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crohn's pt mom
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 2/27/2009 2:05 PM (GMT -7)   
Why can't you take Advil?  that's my daughter's first choice for pain - dr hasn't told her not to take it.

MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 2/27/2009 2:30 PM (GMT -7)   

its similar to aspirin.  it thins the blood and if you already have internal bleeding (which the majority of us have) it will exasperate the situation.  

Tylenol is the only OTC pain reliever allowed.


33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/27/2009 9:33 PM (GMT 0)   
It will also cause you to flare badly. Never again will I use Motrin, Aleve or Aspirin.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/27/2009 2:34 PM (GMT -7)   
No NSAIDs are allowed (which are found in aspirin, advil, alieve, ect) only Tylenol is considered safe, NSAIDs promote bleeding in the intestines and may exacerbate IBD symptoms.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 2/27/2009 5:44 PM (GMT -7)   
I used Aleve for 3 days prior to hemmorhaging.  I lost 4 units of blood...  Doc said that the Aleve could have contributed.  (I am a bleeder anyway.)  I don't touch the stuff either.  It works, that I can say.  But, it's not worth the risk.  Since Tylenol doesn't help, I use Vicodin when the pain gets in the way of life.

--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 - now 2 months into it & it was the right decision
--currently taking budesonide suppositories, 3mg at night.  SLIPPING big time.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl


crohn's pt mom
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 2/27/2009 7:28 PM (GMT -7)   
thanks for all the info.  It sounds like she would be better off using the vicadin or percocet after surgery and forget the Advil--I'll let her know.
 

jid
Regular Member


Date Joined Apr 2005
Total Posts : 103
   Posted 2/28/2009 10:37 PM (GMT -7)   
I realize that what I'm about to say bucks the trend, but I take advil. I take it a lot. I used to take Tylenol but it didn't help me. I even got these debilitating headaches and nothing would help. One day, i was so desperate for relief that i went to the medicine cabinet and said "f- it, i'll try advil". well, the migraines that would last for days that would keep me from going to work... GONE in 20 minutes! While I know that it isn't preferred, it is and has become a major option for me. Put another way, I now have a quality of life back that i didn't have before.

note: I never had headaches before Tysabri... but now i get them a couple of times a month. And now I take Advil.

J

yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 3/1/2009 7:12 AM (GMT -7)   
I have used Advil and Aleve for years until I started Remicade 6 months ago. But now the Remicade seems to lose its effectivness in about 5 or 6 weeks. My arthritis flaired so bad after 6 weeks I called my GI and asked for more frequent infusions or a stronger dose and he seems uninterested in doing that. Last week I decided to take matters into my own hands and took one Aleve. The relief was amazing. I take one every 12 hours and will continue as long as needed. For me, Tylenol doesn't work at all. It's ironic that a $6 bottle of Aleve works as well or better for me than a $3000 infusion of Remicade.
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 6 months ago. Now on Remicade and iron. Feeling like a champ!
God Bless. Tony


crohn's pt mom
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 3/3/2009 5:45 PM (GMT -7)   
I asked my daughter's GI dr today and he said she could take Advil.  he also recommended she take vicodin rather than percocet - it's more binding, when she needs it.

MoMmers
New Member


Date Joined Mar 2011
Total Posts : 2
   Posted 3/1/2011 3:51 PM (GMT -7)   
eyes  I am at #42 Tysabri doses. I am taking it for MS. I want to somehow reach Jid...we seem to have similiar problems with our Tysabri. I have Migraines, Hives on face after every infusion even after Benadryl and Tylenol. Loads of issues and really upset with "Being Stuck" on Tysabri without a way out. The longer someone is on it, the harder it is to stop. I am just wanting to talk with another person with significant experience. Thanks so much for allowing me to post my FIRST Tysabri info. May God continue to keep us all safe.
 
M

TakillRa
Regular Member


Date Joined Nov 2010
Total Posts : 489
   Posted 3/1/2011 4:24 PM (GMT -7)   
I guess it is different for everyone. I can't take it.
5 years with crohn's
remicade
married for 13 years(been together for 20 this march)
39 years old with a lovely 8 year old daughter
"Bellydancer, Snakecharmer...Bellydance Snakecharmer!"...Beats Antique

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 3/1/2011 4:42 PM (GMT -7)   
crohn's pt mom, just because she CAN take it doesn't mean she SHOULD. It might not make an immediate change in her symptoms, but it could do damage that isn't seen. I only take it when it's the only option (like for a fever that won't go down with tylenol) even though it doesn't change how I feel at all.

Just my opinion...
Becky

Crohn's since 1997
Surgeries: 2 Bowel resections, appendix & gallbladder removed
Pulmonary Emboli & Pneumonia 2009
Currently on Humira, Omeprazole, Prozac, Seroquel, Calcium, Vit D, Aspirin, B12 shots

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/1/2011 4:50 PM (GMT -7)   
NSAID's can promote bleeding in the intestines which is why for IBDers it's considered risky to take them, once in a very blue moon could be okay but there's still a higher risk even on rare occassions of taking them.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

Endeavor08
Regular Member


Date Joined Dec 2010
Total Posts : 380
   Posted 3/2/2011 5:54 AM (GMT -7)   
Tylenol probably doesn't do much for joint pains and stuff like that because it's not an anti-inflammatory. At least I think, when I got my wisdom teeth out, they had me switch from Tylenol to Advil (this was before I was diagnosed) when the anti-inflammatory med where out because Tylenol doesn't have any in it. I may be wrong but that is what I remember.

And I recently learned the difference between Vicodin and Percocet is that Vicodin has more Tylenol in it then Percocet does.
Diagnosed Nov 2008
Brother also has Crohn's.
Currently on Humira, LDN, and Ciprofloaxcin
I'm 20 years old.
I want to be a Gastro Doctor ; )

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 3/3/2011 11:20 AM (GMT -7)   
My GI use to have me take 600mg of Advil a day for my joint pain (this is also the one who after reading my med tests i.e. ,my kidney stones ...he blamed that on the machine being faulty...and my sry I forget the type but the special CD MRI showing CD flaring badly still said I claimed to be in a flare)...needless to say 1 month later my perforation happened. I began seeing a new GI ( a CD specialist that time) and he told me not to take it. there are times still when tylenol wont help my headaches and I try every last thing (if it is a migraine i take my migraine meds tho) then I break down and will take 2 advil. I had to do this just yesterday and it also happened to be the 1st day in some time I didnt need my percoset. I maybe take advil a few times a year if that though knowing how serious it can cause things to be.

I did have 1 emergency doc on my college campus 1 time place me on aleve for joint pain (it was in my big toe) and that caused me to go into a major flare
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987



www.myspace.com/dragonfly137927

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 3/3/2011 7:02 PM (GMT 0)   
I take Aleve for terrible headaches, and only once. If I take it for more than 3 doses my gastritis kicks up and I have to stop. I love NSAIDS for their magic powers at reducing inflammatory pain, but after watching my husband's great aunt almost die from a duodenal ulcer (attributed to long term NSAID use at her DR's direction!!) I treat them with great respect and avoid them if I can.
*******************
48 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed.

petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 3/3/2011 2:38 PM (GMT -7)   
As long as my Crohn's is not bothering me I'm allowed to take NSAIDS for my other issues.
Jodi

Crohns, Crohns related arthritis, Crohns related neuropathy, Hashimotos. Meds- Synthroid, Remicade, Methotrexate, Vitamin D

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 3/4/2011 5:15 AM (GMT -7)   

great, ibuprofen 400mg. is theonly thing along with vicodin helps with joint and muscle pain. I take them in conjunction with vic's. I can't tell if it has made me flare or not. it seems rem has kept the big flares a bay, but feels like someone has taken baseball bat to mt back. When I go to my shop to work, certain physical work feels good to stretch out my back, but when I'm doing something which requires upper arm strength, wow! my shoulders are like fire. It's my back, I feel it's from rem. my back was in good condition. I took ibu's to avoid taking so many vic's. I got out of bed this morning because my back was on fire. i figured I'll go on HW and see what I can find. Depressing thread, sorry. I don't know what to do now, any suggestions? It seems like I start to get comfortable after a couple of doses of pain med's. I'm bewildered. I know when I mix 2 ibu's and 2 vic's. really works well. I've been out of ibu for about a month, called yesterday to get phone in ibu's. i also called about pain managment, I need to get squared away with this pain, our art business after being slow for darn near two years, has awoken with authority, and in order for me to make money, man I need to get this crap under control. my dose of vic's is 5-500(low doseage). maybe if we increase that to 10mg and 1 ibu. I don't ever bleed internally, never have but the very early stages of cd 40 years ago, in fact I got 8 units of blood in 1970, and of course I got hep c. with those 8 units of blood. lucky for me I never drank.

AG


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/4/2011 7:27 AM (GMT -7)   
Do you guys realize this post is over 2 years old? Just fyi!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
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