Fistula issues... again

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/5/2009 8:11 PM (GMT -7)   
Hi everyone, it's been a while since I've actively posted.  I am worried now that my fistula is abcessing again.  I had to remove the seton a year and a half ago for the Prochymal trial.  It's stayed open and drainging the whole time.  (Of course I wish it would close, but only if it closes on the inside first!)
 
Lately I've been having more pain, low-grade temps (up to 100 but mostly 99.5-ish) and terrible night sweats all over again.  It finally dawned on me that I was no longer draining...
 
I am starting Xifaxan today.  I also started Cimzia 3 weeks ago.  Hard to tell how responsive I've been to Cimzia considering all of the above, but I think "regular" symptoms are getting a little better. 
 
My fear is how long do I have to hope the Cimzia and Xifaxan kick in before the fistula creates a new tract?  It's so close to the vaginal opening I am terrified of an a-v issue.  It's re-routed once before.  I am wondering if I am better off to get in and get it lanced immediately or give the other meds a week to help.
 
Of course I will call my surgeon.  I have an appt with my GI but it's 2 weeks from now.
 
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 - now 2 months into it & it was the right decision
--currently taking budesonide suppositories, 3mg at night.  SLIPPING big time.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 5:56 PM (GMT -7)
There are a total of 2,733,258 posts in 301,097 threads.
View Active Threads


Who's Online
This forum has 151238 registered members. Please welcome our newest member, ejc61.
335 Guest(s), 14 Registered Member(s) are currently online.  Details
martha, bluelyme, MustangSally52, Lymepilot, Artist Mark, Lilyblues22, Scaredy Cat, 142, jabele, wearyRAsufferer, k07, Tall Allen, julymorning, Graytech


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer