i feel like i am in prison

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isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 2/23/2009 3:42 PM (GMT -7)   
I have been having a good month, have not gone to the hospital in February unlike the last three months. My joint pains have been getting better there has been less blood in my stools and less pain in my stomach so overall great improvement.

But as soon as i plan something to do i have more symptoms how is that possible rolleyes
I was going to go with my friend to the movies tonight, i called my friend on my way home 20 min ride, i was feeling little pain in my stomach nothing much but when i got home i could not even stand up straight because of the pain.. So i called my friend again it had not been more than 10 min since i hung up on her to tell her i would not make it to the movies . ..

This bothers me so much, because i am always thinking about what other people might think and making excuses for my condition which obviously changes every 10 minutes mad

Now i am worried because i have a big dog show next weekend and i cant miss it.. As soon as i wake up on Saturday i am going to take lots of pain meds and be super good ;)

Is someone else dealing with this problem, i would guess so if you have this sucky disease..
I just needed to let of some steam and this is the best place :)

Usually having crohn's does not bother me, just when i am planing something fun and i get sick...
I used to get real bad panic attacks and they are by far worse than crohn's..

Thanks for reading about my miserable life tongue
24 year old female
Diagonsed with Crohns disease in December 2008..
Medication - Asacol, Remicade, Entocort


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 2/23/2009 3:50 PM (GMT -7)   
I know how that is.... I hate when Crohn's starts acting up when you've got plans to do stuff...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/23/2009 4:36 PM (GMT -7)   
anxiety maybe????

Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 2/23/2009 5:08 PM (GMT -7)   
I agree with you on the anxiety, mtgman.. Sometimes when I am worried that my Crohn's is going to interfere with whatever, I will get symptoms "just because". I think it's kind of like when you read the side effects for a new medication, and then suddenly you have all of them...
32 year old female... diagnosed with Crohn's/Colitis at age 16, then with Proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, tapering dose of 40mg Prednisone... considering Remicade


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 2/23/2009 6:08 PM (GMT -7)   
i think you are right mtgman i have been anxious about my crohn´s acting up when i go out.
But i feel like tonight was different beacause i had no time to panic about the movie trip just bad timing
But i going to see my psychologist on Friday i will talk to her about this maybe i can find away to fix this problem..

I am excellent when it comes to working with my head :) i wish i could do the same for my tummy..
24 year old female
Diagonsed with Crohns disease in December 2008..
Medication - Asacol, Remicade, Entocort


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/23/2009 10:34 PM (GMT -7)   
i know that anxiety and stress are triggers for me. I have a low dose script for xanax that i take as needed...lately that "need" is falling asleep due to this ^&^%$# prednisone...i hate hacing to cancel and make excuses as well. We had to miss my friend's 40th b-day Friday...had to blame it on the daughter's "cold" again...flares suck.

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 2/24/2009 4:30 AM (GMT -7)   
The same thing happens to me. I have cancelled almost all of my plans last minute over the last year. Yes, stress triggers symptoms!!

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 2/24/2009 8:58 AM (GMT -7)   
I get sick just when I want to go out alot. I ask myself why and myself said that it was because I didn't really want to go or was nervous about something to do with going. So over some time I was better at not going and being happy or going and being in control of what would happen (as Much as that is possible) Doesn't always work and sometimes I'm home earlier than plan. I'm still working on it but at least it's a little better.

littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 2/24/2009 1:40 PM (GMT -7)   
I often will have an off day if I have plans to go out. I sometimes think that it is because I get myself wound up before going out by worrying that I will be ill whilst I am out. Im sure sometimes that this is the reason because I am generally ok when going out with my partner as I feel 'safe' with him. As in I know we can come home if I feel unwell and that he will also look after me. Anyone else and I feel i am letting them down.
Kerry


annyb
Regular Member


Date Joined Feb 2009
Total Posts : 62
   Posted 2/24/2009 6:03 PM (GMT -7)   
My symptoms totally get worse when I have big plans. Nothing like spending your entire vacation in the bathroom!

I personally have a lot of anxiety issues and have been seeing a psych for a few years. It helps.

Good Luck in the dog show. What kind of dogs do you have? Toy Fox Terriers over here.
Crohn's Disease
Diagnosed at age 9 in 1980
1st ileosecal resection 1989
2nd colon resection 1993
Chronic "D" and arthritis
Chronic rectal stricture with colonoscopy every 3 months to dialate
Insomnia since 1980 - I love my ambien!
 
SCUBA diver, Master's degree student, college graduate, Pet therapist
 


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 2/25/2009 5:00 AM (GMT -7)   
annyb said...
My symptoms totally get worse when I have big plans. Nothing like spending your entire vacation in the bathroom!

I personally have a lot of anxiety issues and have been seeing a psych for a few years. It helps.

Good Luck in the dog show. What kind of dogs do you have? Toy Fox Terriers over here.


I have two standard poodles :) and they love having there mommy home sick so she can be with them 24/7 tongue

http://4.bp.blogspot.com/_7nYaaj2g_ew/SPqFhJJjT_I/AAAAAAAAALs/fLog4TR79C0/s1600-h/Picture+010.jpg
24 year old female
Diagonsed with Crohns disease in December 2008..
Medication - Asacol, Remicade, Entocort


mull
Regular Member


Date Joined Feb 2009
Total Posts : 86
   Posted 2/25/2009 8:38 AM (GMT -7)   
i know what u mean i have often being ready to go out and i would get terrible
diarhea and i would have to take imodium tablets and then i might not go to the
tiolet for a couple of days and that is not good with cd i was just wondering has
that ever happened anyone i am just a new member i have cd nearly 16y had alot
of surgery doing well thank god mull wink
im a 40 yr old woman who has CD since 1993..
current medication is pentassa and purinethol.


angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 3/4/2009 6:05 PM (GMT -7)   
im glad im not the only one and theres me thinking it was just me that was jinxed when your diagnosed with a chronic condition you miss out on so it always seems to happen to me when im looking forward to an event not exactly sure why that is!it may well just be stress or anxiety!your life changes in so many ways but you learn to cope you dont have a choice as my sister says

"LIFE IS THE PACK OF CARD YOU WERE DEALT WITH"

before i was diagnosed i was never ill and now how the tables have turned another saying on this website
"its takes a brave and couragious person to deal with a chronic disease"

Each and everyone on this forum deserves a medal and a bravery award for what we tolerate for weeks/mnths/years/ on end.all the doctors appointments consultants appointments the horrible tests we go through when we are admitted who thinks of all these disgusting treatments lol

I bet they have not tried them!

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 3/4/2009 7:21 PM (GMT -7)   
angelang40 said...
im glad im not the only one and theres me thinking it was just me that was jinxed when your diagnosed with a chronic condition you miss out on so it always seems to happen to me when im looking forward to an event not exactly sure why that is!it may well just be stress or anxiety!your life changes in so many ways but you learn to cope you dont have a choice as my sister says

"LIFE IS THE PACK OF CARD YOU WERE DEALT WITH"

before i was diagnosed i was never ill and now how the tables have turned another saying on this website
"its takes a brave and couragious person to deal with a chronic disease"

Each and everyone on this forum deserves a medal and a bravery award for what we tolerate for weeks/mnths/years/ on end.all the doctors appointments consultants appointments the horrible tests we go through when we are admitted who thinks of all these disgusting treatments lol

I bet they have not tried them!
cheers!!!

pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 3/5/2009 6:25 PM (GMT -7)   
Wow, You said it!
diagnosed 1981
remission until 2006
Remacade,resection
B-12,Pentasa,Loperamide,
Entocort, 6mp,Hydrochlorothiazide
Remission since surgery
and 8-week Remacade.
d since 1981(enjoy the look
on Dr's faces)

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