Questions for Wolfie 40..

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Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 2/25/2009 1:02 AM (GMT -7)   
Wolfie,
I asked some questions under your thread on Meckels but thought of more.
I am really interested in you situation as I feel it is a lot like mine. What medications were you on pre surgery and what is the plan now? How long have you known you had a stricture? Any other Crohn's disease activity? Diet restrictions before and after? What did pre-op consultation involve?
Hope you don't mind and know you've been there.
Thank you.
55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
 Started weekly methotrexate injections 09/22/08.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/25/2009 8:13 AM (GMT -7)   
Don't mind at all.
I've was dx Crohns in 2001 with an obstruction, had no "D" or pain prior to that. I was put on Asacol,Folic Acid,B-12 injections,Calcium as a maintenance med and along the way was on imuran and Prednisone. I really had no real problems from 2001-2008 other than "D" no and than. BM's ranged from 2-4 per day depending on what I ate.
2006 or 2007 had a colonscopy and was told that nothing had changed.
Sept 2008 go to ER for a bowel obstruction. I was put on Prednisone and released a day later. I tried to taper off the Pred. but got to 5mg and pain started to come back.I went back to 20mg and held there until the end of December. During that time I had another colonscopy and a SBFT and was told that I had significant narrowing due to a stricture caused by scar tissue.Best solution is surgery.I had meet with the surgeon and set a date and was told to continue with Asacol,Probiotics,Folic Acid,Multi Vitamin,Dbl dose calcium and bi-monthly B-12 injections.My diet was to consist of low residue until surgery.I had one more meeting with my surgeon and had to have a Pre-surgical physical before hand.The Pre-op consult talk was about how the surgery was to be done Lapro first invasive second, she told me where the incisions we're to be made and on a diagram of of the intestine as tol how she would do it. I talked about my fears and she told me her's and reassured me that I would be fine.I was told to stop all Vitamins 5 days prior to surgery.
I'm post-op one week today. I was told to stay low residue until I follow up in 3-5 weeks.I am on 10mg Prednisone only!! I was told to wait a week or two until I can start up with my normal maint. meds. I walk on my treadmill 3 times a day 20 minutes each time and walk a 1/2 mile each time. I don't know if it is too much or not,I was told to walk,walk,walk. I have not used pain meds since being home, there's only been some discomfort and tightness. The hardest part for me is doing nothing,I'm used to moving all of the time.I also am having alot of "D", I have gone 3 times in the last hour and a half. I really hope this slows down as I have not experienced this before. I think my bowels are adjusting yet. Let's hope!
I hope this helps and I apologize for such a long response.
I'm going to have my wife write up a day-day from my first day in the hospital to the release day from the Hospital as she can type way faster than me and put the story line together alot shorter than me.
Again sorry this is so long!!
Wolfie

Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 2/25/2009 10:26 AM (GMT -7)   

Wasn't too long for me, I appreciate all the info and history. I am on low residue diet, take vitamins and walk on the treadmill. I do worry about diarrhea after surgery which I don't have now. There doesn't seem to be too much reason why it should start other than it takes a few days even after scopes for things to be back to normal. And I did ask the surgeon about that. Thanks again.

 

 


55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
 Started weekly methotrexate injections 09/22/08.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/25/2009 11:39 AM (GMT -7)   
Another thing that they do at the hospital is they did put me on a high dose of Prednisone (short burst) and also IV antibiotics.
They also gave me a drug called Tramadol thru the IV. I had a bad reaction to it. My chest started to hurt and I couldn't breath in very deep,it went away within 5 minutes. They quit using that on me.
The biggest pain was and still is in my shoulder from the gas injected into the stomach. That pain hurt the worst!

penelope-marie
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 2/26/2009 8:08 AM (GMT -7)   
woolfie:-
very glad you took trouble to explain all that. I hve some more questions for you. When you came out of the op did you have a naso gastric tube because that is something i am terrified of as i have athsma and it seems scary. If so when did it come out and what was it like. if not was it discussed before hand? Also Im assuming that since you dont mention it you dont have a stoma bag but again, was that discussed beforehand?
 
Any information would really help as i am still dodging the operation but would like as clear a picture as possible.
 
Hope the pain in shoulder goes away, what about keeping it cool as air bubble would contract??? sounds like you are doing alll right things
best wishes 
had crohns for 15 years took pentasa then nothing but diet but stricture appeared 3years ago and problems since.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/26/2009 8:38 AM (GMT -7)   
The only thing that I know that they used was a breathing tube, and I had nothing but IV post-op. I didn't want to know what a breathing tube was as I would have gotten worked up. Sometimes it just best not to know.
I do not have a stoma,and it was never talked about. My surgeon said that it would be a standard procedure although she did apologize for the longer incision due to unbelievable size of bowel she had to pull out.
Discuss everything on your mind beforehand, that way there should not be any surprises. I told her my conerns and she told me her's.
There are no dumb questions.

Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 2/26/2009 8:56 AM (GMT -7)   

penelope-marie

I did ask my surgeon about that naso gastric tube or NG tube as I have read about on the forum and he said they do not use it, just the breathing tube.

 


55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
 Started weekly methotrexate injections 09/22/08.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/26/2009 9:35 AM (GMT -7)   
Your correct Bammer my surgeon did say the same thing.
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