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mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/18/2009 4:41 PM (GMT -7)   
hi there...i've been flaring for a while now and have lost a bunch of weight...one of my main issues now is that i am so tired and weak.
luckily my job allows me to work from home SOMETIMES...but i've got to kick it back into gear.
what are some things that you eat/drink to help build your energy and strength back up?
 
thanks!
 
Mtgman

CatMan
Regular Member


Date Joined Jun 2006
Total Posts : 289
   Posted 2/18/2009 5:03 PM (GMT -7)   
I'm not aware of anything to eat/drink during a flare that will help build up your energy and strength. In my experience, it just takes time and patience. It will come back when your body is ready and able. I hope you feel better soon though!
Current Medications:

Pentssa, 1000 mg od
Vitamin D
Red Yeast Rice
Calcium/Magnesium Supplement
Nature's Way Primadophilus Bifidus Probiotic
Remicade infusion; every 8 weeks
Ambien, PRN
Seasilver Whole Food Liquid Nutrition


kemperca
Regular Member


Date Joined Dec 2008
Total Posts : 23
   Posted 2/18/2009 5:15 PM (GMT -7)   
Hi, I am suffering from the very same thing and the doctor just told me a few weeks ago that I should maybe take in some protein drinks. I currently use Whey Protein Vanilla (EQUATE) is the brand I use. I am Canadian so I am not sure if that helps but I am finding that my naps in the afternoon have gone from 2 - 3 hours to maybe 30 mins to an hour.
 
I am a 45 year old Canadian, living in Northern Ontario. Just recently diagnosed with Crohn's and Colitis Nov '07 ... Had a Gastric Bypass Surgery in Feb '08
 


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 2/18/2009 5:16 PM (GMT -7)   
I haven't figured anything out either sadly, but I'm going through the exact same thing as you are - Yesterday at work, I couldn't even hold a pen. Hopefully it'll pass quickly for you - unfortunately, it doesn't seem to be for me. Are you anemic? I am, and I know that it contributes to the tiredness/weakness.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/18/2009 5:19 PM (GMT -7)   
Provigil?
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/18/2009 5:22 PM (GMT -7)   
thanks guys!
not anemic...was in the er last night and bloodwork was ok- one liver enzyme a tad elevated due to meds...
i will look up provigil.
any idea what the easiest high protein foods to digest are?
i know fish would be a good one, maybe chicken...how about shrimp?

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/18/2009 5:51 PM (GMT -7)   
I exersice for energy on a regular basis...eating lots of fresh fruit and veggies will also help with energy.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Lizard99
Regular Member


Date Joined Apr 2006
Total Posts : 192
   Posted 2/18/2009 6:01 PM (GMT -7)   
I agree, i eat lots and lots of fruit. only in the morning and never mixing it with anything else. for example, i may mash up a couple bananas and a couple cups of grapes. yummy my favoirte and gives me tons of energy. but everyone is different.

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 2/18/2009 6:13 PM (GMT -7)   
Throw some plain yoghart (no sugar or extra stuff) in that and you have lots of protein added. I sleep lots and find my energy is better when I have that regular. High protein boost drinks are good for nourishment and energy for me. Hope you feel better soon.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/18/2009 6:26 PM (GMT -7)   
thanks!!! are there any fruits that someone with Crohn's should not eat as is the case with vegetables?

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/18/2009 8:37 PM (GMT -7)   
No mtgman, it's trial and error for each, when it comes to food and this disease we are very individualistic, no 2 exactly alike.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 2/18/2009 10:45 PM (GMT -7)   
mtgman said...
thanks!!! are there any fruits that someone with Crohn's should not eat as is the case with vegetables?


I follow the Specific Carbohydrate diet, and they recommend peeling, deseeding, and cooking all fruits (and veggies) at the beginning of the diet. The ones they recommend to start with are apples, pears, well ripened bananas (don't need to cook those), apricots, peaches, and plums. But like pb4 said, what one person tolerates, another person might not.

If even cooked fruit bothers you, you could always try juicing. This sounds gross, but I tried adding a little spinach juice to orange juice. It turned the juice an interesting shade of green, but it tasted pretty good. The orange was very dominant.

EDIT: A raw mango once landed me in the hospital with an obstruction, so I'd probably not recommend you start with those. Of course, it was probably because I was a glutton and ate the whole thing in one sitting. It tasted so dang good! I've never made that mistake again though. I limit myself to just a small nibble now.

Post Edited (spookyhurst) : 2/18/2009 10:48:24 PM (GMT-7)


RxCrohnie
Regular Member


Date Joined Sep 2006
Total Posts : 146
   Posted 2/18/2009 11:01 PM (GMT -7)   
I am on Provigil 100mg now but the 200mg worked better
35 yo--Crohns since 2000, Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2008, 2 Ulcers Rectum, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007 and IC in 2008.  Now receiving Cimzia, Topamax 300mg daily, Cymbalta 60mg daily, Prevacid 30mg, Maxalt, Vicodin as needed, Fish Oil, and Multivits   
 
RxCrohnie 


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 2/19/2009 4:08 AM (GMT -7)   
dissolvable B12!!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3110
   Posted 2/19/2009 5:19 AM (GMT -7)   
I suggest the B-12...sub-lingual is great for Crohnies.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/19/2009 7:55 AM (GMT -7)   
thanks once again!
i think i'm going to look into b-12 and diet.
more pills and i'll be ready to stick my head through the wall!
i guess it's a matter of finding the right happy medium between healthy caloric intake and "gut happiness"
i actually really like the green "superfood" juices from Odwalda? and others so i'll see how i tolerate them also
and i'll stary on the ensure- 250 calories a pop isn't much, but the chocolate ones don't taste bad at all so they can't hurt...
by the way if anyone drinks ensure if you go to ensure.com there are $3.00 off coupons so a 6 pack becomes less than$3.00 at the store...I printed one and photocopied it...

belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 2/19/2009 8:16 AM (GMT -7)   
Do you find you are suffering swings in energy through the day? Even "healthy" people will suffer if they eat foods that have a high glycemic index -- that is foods -- mostly in the form of simple carbohydrates -- that the body can convert quickly. This leads to spikes in the level of glucose in the blood,, which prompts the pancreas to pump large amounts of insulin to bring the blood sugar levels back in balance. The insulin converts the sugar and then the blood sugar levels plummet causing fatique. The key is to try to avoid these massive swings in blood glucose levels by eating foods that carry a low glycemic load.

If you are consuming a lot of low residue carbohydrates --, corn flakes, white pastas, white rice, white bread, cakes, cookies, juices, pops, -- it will contribute to fatique. It also is a significant risk for the onset of Type 2 diabetes. When I was first diagnosed 30 years ago and was started on a low residue, low fibre diet I felt terrible. I had two young children and most days I just didn't feel like I had the energy to keep up with them. It seemed like everything that was "safe" was bad for me.

I gradually added whole grains and water soluable fibre back into my diet and relied heavily on proteins, which has a very low glycemic load. Much of your fatique is probably caused by your disease activity, but there might be some dietary changes that could help.

Above all though, be kind to yourself mtgman. Your body is sending you a signal and you will ignore/fight it at your peril.
Belleenstein:

30+ years living with Crohn's.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/19/2009 10:25 AM (GMT -7)   
belleenstein said...
Do you find you are suffering swings in energy through the day? Even "healthy" people will suffer if they eat foods that have a high glycemic index -- that is foods -- mostly in the form of simple carbohydrates -- that the body can convert quickly. This leads to spikes in the level of glucose in the blood,, which prompts the pancreas to pump large amounts of insulin to bring the blood sugar levels back in balance. The insulin converts the sugar and then the blood sugar levels plummet causing fatique. The key is to try to avoid these massive swings in blood glucose levels by eating foods that carry a low glycemic load.

If you are consuming a lot of low residue carbohydrates --, corn flakes, white pastas, white rice, white bread, cakes, cookies, juices, pops, -- it will contribute to fatique. It also is a significant risk for the onset of Type 2 diabetes. When I was first diagnosed 30 years ago and was started on a low residue, low fibre diet I felt terrible. I had two young children and most days I just didn't feel like I had the energy to keep up with them. It seemed like everything that was "safe" was bad for me.

I gradually added whole grains and water soluable fibre back into my diet and relied heavily on proteins, which has a very low glycemic load. Much of your fatique is probably caused by your disease activity, but there might be some dietary changes that could help.

Above all though, be kind to yourself mtgman. Your body is sending you a signal and you will ignore/fight it at your peril.

lately the energy loss is due to the flare and my not eating much is certainly a big contributing factor -- down about 25 lbs to 185.  I normally eat a pretty well balanced diet- a lot of protein...lately i've had to balance the solid foods with the pain involved later...not real big into sweets- I know once I get this flare under control i'll put the weight back on fast and the energy will increase...just have to figure out how to keep the energy up now while i'm not able to eat "normally"
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