Humira .... Last Resort? Advice Please

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evs 89
New Member


Date Joined Nov 2007
Total Posts : 16
   Posted 3/7/2009 3:50 AM (GMT -7)   
Well i went for my fourth remicade infusion yesterday in high spirits, it had taken me into complete remission and i had almost forgotten that i had the dreaded disease. the past two years have a been a test of my resolve, and i thought id found the thing for me with remicade.But i had a sever reaction yesterday - my face neck and arms started swelling, shortness of breath, heart racing - and i was told i can no longer have the treatment. shakehead
 
So my last resort seems to be humira, my GI is attempting to get me on humira as soon as possible. I've been on asacol, azathioprine, colazol, high doses of pred and remicade, all which have not been successful.
 
I'd love to hear everyone's experience with humira, and the results they have had with it. I'm grateful for the break the remicade gave me from the pain that i was in, but now i've acheived remission i dnt want it to be a brief thing.
 
Thanks in advance for your advice :-)
 
Matt

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 3/7/2009 7:06 AM (GMT -7)   
I switched to Humira after 6+ years on Remicade. In my experience, it took a little longer to "kick in". But it did start to work after the first 6 weeks or so. It's not holding me as well as the remicade did, but it's doing great. I hope it works for you. It sounds like you have a better chance of it working faster because you weren't on remicade for very long. Sorry that you had a reaction. I really hope the Humira does it for you!

patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 3/7/2009 3:39 PM (GMT -7)   
You also have the option of Cimzia. It is also a TNF blocker, like Remicade. Some people say you "must" fail Humira before "they'll" approve your for Cimzia, but I'm sure if you pushed hard enough you would have that it as an option as well. I know of at least 2 other people who found ways to "skip" the Humira, so it has to be possible.

I, personally, am a ninny and could not handle giving myself the Humira shots. When I didn't notice results, and actually got worse after starting the Humira, I freaked and stopped it. I just reached one of those "breaking points" I guess. Remicade never freaked me out, but for some reason I just could not handle the Humira.

I have since started Cimzia. I like that the nurse comes to my house to give me the shots and I am not "responsible" for them, nor is my poor hubby. I'm not sure if it's working yet, as I am still on the 'roids, but I will know soon. So far the only negative side effect was very like Remicade in that I was very tired for a few days after my loading doses...

Good luck with your decision...
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
Noticing a real difference with a Gluten-Free diet.
Currently on:
Cimzia (loading doses 2-12-09)
Probiotics, Digestive Enzymes, and Prednisone


Beth
Regular Member


Date Joined Aug 2003
Total Posts : 303
   Posted 3/10/2009 1:56 PM (GMT -7)   
I had the same reaction to Remicade and am now on Humira. I've had the same (excellent) results from both. I haven't had a flare in 2 1/2 years.
Beth
 
Dx in early 1999
Resection in June 2006
Currently on Humira
 


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 3/10/2009 3:22 PM (GMT -7)   
I had the same reaction to Remicade, too, and have been on Humira for over 2 years. Within 3 weeks, I was normal again and eating. Flare free since.

I'm one who is scared to death of shots but this is really not a big deal.
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