Anyone here with crohn's at terminal ileum that caused ulcer?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

RxCrohnie
Regular Member


Date Joined Sep 2006
Total Posts : 146
   Posted 2/18/2009 10:56 PM (GMT -7)   
Hello,
I was hospitalized two weeks ago for the second time this year for crohns sx. They did a colonoscopy and found that the crohns has caused an ulcer now in my TI.  I have microscopic crohns in my large intestines and scar tissue.  For this, the MD increased my Pred from 30 to 40mg because my regular GI was out of town and he didn't want to start Humira until she came back.  I go back to see her this Monday.  Have any of you ever had crohns cause an ulcer in your TI? The Pred is just not working.  I have been on pred since Jan 14th. Pred gives me back my appetite but when I do eat it hurts my stomach, causes nausea, and severe diarrhea.  I have lost weight since my hospitalization.  I am afraid the ulcer will eat through and cause a fistula or worse.  The MD also said he had a hard time getting the scope through the area so I take it to mean, inflammation is high.  I have been on humira in past but was d/c'd due to shingles and have failed cimzia and remicade.  Never have had surgery.  I am even out of work now due to the pain and weakness.  This is such a horrible disease.  I have had this flare since July and it keeps getting worse. I started at 176lbs. and now weigh 1411bs. but the doctors don't seem to be concerned about my weight loss because I am still not below weight. 
35 yo--Crohns since 2000, Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2008, 2 Ulcers Rectum, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007 and IC in 2008.  Now receiving Cimzia, Topamax 300mg daily, Cymbalta 60mg daily, Prevacid 30mg, Maxalt, Vicodin as needed, Fish Oil, and Multivits   
 
RxCrohnie 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/19/2009 4:24 AM (GMT -7)   
Hi I know at times it is very hard to get past some of the hard times that the disease seems to put us threw. I see you have had fistula problems and rectal... How are your other area's doing? Has your Dr. mentioned surgery to remove the TI ? To tell you the truth I don't know if there was ulcer or not before my operation ,they just said that the crohn's had made a mess in there.. .. I do know though I had fistula and alot of weight lost and just wasn't getting any better..lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


bluemeanies
Veteran Member


Date Joined Jun 2004
Total Posts : 1372
   Posted 2/19/2009 9:43 AM (GMT -7)   
I have crohn's in my small intestine. I was on prednisone for about a year and the last scope I had done they found 2 ulcers in that area. I am going to gastro today and I am going to try Cimzia if they approve me for their finincial aide program. I'm scared to move to that level of drug but nothing else has worked for me. I've had crohn's for about 10 years now. Hope you get feeling better soon.
 


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2689
   Posted 2/19/2009 1:12 PM (GMT -7)   
I had a bad ulcer in my TI too. It ate all the way to an artery and bled something terrible. It's how I was diagnosed in the hospital as well.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Lexapro.


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 2/19/2009 1:38 PM (GMT -7)   

Hi there,

I had two ulcers in my TI at the time of my colonoscopy, which was a little over a year ago.  Even with those, and having inflammation in my cecum and ascending colon, my first GI refused to diagnose me.  Anyhow, I have a great GI now who did diagnose me.

I wasn't on anything at the time they found the ulcers.  I do know that my Crohn's symptoms kept getting worse and worse, even with being on prednisone, imuran and pentasa.  I got started on Remicade back in November and that has honestly helped me feel a lot better.  I am sorry to hear it didn't work for you!

This is an awful disease and I hope you are able to find something that will help you soon!  Please take care and keep us informed! 

 

 


RxCrohnie
Regular Member


Date Joined Sep 2006
Total Posts : 146
   Posted 2/19/2009 8:37 PM (GMT -7)   
Thank you all for your responses. What were your symptoms with the ulcer? Today I feel hungry and eat but again when I eat the pain is back and major diarrhea. I am wondering if the hungry feeling is because my food is not absorbing there, It is almost like I am famished and I just want anything to eat. But before, I didn't have an appetite. I just don't understand--I feel hungry, so I eat then I hurt, take hydrocodone, have diarrhea, plus get nauseated. It keeps coming in cycles all week. Can it be just the pred reacting all the sudden like this?
35 yo--Crohns since 2000, Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2008, 2 Ulcers Rectum, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007 and IC in 2008.  Now receiving Cimzia, Topamax 300mg daily, Cymbalta 60mg daily, Prevacid 30mg, Maxalt, Vicodin as needed, Fish Oil, and Multivits   
 
RxCrohnie 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/20/2009 8:23 AM (GMT -7)   
In my experience it is just the nature of the disease.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 2/20/2009 8:34 AM (GMT -7)   
The TI is where a lot of fats and also B-12 are absorbed. Chronic inflammation there can result in malabsorption, which could explain a lot of your weight loss and the frequent D. I am wondering if entocort, which is a more localized topical steroid designed to address small bowel inflammation, would be more effective than pred. Especially since you have fistulizing disease, it's important to try to get those ulcers healed or you will be facing a higher likelihood of surgery.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2689
   Posted 2/20/2009 11:59 AM (GMT -7)   
My symptoms were that of crohn's. Diarrhea, pain/cramping up, and when it got really bad I started to bleed heavily. It's never effected my upper stomach (hunger or anything like that). But some people have Crohn's through out their digestive system.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Lexapro.

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 7:41 PM (GMT -7)
There are a total of 2,732,807 posts in 301,057 threads.
View Active Threads


Who's Online
This forum has 151210 registered members. Please welcome our newest member, Margaretcb.
351 Guest(s), 14 Registered Member(s) are currently online.  Details
notsosicklygirl, Psilociraptor, Hawaii-Guy, Admin, magoo2, LG13, White Bird, Buzzlymeyear, sam12, Ggrlsav, Old Editor, Sue*Nash, julymorning, Sissy63


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer