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LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/18/2009 2:11 PM (GMT -7)   
For those of you who have time, I have been thinking a lot about alternative medicine given so many remedies being discussed on these forums. I'm not wholly against natural remedies, indeed, am hoping that they can be better tested in the future so that we might have some good alternative treatments. But, and I think rather fortuitously, I came across this essay in Richard Dawkins' 'A Devil's Chaplain,' and I wanted to be able to discuss it with other people who have tried different medicines, herbs, therapies and so on.
I've tried different supplements myself and am looking into a lot of different theories in favor of alternative healing, but I feel it's good to keep a healthy amount of skepticism for methods that have not been tested. Anecdotes are encouraging but insubstantial the majority of the time unfortunately..

http://books.google.com/books?id=DwD4bjQozgYC&printsec=frontcover&dq=a+devil%27s+chaplain&ei=QnicSa3lFJi8M56_3ZgN#PPA179,M1
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/18/2009 3:16 PM (GMT -7)   
Believe me, I had to put my huge skeptisism aside in order to give the natural route a go and to my surprise I have found some relief with the ones that I use...it's not easy when you're either allergic or non-responsive to traditional oral RX used to treat IBD...but I figured maybe it's my body telling me something...especially when I found relief with the naturals...and best of all, no horrid side effects likel what the oral RX give you. Naturals or RX you have to be cautious.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/18/2009 4:00 PM (GMT -7)   
One of the problems that I have with Crohn's is severe, frequent, and numerous canker sores in my mouth and throat. The only thing that has ever helped with this is prednisone and homeopathy. I have awful side effects with prednisone but have never had side effects with homeopathy.

Hope that helps!

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/18/2009 5:33 PM (GMT -7)   
And in reference to the short essay?..
And what about the placebo effect in addition to preexisting expectations of side effects from modern medicine? Or the adverse reactions between herbs and medicine? Or that with modern medicine, one thing can be prescribed for many in spite how individual a disease may be while homeopathic treatments are always individual? Or that their integrity relies on anecdote as opposed to scientific testing?
I'm not asking this in hostility by the way. Just in the mood for lively discussion :) I'm not against alternative treatment by any means. Especially if it helps someone...but I am against decrying science and modern medicine.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/18/2009 5:49 PM (GMT -7)   
LOL, I'm against the FDA and all the harmfull meds they've released without long enough time to see if Viagra will make you go blind and such...there is no perfect in either system, but at least with herbals, most take them on their own gut feelings, when it comes to meds from your doc, you're trusting your doc to give you medicine that won't make you go blind, or kill you.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/18/2009 6:39 PM (GMT -7)   
lol?...
I never said either system was perfect. I'm simply questioning them. And the possibility of blindness or neurological disorders can be just as prevalent in herbal remedies that may or may not have been tested for lead and mercury. Plus, I am more inclined to trust a medical professional whose specialty is my ailment as opposed to a self-professed healer of any ailment and completely against any other route except alternative medicine.
I suppose I just don't like taking anything solely on my own gut feeling. I prefer research and thousands of other experiences with the same medicine to go on. It's easier for me to find people who have had good or bad experiences with humira, for example, as opposed to mucosaheal which I can find not more than one or two testimonies on and have no idea how it will affect me unless I pay the 40 dollars to see.
I think John Diamond's approach to herbal recommendations by researching the claims thoroughly first is the right way to go. After all, we do this with the modern medications we take. Why is it so much harder to take them based on testimony than it is to take an herbal supplement? And why is it so much harder to trust an MD and a homeopathic doctor. We're paying both.
At least with modern medicines we're made aware of the possible risks. Herbal medicines make a lot of promises...and I have seen very few that have admitted to the possibility of adverse effects or toxic contents that have not been properly filtered out.

And by the way, I think the FDA is sort of a joke sometimes. I'm talking more along the lines of research done by actual scientists. The FDA often rejects these. They rejected the results in one lab that detected salmonella in the Georgia plant and the proceeded to blame the Georgia plant for the outbreak in spite of the fact that the FDA themselves denied the scientific test results.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."

Post Edited (LMills) : 2/18/2009 6:44:05 PM (GMT-7)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/18/2009 6:59 PM (GMT -7)   
My own personal exeperiance with naturals, I have never seen a naturopath in my life (my GI said to go right ahead because he's all for whatever works but I wasn't going to shell out money to some naturopath either), I guess I've just been lucky to have stumbled along the naturals that I take, on the advice of others at support forums like HW.

Yes, neither way is fool-proof, and regardless, there are likely always risks...I've had crohn's colitis for 18 yrs now, at this point my only option will likely be a cure and I don't care who finds the cure so long as it's found and useable as well as affordable for all that suffer with IBD.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 2/18/2009 8:33 PM (GMT -7)   
Again, I'm not dismissing the use of natural medicine or anecdotal 'evidence' having resorted to some myself. I was mainly concerned with the article at hand and responses to that specifically. I thought it to be pretty intelligent and, while not agreeing with all of it, something to consider reading before falling blindly into the promises of any medicine.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/18/2009 11:45 PM (GMT -7)   
I know you're not dismissing the use of naturals, I'm only sharing my experiances, I bet there are tons who have had negative experiances with naturals too...like my GI says, "what ever works, if banging your head against a wall 3 times does the trick, go for it"...bottom line, it's about finding a way(s) to feel better.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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