large blood blisters in mouth

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puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 823
   Posted 3/2/2009 4:14 PM (GMT -7)   
My sister has had Crohn's since the 70's.  She had surgery but does not take anything for the Crohn's because she also has asthma and severe drug allergies.  She is afraid to try anything. She gets large blisters in her mouth that come suddenly and sometimes requires a trip to the emergency room because when the blister bursts she bleeds heavily from that area.  None of the doctors she has seen know what is going on.  It happened once when she was at the dentist and it scared him.  Thanks for any help.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/2/2009 4:27 PM (GMT -7)   
I get those too... but none have bled badly enough that I've had to go to the emergency room. Wow.

Has she tried topical treatments, like gels and gargles?

Ivy.
Co-Moderator Crohn's Forum.


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 3/2/2009 4:34 PM (GMT -7)   
mine are tiny
when enflamed
I use Chlorhexidine Gluconate
diagnosed 1981
remission until 2006
Remacade,resection
B-12,Pentasa,Loperamide,
Entocort, 6mp,Hydrochlorothiazide
Remission since surgery
and 8-week Remacade.
d since 1981(enjoy the look
on Dr's faces)


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 3/2/2009 4:49 PM (GMT -7)   
confused There is a condition known as "cobblestone roof" or "cobblestone mouth" that I have read of, (and actually had once, which the dentist was pointing out to his assistant quite excitedly) that is supposedly a manifestation of Crohn's Disease as found in the lower gut, but happening in the mouth. (All part of the gastrointestinal tract, as every textbook on Crohn's will point out.) I do not know how this normally behaves, I merely know it exists and is supposedly diagnostic of CD. It is a quite rare symptom, so many doctors may not ever have heard of it if they are struggling to know much about Crohn's. It's the sort of thing that gets mentioned on "House" !
If you get bleeds from inflammation lower in the gut, I would guess - and that's all it is, it's not my experience - that you can get similar bleeding from the blisters in the mouth. Certainly, apthous ulcers don't have a reputation for bleeding that I can remember - painful, yes, but not leaking blood. (Zinc oxide on those will make them vanish - I have heard that they are a symptom of zinc deficiency, I don't know how true it is.)
For what it is worth puppylover, just last night I was researching food substances with an affect against MAP (the bacteria that is often pointed to as the main suspect in causing Crohn's) and there on the list was simple cinnamon. The research paper which mentioned it was pretty technical and made no claims, but as it is so cheap and ties in well with my low-sugar diet, I for one am going to try it. (Be aware of course, that just because it is a natural substance, it may not neccesarily lack side-effects for someone who is particularly sensitised.) I believe turmeric is another one which is well known for anti-IBD effects.

kunglao
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 3/2/2009 5:59 PM (GMT -7)   
I get blood blister and sometimes ulcer in the mouth after eating. Doctors have know idea what they are, keep telling me I bite my mouth but I dont. I know when I do bite myself.

snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 3/3/2009 3:43 AM (GMT -7)   
eyes For stupidity, there is nothing like a doctor secure in the training that makes him ignore the evidence before his eyes. nono He is doing the "right" thing and you the patient are doing the "wrong" thing. mad
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