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biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 2/27/2009 2:36 PM (GMT -7)   
I have a seton.  And it seems when it drains bad I am like freezing.  Or if I have a large amount of bowl movement I am freezing.My iron is ok.  I take hot  hot bath and I warm up.  but as soon as I get out and get dressed I am freezing again. So I get on the chair and wrap up with 2 blankets and try to keep warm.  and I feel so tired.   so anyone else have this problem with freezing?  I check my temp and its normal. 
Also,I am suppose to start humira to close my seton area.  does anyone know if it will work? I am like scared to death to start it.  I was suppose to start january 1.  but keep putting it off. please if you have any good things to say about humira let me know so I can get my nerve up to take it.   confused
thanks everyone

hsmom
Regular Member


Date Joined Oct 2004
Total Posts : 35
   Posted 2/27/2009 2:53 PM (GMT -7)   
I do not have a seton but do have a fistula. I started on Humira just over two weeks ago. So far I have taken the 4 shots and then the two at two weeks later. I too was really scared about starting Humira. But so far the only thing has been a small bruise at the injection site. I do know that I feel some what better. They are not sure if it will heal the fistula but is helping with the Crohn's joint pain. I never thought I would be able to give myself a shot but I surprised myself. It really wasn't that bad. I know each person is different but sometimes we just have to give things a try to see if they will work for us.

biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 2/27/2009 3:06 PM (GMT -7)   
thanks you so much for your input.  I suppose its not so much giving myself the shot.  its the sideeffects I am scared of.  gee the side effects are enough to make you think hard.  but I am feeling so bad i am about to break down and go for it.

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 2/27/2009 4:52 PM (GMT -7)   
I think you should start the Humira. Sounds like you are feeling poorly and hopefuly it will help. When I was really sick, I did get that absolutely freezing feeling. Like I really would die within minutes -- I felt that deathly cold. It was as if my body couldn't warm up. I used to put my clothes in the clothes dryer, get them hot, and put them on. Try it! It feels sooo good!! Blankets too.

Please tell your doctor. I'm am concerned you may have an infection. My normal temperature is now lower than it used to be before I got CD. I am often 97.5 now. So 98.6 is actually hot for me now. Very strange.

Please take care!
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/27/2009 7:09 PM (GMT -7)   
Hi Just wandered if you are on B-12 ? I used to be cold all the time too and now a bit more normal feeling. I also think that it helps with healing of fistula's.lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 2/27/2009 7:48 PM (GMT -7)   

oh the dryer sounds like a wonderfull idea!

and i do  take b-12 sometimes.  if I take to much i get grumpy. strange


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 2/27/2009 8:05 PM (GMT -7)   

Now don't you go climbing in the dryer!!  nono   nono tongue tongue tongue


Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 2/27/2009 10:41 PM (GMT -7)   
Sounds like you may have a low grade fever also. Have you taken your temp ? I have an electric heating blanket that is about the size of a table cloth I picked up at Walgreens. I wrap my feet in it when I have fever and it really helps. Hope you feel better soon...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 2/28/2009 1:18 AM (GMT -7)   
Above comments dittoed. I get so cold and everyone is trying to tell me it's because it's winter in Canada. But I was cold all summer too. If you have lost body fat fast that has an effect and if you end up staying underweight it seems is hard for the body to adjust. I wear lots of layers of clothes to stay warm, when I had a dog cuddling her was good too. OK those are all I can think of this late. Hope the next thing you try for recovery works!!

biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 2/28/2009 7:04 PM (GMT -7)   
i have took my temp when I am cold but shows no fever.  hmmm might have to make a pit stop to walgreens! thanks for all your inputs i am so glad I am not crazy.  lol others get so cold also.

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 2/28/2009 8:01 PM (GMT -7)   
Would one of you mind explaining what a seton is? I know what a fistula is, but not a seton. I like to understand and learn new things, and I googled it, but didn't was left confused...

I'm always hot, but right now, my hands are cold from playing on the computer, and I'm looking forward to taking warm clothes out of the dryer soon. Isn't it funny we all want what we don't have. I'd give you 10 lbs and a few degrees and we'd both be good!! I hope you get a handle on it soon.
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05
Currently on Humira, Prilosec, Effexor, Calcium, Vit D, sublingual B12


biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 3/1/2009 2:30 PM (GMT -7)   
a seton is a rubber band they put in an abcess that won't heal.  I had a abcess lanced opened and the outside would close up . but the inside would not heal. so it would keep getting infected.  so they run a rubberbband through the abcess and tie it in a knot. and it stays in place to hold it open all the time.  so the hole is open 24/7.  it drains all the time. hope that helps.

snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 3/1/2009 5:37 PM (GMT -7)   
eyes I reckon that what Trigirl said about losing subcutaneous fat is right enough, I lost mine two three years back and never have regained it, can't even sit in a draft without shivering now, like a pensioner. But even before that it was noticeable that my homeostasis (balance) mechanism for vasodilation and vasoconstriction (blood flow to capillaries) was totally shot whenever I was ill. That causes chills and sweats just as if fever or hypothermia would, and it certainly ties in with Crohn's being a vascular disease as some GIs have been known to describe it.
Oh I wish I had a clothes dryer !! yeah (Still, knowing the carbon footprint of those devices should warm me up - I'm blushing at what my green friends would say ! blush tongue)

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 3/1/2009 6:12 PM (GMT -7)   
I love my humira! Never had an abcess what so ever so I know it works because I am a moderate to severe case of CD.

As for the freezing, my normal temp after the CD diagnosis has been 99 and steady. Some have suggested that 6mp class of drugs play with your body temp. I am off my Imuran right now and have been for 6 weeks and I'm still freezing so that blows that theory for me at least. Love my micro heated rice bags and heating pad!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/2/2009 7:50 AM (GMT -7)   
Just a thought, but have you had your thyroid checked? Sometimes when its out of whack you can get that freezing feeling.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

tiaeight
Regular Member


Date Joined Sep 2006
Total Posts : 237
   Posted 3/3/2009 12:48 AM (GMT -7)   
Broomhilda  - I have been off meds for 6 months because I had a positive TB test.  Now it is negative, imagine that, and I will get to start my Humira next week.  I really hate shots.  It is the pen injection.  They told me in my thigh or 2 inches past my belly button.  I went from a size 8 to 4 while waiting.  grrrr.  Which is the best option?  Thanks

pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 3/3/2009 4:17 PM (GMT -7)   
When I go for my colonoscopy"s
and Remicade infusions they have
blanket warmers.Everyone laugh's
at me.I'm like...OHH...OHHHHHHHHH
diagnosed 1981
remission until 2006
Remacade,resection
B-12,Pentasa,Loperamide,
Entocort, 6mp,Hydrochlorothiazide
Remission since surgery
and 8-week Remacade.
d since 1981(enjoy the look
on Dr's faces)


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 3/3/2009 8:42 PM (GMT -7)   
We have a blanket warmer at work (but it's downstairs and I'm usually upstairs). If I'm ever downstairs working I offer to get patients blankets when my hands are cold just to hold the blankets!! If only you could get insurance to buy you one! That would be great when it's cold and you feel like cuddling up and watching a movie or something.
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05
Currently on Humira, Prilosec, Effexor, Calcium, Vit D, sublingual B12


biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 3/4/2009 12:58 PM (GMT -7)   
bar77 ... oh i wish i had that blanket warmer. lol ... just the thought warms me up. lol
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