remicade fistulas/abcesses

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lalalaCD
Regular Member


Date Joined Jul 2008
Total Posts : 36
   Posted 2/25/2009 7:54 PM (GMT -7)   
 does anyone on remicade experience thier fistulas to come back about a week before thier next infusion??

patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 2/25/2009 8:46 PM (GMT -7)   
Remicade cleared mine up pretty quick, but I had setons/drains in them forever, so that might be part of it...? I was also given Remicade every 4 weeks for the first 3 months or so, so the fistulas didn't stand much of a chance.

How far apart are your infusions? If you're doing it every 8 weeks, maybe you could talk with your doc about getting juiced every 6 or 7 weeks for a few doses to see if you can nix the fistulas for good...? Just a thought.

I know they're a pain... and I wish you the best!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
Noticing a real difference with a Gluten-Free diet.
Currently on:
Cimzia (loading doses 2-12-09)
Probiotics, Digestive Enzymes, and Prednisone


tiaeight
Regular Member


Date Joined Sep 2006
Total Posts : 237
   Posted 2/25/2009 10:58 PM (GMT -7)   
I have nothing but problems with a fistula.  My doctor doesn't seem to think that it matters.  Grrr

SherryAnn
Regular Member


Date Joined Mar 2009
Total Posts : 21
   Posted 3/26/2009 7:13 PM (GMT -7)   
tiamarie said...
I have nothing but problems with a fistula. My doctor doesn't seem to think that it matters. Grrr


My daughter has a fistula below her belly button and her doctor wants to treat her for it with either Remicade or some other long-term medicine. Our daughter and also we do not feel good about these treatments because of all we have read about the long-term affects of them. She is going to go on Flagyl and an antibiotic and we'll see how that goes.

Good luck with healing your fistula.

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 3/27/2009 9:43 AM (GMT -7)   
Sherry Ann. Flagyl actually helped me as much as Remicade, Humira, or anything else I tried.

Fistulas = the worst part of this disease
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


SherryAnn
Regular Member


Date Joined Mar 2009
Total Posts : 21
   Posted 3/27/2009 9:48 AM (GMT -7)   
Glad Bag said...
Sherry Ann. Flagyl actually helped me as much as Remicade, Humira, or anything else I tried.

Fistulas = the worst part of this disease


Wow, thanks....that's the best news I've heard in a long time. Has anyone heard of using Wild Oregano oil to heal fistulas? A gal at a health store told me that it is considered a natural antibiotic. Obviously, we would rather use something natural rather than medicine so we're interested... Also, if we do go with the flagyl, do you use probiotics during the time you're taking the antibiotics or after? Thanks....
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