UC and Crohn's

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coprhead
Regular Member


Date Joined Feb 2009
Total Posts : 42
   Posted 2/20/2009 10:36 PM (GMT -7)   
just a thought of mine how many of you with Crohn's were diganosed with UC to start or mabey UC changed and worsened into Chron's
Jody
Age 34-Male-South Carolina
Diagnosed 02/08 Severe UC
Colazal Predinsone Entocort Lialda-No Help
Mesalamine-Little help
Remicade-Second infussion-still no change


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 2/21/2009 3:24 AM (GMT -7)   
i was dx with UC first but i had scope in oct just a short one and the doc said it was UC than i had a big colon scope in des and then they could see i had CD so i think the oct dx was just wrong and i had always had CD they just did not see the whole colon in oct..

they also had me take a cam pill to see my small intestine and i have some flare up there not much though..

I think 7% of people who are dx with UC have actually crohn's
24 year old female
Diagonsed with Crohns disease in December 2008..
Medication - Asacol, Remicade, Entocort

Post Edited (isergodur) : 2/21/2009 3:42:26 AM (GMT-7)


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 2/21/2009 3:26 AM (GMT -7)   
I was also first diagnosed with UC, and then my diagnosis changed to Crohn's 6 months later.....
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 2/21/2009 12:37 PM (GMT -7)   
I was lucky enough to be diagnosed with both at the same time... yea me...
32 year old female... diagnosed with Crohn's/Colitis at age 16, then with Proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, tapering dose of 40mg Prednisone... considering Remicade


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/21/2009 2:21 PM (GMT -7)   
i was diagnosed with crohn's 20 years ago...a few months ago after a recent colonoscopy my doc switched my dx to UC...

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/21/2009 4:10 PM (GMT -7)   
Actually CD cannot turn into UC nor can UC turn into CD...you were either misDX as having UC (when you actually had crohn's colitis which is simply CD affecting the colon) or you're one of the very unlucky 2% of patients that has both UC and CD, but one does not turn into the other, they are 2 seperate entities.


Kriss, did your doc tell you that you had crohn's colitis? Because that is not the same as having both CD and UC, cronh's colitis is actually CD affecting the colon, col=colon and itis=inflammation.


:)


My bum is broken....there's a big crack down the middle of it! LOL :)


Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 2/21/2009 8:01 PM (GMT -7)   
Hmmm.. yes, they always say Crohn's colitis and I thought it was 2 separate things... I was told a few years ago that I have proctitis, too... I'm going to have to ask a few more questions when I go back to the doc's next week.. thanks for the info!
32 year old female... diagnosed with Crohn's/Colitis at age 16, then with Proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, tapering dose of 40mg Prednisone... considering Remicade


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/21/2009 10:29 PM (GMT -7)   
Yup, crohn's colitis is actually crohn's affecting the colon, proctitis is inflammation of the rectom from EITHER crohn's or UC...UC affects the colon/rectom only, CD can affect any part of the GI tract from the anus to the mouth.

I too have crohn's colitis and sometimes I get proctitis but cortifoam rectal meds tends to clear the proctitis up for me, I also have perianal crohn's skin tags (located on the anus, outside not inside as that would be part of the rectom, the rectom is internal and the anus is external).

CD can also affect more than one area of the GI tract at a time (as it does with me) when I first got sick (18 yrs ago) it was in my small intestine (the TI), colon, rectom and anus.

With CD the inflammation can (and often does) affect layers of the intestinal lining, with UC the inflammation is on the surface of the lining only, never goes through the many layers as it does with CD (which is why fistulas are more common with CD and not with UC) also, with CD there are skipped patterns of inflammation (healthy tissues in between inflammed) with UC the entire area will be inflammed with no skipped patterns.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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