Donating Blood and/or Organs

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C.G.C.
Regular Member


Date Joined Apr 2006
Total Posts : 90
   Posted 3/4/2009 9:10 AM (GMT -6)   
I haven't been on for a long time, but I have a question that no one can seem to answer...I am, and have been for years, registered as a marrow donor, on my license to be an organ donor and used to donate blood before my diagnosis...have been told that it isn't possible any more but can't find any definitive answers anywhere...does anyone know if I should remove myself from these banks? I am not currently having symptoms. Don't want to spread anything to anyone else though. Thank you in advance for any information...
Carleen..
 48 year old female diagnosed in Feb '06. In remission right now but BAD reaction to Asacol so hope it lasts a long time. Allergies to ragweed, cats, dust, cigarette smoke and other random things. On Wellbutrin, Nexium. Take lots of vitamins...


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 3/4/2009 9:26 AM (GMT -6)   
Well, Crohns is not contagious so you can't give it to anyone by blood donation. I know a lot of doctors discourage Crohns patients from donating blood, largely I think because we tend to be anemic anyway. Also, I suspect some of the medications used in Crohns -- remicade, immuno-suppressants and of course steroids -- are among those that blood banks have on their "do not take" list. Overall I suspect the "don't donate" decisions are more about our overall health, and I recall seeing some posters here in the past say they can and have donated.

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 3/4/2009 1:14 PM (GMT -6)   
I also used to be a blood donor but was told by several people with Crohn's that we aren't supposed to donate.  I agree with MikeB that it's probably due to the fact that many of us are anemic and already lose blood in our stool, etc.  I'm not anemic nor do I have blood in my stools, so I looked into it a while back but couldn't find a definite answer on if it was safe for us, but the meds I'm on ruled me out.  The American Red Cross used to have a list online saying what meds ruled you out...try looking at their website.   

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 6816
   Posted 3/4/2009 1:18 PM (GMT -6)   
Blood donation restrictions/criteria vary across the country, and sometimes within regions of a state. Regarding organ donation, at the time of your demise, your medical history in all likelihood will be known by the staff caring for you. Therefore the organ "bank" will have the option of selecting your organ or not. I am certain something like a cornea would clearly carry no risk. I don't know about marrow donation. I would think if you come up as a match for someone, that the medical pros of theperson needing the donation would make the decision about risk etc before allowing going forward.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 667
   Posted 3/4/2009 5:23 PM (GMT -6)   
I'm on remicade and am allowed to donate blood in NY and do so on a fairly regular basis. From what I have read on a few marrow donation sites the use of immune suppressing drugs prohibits you from being a marrow donor.
Jodi

Remicade and 6MP


C.G.C.
Regular Member


Date Joined Apr 2006
Total Posts : 90
   Posted 3/6/2009 9:15 PM (GMT -6)   
Thank you to all who responded. I wasn't sure what the reasons were against donating. I appreciate clarification....
Carleen..
 48 year old female diagnosed in Feb '06. In remission right now but BAD reaction to Asacol so hope it lasts a long time. Allergies to ragweed, cats, dust, cigarette smoke and other random things. On Wellbutrin, Nexium. Take lots of vitamins...


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 3/7/2009 8:20 AM (GMT -6)   
I've been taken off the bone marrow list.
There is a number on your card,call it and
tell them your meds.Remicade for sure gives
you the boot. What I did was try and replace
myself with someone else...
diagnosed 1981
remission until 2006
Remacade,resection
B-12,Pentasa,Loperamide,
Entocort, 6mp,Hydrochlorothiazide
Remission since surgery
and 8-week Remacade.
d since 1981(enjoy the look
on Dr's faces)


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/7/2009 10:05 AM (GMT -6)   
In Massachusetts, I was told I couldn't donate blood because of 6MP. I do have organ donation on my drivers license, but who knows what they would do after I'm gone.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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