Remicade wearing off early

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yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 2/23/2009 8:52 AM (GMT -7)   
Ive been on Remicade for 8 months now. It seems like each infusion wears off quicker than the last one. Its been barely 5 weeks since my last infusion and my elbow and knee have been swollen and sore for the last two days. I should also mention I have arthritis from Crohn's. This is very frustrating since it works so well for awhile. Thanks for letting me vent.
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 6 months ago. Now on Remicade and iron. Feeling like a champ!
God Bless. Tony


Metallichic
Regular Member


Date Joined Oct 2007
Total Posts : 76
   Posted 2/23/2009 9:03 AM (GMT -7)   
That happened to me too, and my infusions were moved up to every 6 weeks. Good luck!
Shannon
Crohn's Disease/Colitis (diagnosed 12/02), Diverticulitis (diagnosed 6/07)
Positive blood test for wheat allergy, (11/07); Positive capsule endocopy showing Celiac disease (6/30/08), also allergic to egg white protien.
Taking Asacol, Prednisone, Humira, NuLev, HCTZ, Lisinopril, Cymbalta, Prevacid, Zantac, Ambien, Lomotil, Soma, Plaquinil, Frova, Premarin, Entocort, Xifaxan, Creon, Ultracet, Vicodin, Questran powder/Carafate suspension, and LOTS OF VITAMINS AND SUPPLEMENTS!


yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 2/23/2009 9:07 AM (GMT -7)   
Just curious, how are the 6 week infusions working for you? I am going to ask my GI about doing that. I did mention it to him but he seemed reluctant so it hasnt been brought up since.
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 6 months ago. Now on Remicade and iron. Feeling like a champ!
God Bless. Tony


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 2/23/2009 9:50 AM (GMT -7)   
My gi prefers to up my dose and keep me at 8 weeks instead of moving them closer together. So far, it has worked for me.

cdinchitown
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/23/2009 10:21 AM (GMT -7)   
Go to 6 weeks. It helped me so much! Be persistent and take charge of your health!

Erik45
Regular Member


Date Joined Oct 2007
Total Posts : 149
   Posted 2/23/2009 10:25 AM (GMT -7)   
Had to change mine to 6 weeks as well going good so far..
Crohns for 13 years
1 surgery so far
2 times in hospital for blockages
MEDS:
Remicade
Imuran
B12 Injections


want_2_be_well
Regular Member


Date Joined Sep 2006
Total Posts : 181
   Posted 2/25/2009 9:53 AM (GMT -7)   
My doc increased dosage first until I maxed out, then shortened the time periods between dosages. I am currently at 7 weeks.
want_2_be_well
33 year old Female
Diagnosed with CD 2006, had suffered long before 2006.
CD Meds: Remicade every 7 weeks & Imuran 50 mg,
Also have seasonal allergies, milk allergy, and asthma.
  
 


cierragold
Regular Member


Date Joined Feb 2005
Total Posts : 183
   Posted 2/25/2009 11:21 AM (GMT -7)   
I was at every 5 weeks for my Remicade, but my GI put the dose to the max and I'm now at every 6 weeks.  I've noticed that every cycle is different.  Some cycles I go all 6 weeks with barely any pain.  This cycle I'm in a lot of pain already and I still have 6 days until infusion.  You should talk to your doc about the dose and the timing.  Take care!

Lisa
 
dx 02/15/05 CD
 
Take things one day at a time!

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