? I have fistulas in my small bowel and large bowel, if they were to be removed will my problems go away? Or try something else like, humira or remicade or
avoid surgery at all costs...
 

belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 2/17/2009 6:49 AM (GMT -7)   
These are questions best directed at your gastroenterologist (not a surgeon). Your decision will have to be based on how long you have had the disease, the severity and your quality of life. Having said that, The immuno-modulating therapies like Humira remicade etc have proven particularly effective at closing fistulas and healing ulcerations. I would think that your GI will strongly recommend a test of stronger medications before opting for the surgical route. It may seem like the promise of a fresh start, but surgery carries its own set of problems. If I had active fistulzing crohn's, I would not want anyone opening up my gut, unless it was absolutely necessary. I suspect the rate of complications is much higher, including the risk of post-surgical abscess and new fistulization. If you have multiple fistulas communicating between bowel loops, you will likely have to lose a lot of bowel to surgery.

Be prepared to have a frank discussion with your GI. Share your concerns. Get all the pros and cons of all your options out on the table. Only then will you be able to make the decision that is right for you.
Belleenstein:

30+ years living with Crohn's.

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