Meds after surgery?

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CUBFAN26
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 2/26/2009 1:42 PM (GMT -7)   
I was curious what meds did they put any of you on after surgery?  I was told that I would go back on Imuran and that is it.  Due to me getting histoplasmosis after taking Humira in Aug 2008 they took me off of all of my immue supp. drugs and are very reluctant to put me back on any of them due to the risk of the Histoplasmosis coming back.
 
thanks
Crohn's since June 2005
Relapse/flare up since Oct. 2007
Been on Pentasa, Asocol. Prednisone, Entocort, Imuran, Protonix, various anxiety meds, painkillers
 
Humira for 1 month from July 2008-Aug 2008 then contracted histoplasmosis and was in hospital for 11 days in Aug. 2008

Surgery scheduled for March 6th 2009


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/26/2009 1:52 PM (GMT -7)   
I was on Asacol before my resections and after. I recommend everyone stay on some kind of maintainence meds always to keep the inflammation in check. Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 2/26/2009 6:20 PM (GMT -7)   
I was on Humira before my resection and my GI wanted me to go back on it after surgery but my surgeon recommended Pentasa (my GI doesn't think Pentasa is effective). I wanted to have some time off of the heavy hitters and chose to go back on Pentasa. I'll have a small bowel follow through around a year post-op and depending on what that shows, I'll either stay on Pentasa or go back on Imuran or Humira. No one really seems to know what is the most effective drug to keep you in remission post-op. Good luck with your surgery. SB
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/27/2009 5:32 AM (GMT -7)   
I too wonder what is the best post-op drug. I've been on Asacol since 2001 and I needed surgery,is Asacol working for me? I don't know.
What is Imuran used for?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/27/2009 7:14 AM (GMT -7)   
Hey Wolfie just fyi after my first resection my GI told me I could quit using the Asacol, so I did. Wound up getting sick again and went back on it and have been fine since. If I were you, I would stay on the Asacol. Imuran is an immune suppressant and helps to keep the inflammation down.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

joohana
Regular Member


Date Joined Feb 2009
Total Posts : 66
   Posted 2/27/2009 2:07 PM (GMT -7)   
Hi, I was taking Pentasa, Imuran and Entocort before resection, stayed on Pentasa (raised from 2x2 to 4x2)afer that, stopped the rest. On colonoscopy 3 months later docs saw the desease coming back and put me back on Entocort. I have been on it since (almost 2 years) and am quitting it now to be able to breastfeed. Really hope my illness will stay quiet...Am worried it won´t last but would love to try and nurse cry
Diagnosed with Crohn´s in 2005, 3 surgeries, currently 39 weeks pregnant with second child. Pentasa 2x2, Budenoflak 1x2, 30 yrs old


cdmom
Regular Member


Date Joined Dec 2006
Total Posts : 25
   Posted 2/27/2009 4:44 PM (GMT -7)   
My son recently had resection surgery.  He came home on Flagyl, started Pentasa two weeks later and started Imuran at his 8 week check up.  He'll be on the flagyl for 3 months.  I've reserached it and there doesn't seem to be tons of studies on preventing post-op recurrence, but the 3 month flagyl and Imuran combo does seem to be the best that they know today.  The imuran gives you about a 20% better chance of maintaining remission than the 5ASAs - asacol or pentasa.     


elexis
Regular Member


Date Joined Feb 2003
Total Posts : 101
   Posted 2/28/2009 6:39 AM (GMT -7)   
Definitely stay on ur meds after surgery. I continued Asacol and Imuran afterwards.
Dx w/ Crohn's Disease May 2000
Medication: Imuran 150 Mg, Asacol 400MG
Dx w/ Hypothyroid 2001
Medication: Levoxyl 88MCG
Small Bowel Resection November 2008


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/28/2009 7:23 AM (GMT -7)   
How long did you all stay on Imuran after surgery?
Diagnosed with Crohns in 2001

First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol,Folic Acid,Multivitamin,Dbl. Calcium,Probiotics,Bi-monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/28/2009 8:44 AM (GMT -7)   
Wolfie you should always stay on some type of maintainence med. If not, the microscopic inflammation is still going on and doing its damage and you could wind up possibly having to have another resection.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/28/2009 9:08 AM (GMT -7)   
Nanners, I understand that I should stay on maintenance meds, I was just wondering if I should also ask my GI about going on Imuran as well to help the monster to not come back.
Diagnosed with Crohns in 2001

First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Potonic, Bi-monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/28/2009 10:16 AM (GMT -7)   
I was just saying you should just take Asacol or Imuran. I have heard the docs dont like you on both at the sametime. I personally would take the lesser of two evils if I could get away with it. JMHO
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 2/28/2009 11:17 AM (GMT -7)   
Thank you Nanners!
I know that your right about both drugs. I'm just trying to be pro-active.I just don't want to go through the whole operation again.I'd love to be on nothing but I know better.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, B-12 injections every 8 weeks.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

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