Very sorry to hear that, it must have come as a shock. Have you known for awhile then? I know nothing about it but maybe they take your appendix out and go from there?
My husband gives me my MTX injections in the arm but I was shown how to do it in the front of the thigh which I thought would be easier if I had to do it myself.
One reason they recommended surgery to me now is that they cannot rule out cancer within the stricture and thought it was too risky to take biopsies when they did the endorectal ultrasound. Plus it showed deep scar tissue.
Wishing you the best and keep us posted.
AB I wondered if they took out your appendix at the time. I'm thinking 5 years is a long time to wait but hope you continue to feel good.
An endorectal ultrasound is just that. Couldn't find too much about it on the interent beforehand but there are other types of internal ultrasounds as well. They use a radial scope and they can use a linear scope to take needle biopsies into the stricture but since it is larger in diameter and less flexible, they thought it was too risky. I have pictures which show thickening through all the layers at the stricture and what concerned them the most was that there was some asymmetry to the degree of thickening. (My husband does ultrasonics on metal for a living so understands how it works). I have also had 4 colonoscopies, 3 sigmoidoscopies plus other tests and have had 6 GI's and four surgeons take a look (at their request). So surgery is scheduled for May 11th but once the decision was made, I wish I didn't have so much time to think about it.
I have never had to give myself an injection but thought I could. I can go to the clinic too but it is a bit of a drive. Usually can't even feel it and have had no side effects. I don't watch and didn't today when they did bloodwork.
Sounds good and they will keep an eye on it. Believe me I knew nothing about Crohn's before being diagnosed other than knowing a couple of people who had it. I kind of became fanatic about researching and found this forum since they first told me surgery or Remicade were my options. (Plus the Prednisone made me a little hyper and I didn't require much sleep.) I have a lot to learn but seems like the right info has come at the right time and not too overwhelmed and learn how to put what you read into perspective.
I feel very fortunate to feel as well as I do and one reason why these decisions are so hard to make. Every doctor has been surprised that I have no symptoms when they see what is inside. But it is only a very small part. They think they should be able to do it lapo.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…