cimzia versus humira versus Remicaid

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hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 3/5/2009 9:53 PM (GMT -7)   
I have been on Humira for over a year....almost zero improvement....
 
doc says time to move to Cimzia or Remicaid
 
any thoughts?  I know many of the issues with remicaid...what about Cimzia?
 
Thanks
dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose one shot every week. Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
 Crohns is currently active and has been since April of 2005
52 yrs old


hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 3/6/2009 7:20 AM (GMT -7)   

Kasper...thank you,

 

With the cimzia   did you self inject?  if so was it w/ a reg subQ set up or do they offer the pen.  The site says it is to injected by a nurse in the office....but I could swear my gastro said i could do it at home.

I am with you on the infusions....did them for 2 years while on Tysabri.....besides the Rem is IMO pretty cuastic stuff and I am not sure I want to go there.


dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose one shot every week. Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
 Crohns is currently active and has been since April of 2005
52 yrs old


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/6/2009 7:22 AM (GMT -7)   
Hspenser are you flaring already? I sure hope not, I know you just had surgery.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 3/6/2009 7:36 AM (GMT -7)   

Thanks for the concern Nanners.....but yes I continue to have issues.   The surgery never really fixxed everything, just the major issue of the small bowel.  They found areas of concern in the large intestine when they took it out and looked it over....but surgery was not required.

Went back in yesterday for a colonoscopy and things were not good....two strictures...ulcers...the works.  Things have gotten worse not better they said.  So now we are sure that the Humira is useless (for me) and it is time to try something else.  I know it sounds crazy that i am extremely concerned about remicaid but not to concerned to go back on Tysabri....but I know Tysabri works.   I do not know anything about Cimzia....when I left the clinic yesterday the doctor said I should study up on both and let him know what I wanted to do....I go back to see him in 2 weeks so I am getting my information ducks in a row.

Again, thanks


dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose one shot every week. Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
 Crohns is currently active and has been since April of 2005
52 yrs old


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 3/6/2009 8:55 AM (GMT -7)   
That sucks Hspenser, I thought you were doing alright. The doc says no to Tysabri? I know about the PML risk, but it's a very small one, isn't it? I wouldn't sweat the remicade, if you react to it they'll just take you off it and that's that. Cimzia is injected at your residience by a home health nurse I believe.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira. 25mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/6/2009 9:39 AM (GMT -7)   
Aww I am sorry that you are having continuing problems:( I sure hope they find a med that works for you and gets you back on the road to feeling well.

Hugs,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 3/6/2009 11:13 AM (GMT -7)   
hspenser, Cimzia is going to be more like Humira in terms of convenience, etc.  I personally would never go back to Remicade, even if I could, but I know there are some people who would much rather have an IV than a shot, so it's a matter of preference.  I know my insurance treats Cimzia and Humira the same, as far as I have to pay a co-pay and it's treated as a medication.  Back when I was on Remicade, they billed it through insurance like a procedure and I had to pay my co-insurance until I hit my out-of-pocket max for the year.  I think a lot of doctors used to prefer to try Remicade before the others, but if you've already been on Humira and your doctor doesn't have a preference, then it's really up to you.  Cimzia and Humira are going to have more of the same side effects (injection site
reaction was my worst one vs the bad allergic reactions I had to Remicade).  But, it's really just a matter of personal preference and financial differences.  Good luck! 
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 3/6/2009 2:07 PM (GMT -7)   

Thanks all...good information, but even better support.

Rider:   My doc has not said no to the Tysabri....but he has said he will not be the one to oversee its application.  He would prefer that I go back to the doctor who originally administered the testing phase when I was on it.  He said that about a year ago...maybe he has changed his mind with the passage of time.


dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose one shot every week. Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
 Crohns is currently active and has been since April of 2005
52 yrs old

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