Any of you Crohnies have MS?

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vandygrad97
Regular Member


Date Joined Nov 2003
Total Posts : 66
   Posted 3/5/2009 7:36 PM (GMT -7)   
Hi friends,
 
I haven't posted in ages since my Crohn's disease has been in remission, but I am wondering if any of you have multiple sclerosis as well?  I have been diagnosed with probable MS from a wonderful group of doctors at Johns Hopkins and am going back this month for 3 more tests.  My MRI showed evidence of 9 abnormal lesions and I've been having the classic symptoms: blurred vision, dizziness, numbness/tingling, sensation issues, weak muscles, etc...I also have a Vitamin B-12 deficiency that can cause these symptoms.  Do any of you suffer from both, and if so, how do you function?
 
Thanks,
Vandygrad97
We are the music makers, we are the dreamers of dreams. . .
 
Diagnosed at age 26 with small bowel Crohn's disease; also have enteropathic arthritis, fibromyalgia/myofascial pain syndrome, gallstones and gallbladder removal, kidney stones,erythema nodosum, eye inflammation, hiatal hernia, GERD, lactose intolerant, migraines, Vitamin B-12 deficiency
 
Waiting on probable Multiple Sclerosis diagnosis from Johns Hopkins-abnormal MRI containing 9 lesions, experiencing headaches, blurred vision-possible Optic Neuritis, dizziness, numbness/tingling, vibration sensation while resting, muscle weakness, Vitamin D deficiency
 
Medications: Pentasa, Nexium, Salsalate, Lactose pill, Tramadol


AB crohnie
New Member


Date Joined Oct 2008
Total Posts : 17
   Posted 3/6/2009 8:25 AM (GMT -7)   
Hi Vandygrad! No I do not have MS but my mom has Devic's Disease. It is easily confused with MS. If your doctors think that you have optic neuritis, are you being tested for the NMO antibody? They take spinal fluid and send it to the Mayo clinic to be tested. Please make sure that they do this test. The treatments for MS and Devic's are completely different. And some of the medications for Crohn's and Devics are the same. Your symptoms sounds a lot like my mom's. Please check it out!
Diagnosed on my birthday in April. Happy birthday to me!!
Currently on Imuran and Pantoloc and various vitamins
Surgery in October for resection, feel great now
Tried Pentasa and Prednisone


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 3/6/2009 8:50 AM (GMT -7)   
Is MS associated with Crohns?
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


AB crohnie
New Member


Date Joined Oct 2008
Total Posts : 17
   Posted 3/6/2009 12:57 PM (GMT -7)   
I am not sure if they are related but are both autoimmune diseases. I don't know much about MS but I do know quite a bit about Devic's. Imuran and Methotrexate are both used in either case.
Diagnosed on my birthday in April. Happy birthday to me!!
Currently on Imuran and Pantoloc and various vitamins
Surgery in October for resection, feel great now
Tried Pentasa and Prednisone


otto_immune
New Member


Date Joined Mar 2009
Total Posts : 2
   Posted 3/7/2009 2:58 AM (GMT -7)   
I was diagnosed with Crohn's in 1997 and was on Pentasa for about two years. I was diagnosed with MS (no spinal tap, MRI) in 2006 and have been fighting both diseases since then.
The stress of my wife leaving me (three months after diagnosis) the loss of my family and everything I had worked for my whole life, my mother and my brother battling Cancer, along with the stresses of my job has almost been too much.
By the grace of God, so go I.

Dealing with an auto-immune condition is tough, but it also becomes more difficult when it advances into another form. We all must fight the good fight.
Take care, "auto immunies" and God Bless
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