Looking forward to Surgery!

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Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 2/18/2009 12:17 PM (GMT -7)   
I have been reading the board post about surgery and watchign the youtube videos and reading a lot of sites about resection. It seems that people do extremley well after it. I have mild Crohns and havent had to take extensive time off of work in 5 years. My disease is in the descending colon about 4 inches or so maybe or less...Who makes the decesion to operate is it the doctor? Or can you tell them that you would like a resection. I have gone 15 years with this disease and would like to look at the resection options as my flares have become frequent. Most recently I am experiencing diahrea on a daily basis. Some pain when I pass solid stool. but for the most part mucos and diahrea is what I have been dealing with since September off and on...and every day for a month now.
I refuse to do prednisone again and 6 mp didnt work as well as I was hoping so dont feel the benefit outweighs the risk for me.
 

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 2/18/2009 12:32 PM (GMT -7)   
My doctor told me to start thinking about surgery while I was in the hospital dealing with a total bowel obstruction. I waited until I couldn't take the affects of the steroids any longer and scheduled the surgery.The surgery stopped the obstructioned but 2 years later I am dealing with the diarrhea again and trying to avoid the steroids. I would suggest you talk to your GI and discuss your thoughts. He/She is the one who will refer you to a surgeon.I wish you the best!

Elizabeth
dx'd with Crohns 1984, I was in remission for 12 years
Bowel Resection surgery 2006, Now weaning off  Predisone after another flare. Started taking my Asacol again.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 2/18/2009 3:34 PM (GMT -7)   
I had an obstruction a couple years ago, and they wanted to do surgery. I'm glad I didn't go along with it. Today, I'm on Humira and eating SCD and am doing quite well. Fatigue is the only big thing I really deal with, and hopefully a few months more of the diet will take care of that.

Personally, I'm very leery of surgery. One person I know has had multiple surgeries which has led to major scar tissue and misery for her. Another person did pretty well after 2 surgeries, but still suffered from diarrhea. Her crohn's is back now, but she did have several good years where D was the only real symptom. My dad's surgery saved his life (he had peritonitis), but the crohn's returned almost immediately. Only anecdotal evidence of course, but still enough for me to save surgery as a last resort.

Have you tried remicade, humira, or cimzia?

Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 2/18/2009 3:56 PM (GMT -7)   
Hey Spookey! SO the SCD is going good for you huh? I just cant seem to stick to it,,,I am not to sure about the biologicals ie Remicade, Humira etc...surgery just seems like the next step for me.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/18/2009 6:19 PM (GMT -7)   
Hi I went for resection on a statement from my Dr. that there comes a time... and I think I was about ready to operate on myself.. too much pain, obstructions, abcess, fistula's.D ,incontinance ...the bad part had to go.lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

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