long stricture in terminal ileum & inflammation but pain is always right under rib in center

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nightowl
Regular Member


Date Joined May 2008
Total Posts : 21
   Posted 3/4/2009 1:31 AM (GMT -7)   
any idea what's going on? no stomach ulcer on endoscopy
tried omeprozole for a week or so then
doctor thought the pain was referred pain. about two
years later thinks it is dyspepsia (I assume something
like indigestion?) or could it be IBS (is there a test for either?)

peppermint hurts to eat
and fruit juice kills
the minute i drink it
don't do caf or coffee

no other pain thank goodness as long
as i take pentassa about every 4=5 hours
and eat about every 2 hours and stay chill.

hate to go on immunomodulators if inflammation and even the stricture is being caused
by food allergies (leaky gut?) or somesuch. how to know? anyone familiar with this kind of pain? it is
not gallstone related.

crohn's diagnosis (?) two years, pentassa 4x a day, 500 mg cipro down from l,000 mg 24cm stricture
terminal ileum, never before stomach problems, on low residue diet (but sure could use help with
what that means so will not have pain and/or obstruction as do not want surgery) THANKS
THANKS.

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 3/4/2009 4:01 AM (GMT -7)   
hey owl.. i used to have the pain right there too. it seems that no matter where the stricture was at the time it always hurt the worst just under the ribs in the center.. some of my drs in the past said they dont know why it is but lots of people get that. no matter where the actual stricture is. could also be adhesions sticking to the lining. as for fruit juices hurting etc... have they ever considered you pancreas as a source of pain, like pancreatitis etc.. and to answer your other post, yes i used imuran for stricures in the past along with fistulas. did it help? i dont know. if i wasnt taking it would i have been worse? dont know that either.
randynoguts 



     http://www.geocities.com/randynogutsweb/


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/4/2009 6:18 AM (GMT -7)   
Low Residue foods are foods that your body digest easily. White bread. fish, chicken ,turkey, veggies good till soft ,banana's ,cooked friuit,ice cream, puddings ,if it is easy to chew up it is digested easier.. no nuts,corn ,seeds,hard to chew foods.. Apple juice isn't bad but orange juice is not good for me..chew foods good you will soon learn what is hard to chew and the foods will come naturally to you after awhile. I had my TI operated on it it opened up the bowels so I don't suffer anymore ,lets face it the BM's gotta come out...now most of my BM's are solid and no pain ,have about 3 good BM's a day.. no plug in there now holding back nature's job... lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/4/2009 7:54 AM (GMT -7)   
Many of us Crohnies have GERD.  I suffer much the same as you, and many foods upset my stomach.  I live on a low residue diet and that seems to help me.  I also take Prilosec.  BUT....it could be as Randy said, referred pain or adhesions.  Have you ever had any type of abdominal surgery? 
 
My pain has always been in the upper right area, just at the bottom of my ribcage.  And my Crohns was in the terminal ileum/cecum area.  I say was because that area was removed with my resections.  Hope I was able to help a little.
 
Hugs,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

nightowl
Regular Member


Date Joined May 2008
Total Posts : 21
   Posted 3/10/2009 1:09 PM (GMT -7)   
a million thanks.

just got off the CCFA nutrition web/phone cast.
They said one could eat asparagus and spinich. Another site said not to
eat spinich cooked or otherwise as it would get stuck.

Before any of you with resections, and strictures in terminal ileum had
the operation: a) how long was the stricture? b) how long had you
had crohn's c) had there been any granulomas etc. found anywhere
else in the small or large intestine and most of all

you could eat THEN,with the stricture, ANY WELL COOKED VEGGIE
or fruit with no seeds or skins??? I am dying to eat greens but am
afraid they will adhere to the small intestine and cause a blockage
etc....I am in NO pain from stricture (think the other pain is actually
not referred but something different) but don't want to upset the
cart! anyone able to eat broccoli tops? and did you eat freshly cooked
asparagus (just tops?) or just canned (again, just tops?) THANKS !!

I read in steinhart's book that tapioca and smooth peanut butter helped move
things easier so I began eating both and neither bothered me so that was
exciting as new food choices.
best part was that the tapioca (although had sugar in it) did not cause
gas and in fact when the upper pain bothered me, it seemed to quell it
almost immediately. (perhaps it is like ulcer pain and the tapioca is
acting like an antacid?!!) anyway, I figure the good is better than the
occasional sugar in it.

not sure if gerd or not. never have symptoms at night etc. seems
to happen around racing around or emotional stuff so trying to be
more mindful. also happens with the foods mentioned above so
may be IBS??? However, with stricture I sure don't have the runs.

SO: anyone

nightowl
Regular Member


Date Joined May 2008
Total Posts : 21
   Posted 3/10/2009 1:15 PM (GMT -7)   
After resections you are still on Prilosec and still on low residue
diet. are you on immuran?
I am also on anti anxiety (I think is related to below rib cage pain) and
adderol (which I think hyped up my metabolism and among other things could have been a trigger)
so, why do the resections and what happenned to do them twice?
i heard with resection you need to go on immuran or MP6 are you
or were you on either?
Gathering data. thanks so much for sharing!!!!!!
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