Stupid question, smart answers welcome. lol

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conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 2/23/2009 2:29 PM (GMT -7)   
Hi Guy's,
 
I have a bit of a stupid question to ask. I was with my GI today and he has increased my pred usage up to 60mg. With my just having surgery and a temp bag in, will the pred even get the chance to work? The crohns in my throat is well playing up just now and he wants to get it under control. I asked him this question and he responded, "it is either an increase in oral pred, or you come to hospital each morning for a jap of pred".
 
I cannot stand pred at the best of time, but this has me wondering. I wonder if this is another mistake by my doctor?
 
Thanks Guys.
 
Conor
DX November 2008 - after years of searching for an answer
 
Prednisolone 30mg (now coming of them - yesss) asacol, 3000mg -Omeprazole 40mg for acid reflux - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/23/2009 2:44 PM (GMT -7)   
No stupid questions here. Well as always a second opinion is cool. I think shot pred works better for me, but rest assured I was on 80 mg of pred for about 3 years. But I don't think it would hurt to get a second opinion.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 2/23/2009 2:47 PM (GMT -7)   
o my 80mg of pred for 3 years wow i would have gone CRAZY !! you are the woman for makin it tho that !!
> 27 year old female < 
 > Diagonsed with Crohns disease in 2000 <
 > In 2009 I was told my Crohns is Crohn's Colitis ~ they said it was in my rectum, colon and all through my small intestine <
 
 > Medication - pentasa(4000mg), imuran(100mg), prednisone(40mg 30mg 20mg 10mg), vitamin C, vitamin E, calcium+D, multivitamin, b-12, iron, and fish oil <
 
> I thank the Lord every day for my amazing husband and wonderful family <


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 2/23/2009 2:53 PM (GMT -7)   
wow mmmnavy, how'd you get through that and remain normal? God, I couldn't evn think of that. I am on pred now for 6 months up and down in dosage, but that is just crazy!
DX November 2008 - after years of searching for an answer
 
Prednisolone back up to 60mg as of the 24/2  asacol, 3000mg -Omeprazole 40mg (according to doc, it helps with intestine ulcers) - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/23/2009 9:56 PM (GMT -7)   
Good grief, Navy, that must have been nightmarish.
Co-Moderator Crohn's Forum.


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 2/24/2009 12:21 AM (GMT -7)   

Yeesh!  I had 60mg Pred for almost 2yrs and I'm surprised I came out of that with most of my sanity.

*bows to you in utmost respect*

 

How much of your intestines were removed?  If you have 'enough' then I suspect the pred will be able to work.  If you had a lot of length removed and have a very fast end-to-end travel time, the jabs may be better so you could get the benefit of the whole dose.

heidi


I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/24/2009 5:21 AM (GMT -7)   
Hi Conor Depending on how your throat feels maybe getting it in IV form might be better for the throat .I was thinking how bad the pred,taste and if taking it orally is bothersome for you. I am not sure about doseage he has you on could call his office and see if it is correct. How are you doing now? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 2/24/2009 7:21 AM (GMT -7)   

hi gail,

I did just that and phoned him this morning and raised my concerns. He has suggested that it  willo be fine for me to take the orally as the crohns in my stomach is mostly underontrol and I have very slow movement just now. How he can tell that is beyond me. Anyway, we have agreed to try it this way for a week and if no improvemnt we will give it by injection each day.

Other than my thrat and mouth, I am really starting to fel great. I haven't felt this good is a long long time. I pray to god that continues for a week while. Thanks Pal.

 

Conor


DX November 2008 - after years of searching for an answer
 
Prednisolone back up to 60mg as of the 24/2  asacol, 3000mg -Omeprazole 40mg (according to doc, it helps with intestine ulcers) - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/24/2009 8:59 AM (GMT -7)   
Conor, I was wondering if you could describe the symptoms of having Crohn's in your mouth and throat. I get large canker sores in my mouth and throat, is that the type of thing you get or is it inflammation? Sometimes my mouth is so full of cankers I cannot speak or smile due to the pain and I was wondering if maybe it is a Crohn's flare up in my mouth.

Thanks for any insight you can offer.

conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 2/24/2009 10:26 AM (GMT -7)   

Hi Sassy28,

I have crohns from mouth to anas. When my throat is flarting, I get alot of pain in my chest along with a real sore throat. I get ulcers in my mouth that take on the appearance on canker sores. I bring up a yellow mucus and there tends to be blood when I am sick.Alot of the times must chest feels like it is closing of on me, as though it is shrinking! Go and speak to your Doctor about it, it is the best way to get answers. It is treated with pred, not nice I know, but it does work.


DX November 2008 - after years of searching for an answer
 
Prednisolone back up to 60mg as of the 24/2  asacol, 3000mg -Omeprazole 40mg (according to doc, it helps with intestine ulcers) - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/24/2009 3:48 PM (GMT -7)   
Thanks. So far prednisone is the only thing that has helped my mouth, I am on it now and am being tapered off. I will definitely talk to my Dr. about it. Thanks for the info and I really hope you are feeling better soon. It sounds like you have had an incredibly rough go of it all.

conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 2/24/2009 4:22 PM (GMT -7)   

Hi Sassy28,

that I have but alot of people have got it worse than me. Good luck with your Docotr and please let us know the outcome for you. If you don't mind, i will say a little prayer for you.

 


DX November 2008 - after years of searching for an answer
 
Prednisolone back up to 60mg as of the 24/2  asacol, 3000mg -Omeprazole 40mg (according to doc, it helps with intestine ulcers) - Buscopan 10mg (a daily) Remedeine 30mg-Probiotic


annyb
Regular Member


Date Joined Feb 2009
Total Posts : 62
   Posted 2/24/2009 5:59 PM (GMT -7)   
There is no doubt that Prednisone is the "miracle poison". I took it for over 5 years before I was finally able to get off of it. And now I get shots directly into the affected areas when I have my 3 month colonoscopy tune ups. (That may give you a clue as to where my issues lie)

Personally, I think a second opinion never hurt anyone. Although for "does it even have time to work" issue. I believe that it is absorbed in the small intestines so unless your temp bag goes from your mouth straight into the bag, it should be absorbing. The way it was explained to me was like pouring water onto a sponge. If you pour a lot, you loose a lot but the sponge gets soaked faster. But I am not a doctor so I could be way off line.

Good Luck.
Crohn's Disease
Diagnosed at age 9 in 1980
1st ileosecal resection 1989
2nd colon resection 1993
Chronic "D" and arthritis
Chronic rectal stricture with colonoscopy every 3 months to dialate
Insomnia since 1980 - I love my ambien!
 
SCUBA diver, Master's degree student, college graduate, Pet therapist
 


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 2/24/2009 6:19 PM (GMT -7)   
Oral prednisone is absorbed into the bloodstream very quickly, so I don't think there is a problem with absorption, but IV steroids are a better way to deliver the medication, no doubt.
Belleenstein:

30+ years living with Crohn's.

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