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stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 2/19/2009 8:15 AM (GMT -7)   
 I'm just checking back in on everyone its been awhile. It seems that everything is under control since I had the surgery done back in November, I've even gained close to 30 pounds. I've been working out and I feel great, and oh yeah I'm even in a relationship now, I guess you guys were right, lol. My bowel movements are back to normal and they are formed now, no more D :-) ,  at all. I just keep a consistent diet that conatins bread ad bananas and it seems to keep me on track, I can pretty much eat whatever now with no complications at all. Of course keeping up with my maintenance meds which b-12 injections monthly one 6mp a day and 4 pentasa capsules a day, my doc says he may take me off of one in April, I hope so. Every now in then I do get a little irritation at my incision scar but its only to the bottom and sometimes on the inside its like a soreness burning sensation but nothin major just soreness a little. I was wondering is this normal, and I can still fell like the stitches that they left in its hard, will this ever soften up to where it feels normal, hmmmm just wondering. ~THANKS~ yeah

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 2/19/2009 10:07 AM (GMT -7)   
Hi there. Can't answer your question about being normal. I hope the soreness goes away.
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/19/2009 2:57 PM (GMT -7)   
I'm glad your recovery is going so well!!
Co-Moderator Crohn's Forum.


ExJohnson
Regular Member


Date Joined Feb 2009
Total Posts : 128
   Posted 2/19/2009 4:36 PM (GMT -7)   
i had a lot of success with Purinethol in high school and college, I just don't like the idea of having to constantly wonder what is happening to my liver. Keep enjoying being healthy though , congrats.
I am a pre-30yr. old who has been diagnosed with Crohn's for 14 years.  Symptoms change from cramping and weight loss to severe anemia with fatigue and diarrhea. 
I'm DONE (D-O-N-E, DONE!!!) with immuno-suppressants.  Tremble, yee Pharmacuetical companies, for you will not withstand the aggressive onslaught of our healing!
new prescription from natural doc,
3.5 grams Chlorella daily.
4.5 mg Low Dose Naltrexone nightly. 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/19/2009 5:56 PM (GMT -7)   
Hi Stephx Glad to see you post and that your life is getting back on track. You have gained weight good and it must mean you are eating good. The stitches should be healed and disolved by now hopefully, I asked my Dr. about that and she said they put stitches in that go away.Could be your scar is causing not as much streching as skin would, at least tha'ts how my scar feels. As you are younger you might have healed better then me .I have been pretty good seeing my Dr. soon it's been awhile. Wow you are dating hope things are good... lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 2/19/2009 5:57 PM (GMT -7)   
Great to hear steph. What parts did they take out?
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 8mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 2/19/2009 7:21 PM (GMT -7)   
Hi Stephx,  cool
It's great to hear you are doing so well! I was hoping your social life was outta control, after you were missing from the forum. I hope your Christmas was Wonderful. Just a thought, with the rapid weight gain some of the burning and irritation may be from stretching and thinning of the skin (think stretch marks on body builders and expectant Moms). I remember this stinging and stabbing pain when I was expecting, and friends have told me sometimes they thought they had pulled or torn a muscle when bench pressing weights, only to discover it was stretch marks forming from the rapid bulking up they did for competitions. They thought the pain felt deeper than the skin deep. Good luck, I knew some lucky one would come along and sweep you up. Six foot Blond? wink


  Never go faster than your guardian angel can fly! Be Patient And Tough, Someday This Pain Will Be Useful To You I get by with a lotta help from my friends!    
 Crohn's DG 2003 , symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Followed SCD Strictly 2003-06, then modified by adding new things 10-12 days apart to avoid delayed reactions in the form of arthritis symptoms. Scope on 2-5-09 was great! Doc says no symptoms,No scope for 10 years!!!
                                                                                    Margie11

Post Edited (Margie11) : 2/20/2009 7:29:06 PM (GMT-7)


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 2/20/2009 5:13 AM (GMT -7)   
stephx -

That's wonderful! Congrats on feeling better and your relationship!

-Leslie

kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 2/20/2009 6:52 AM (GMT -7)   
Glad you're doing so good!! It took about 6 months before I stopped having the occassional twinge or soreness at my incision site, so maybe it will stop soon for you. I know what you mean about the hardness too, I think that is just from healing and it should go away eventually. Good luck with your new relationship, I hope it becomes everything you want it to be!
diagnosed w/Crohn's 11/06. 35f with 2 boys and a wonderful husband. 150 mg Imuran, bentyl, entocort, vicodin as needed, Humira, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.


Lizard99
Regular Member


Date Joined Apr 2006
Total Posts : 192
   Posted 2/20/2009 7:39 AM (GMT -7)   
What surgery did you have? I'm glad you are doing so well, and seem sooo happy! Congratulations my friend.

stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 2/24/2009 11:44 AM (GMT -7)   
For those of you who asked I had an open ileocolectomy done on November 5th. That was the portion of my intestines where the small meets the large and or colon, My doc took about 8 inches out due to a stricture which was partially blocking me off. The surgery I thought would be horrible but with the confidence I built gained from this forum I was able to go through with the process and come to find out it wasn't that bad. Trust me when I say that the first few days after surgery are a bit rough but ur body quickly adapts to the changes, but all in all its well worth it.

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/24/2009 12:35 PM (GMT -7)   
I too just had a ileocolectomy post op 6 days now. The first 3 days are the hardest but I just kept walking like everyone said. It still feels really tight in my tummy but the pain is pretty much gone now.
Contrats to you Stephx! I'm really happy for you and wish you the best on your continued recovery.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/24/2009 1:51 PM (GMT -7)   
Stephx that is such awesome news to hear you are doing so well. And you have a new girl too, you go dude!!!

Its normal for there to be a little tightness, things will soften up in time.

Hugs,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 2/26/2009 10:51 PM (GMT -7)   
Srephx, I always feel like you are one of my own kids, just when I think you'll never come home you pop up to say Hi. It was great to hear from you doing so well. Take care, and I'm glad you got your life back and don't spent much of your young life here. When you have time, tell us about the lucky girl!
  Never go faster than your guardian angel can fly! Be Patient And Tough, Someday This Pain Will Be Useful To You I get by with a lotta help from my friends!    
 Crohn's DG 2003 , symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Followed SCD Strictly 2003-06, then modified by adding new things 10-12 days apart to avoid delayed reactions in the form of arthritis symptoms. Scope on 2-5-09 was great! Doc says no symptoms,No scope for 10 years!!!
                                                                                    Margie11

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