Craving for food!

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colin84
Regular Member


Date Joined Feb 2009
Total Posts : 33
   Posted 3/8/2009 8:49 AM (GMT -7)   
Hello everyone

I am now into day 13 of the Modulen regime (no food eaten since Tuesday 24th February....)

I am really struggling today as I am craving food. I am on 40mg of Prednisolone which isn't helping. I feel so much better sicne starting the modulen - all crohns symptoms have gone but today I am desperate to eat!

Not really sure what I aim to achieve by posting on here but hoping if I type I may forget about food!
 
What I would give to have something different to Modulen today. Even soup would taste soooooooo good!. The thought of possibly another 6 weeks is not good! It is working so I know I must stick to it but boy am I finding it hard today!
24 year old male from London
Crohns since 2002, Colostomy in 2002 and Small Bowel Resection 2005
Have tried Infliximab (Remicade) and Adalimumab (Humira)
Numerous spells on Prednisolone 40mg, Suspected Abscess in June 2007 - treated with antibiotics
Flare up in Feb 09 resulted in 2 week hospital stay
Now out and on Modulen - no food for ideally 8 weeks ARGH!!!!!
Also on Azathioprine 125mg
 


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 3/8/2009 8:57 AM (GMT -7)   
Since the Modulen is working, could you start tapering the steroid? Based on some small studies, when someone responds to enteral nutrition (the liquid diet), using steroids along with it isn't any more effective than using enteral nutrition alone. RE sticking with it, just think about it this way, you may have found something that works well enough for you that you can avoid using steroids in the future -- that would be worth managing without food for a bit. In the meantime, maybe going for a walk, or doing something you enjoy to give yourself a non-food treat?

cutie
Regular Member


Date Joined Jan 2009
Total Posts : 80
   Posted 3/8/2009 8:58 AM (GMT -7)   
When I was on a feeding tube for 6 weeks the nurse gave me these flavored swabs. If I remember correctly they were lemon flavored. They seemed to help--and I also tried to stay away from food smells, took very long showers, and rubbed lotions or anything else I thought smelled good!! Hope this helps you!
age 41,diagnosed with CD in 11/07, Rx Pentasa 4000mg and Remicade.


colin84
Regular Member


Date Joined Feb 2009
Total Posts : 33
   Posted 3/8/2009 10:00 AM (GMT -7)   
Thanks for the messages guys. I am seeing my consultant a week on Tuesday and will ask to start to come off the steroids. I have only just come out of hospital after a nasty flare so don't want to do anything that may result me going back in!

Decided to do some retail therapy to take my mind off the food and about to buy a plasma tv - think I deserve a treat!
24 year old male from London
Crohns since 2002, Colostomy in 2002 and Small Bowel Resection 2005
Have tried Infliximab (Remicade) and Adalimumab (Humira)
Numerous spells on Prednisolone 40mg, Suspected Abscess in June 2007 - treated with antibiotics
Flare up in Feb 09 resulted in 2 week hospital stay
Now out and on Modulen - no food for ideally 8 weeks ARGH!!!!!
Also on Azathioprine 125mg
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/8/2009 10:14 AM (GMT -7)   
Hi Good luck with your modulen program ..seems like a long time to me to go with but the TV sounds good.. giving yourself a little reward might help.. let us know how you are doing.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 3/8/2009 11:26 AM (GMT -7)   
Can you chew ice? Are you allowed teas? They come in many flavors.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 3/8/2009 12:00 PM (GMT -7)   
Are you allowed to suck on hard candies? How come you are on a Modulen diet? What were your symptoms? The best of luck to you! Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg three times a day, 1mg at bedtime (for anxiety attacks)
 
 
 
 
 


colin84
Regular Member


Date Joined Feb 2009
Total Posts : 33
   Posted 3/8/2009 2:48 PM (GMT -7)   
I am allowed to suck ice but not allowed teas. All i am allowed is the Modulen and plain water....

I am on Modulen due to running out of options. Colostomy in 2002 which sorted out the crohns in the rectum. Then it moved to my colon and i had stomach pains, d and severe fatigue. Small bowel resection in 2005 and the next day i had exactly the same stomach pains followed by months of fatigue and d. Went on infliximab which worked for a while but soon wore off. Then went on Humira which didn't work at all. Have been on azathioprine (Imuran), Asacol and predisolone at various time. Pred is only thing that seemed to work but in mid Feb I had a huge flare which left me in hospital. At the time I was on 30mg of pred which is a lot for me so that seems to have not worked.

My consultant then said he wants to try Modulen as this has been proven to work if patients stick to it. As I have exhausted everything apart from further surgery (which I am wary off having been told before the resection that it would make me feel better) I am giving it a good go
24 year old male from London
Crohns since 2002, Colostomy in 2002 and Small Bowel Resection 2005
Have tried Infliximab (Remicade) and Adalimumab (Humira)
Numerous spells on Prednisolone 40mg, Suspected Abscess in June 2007 - treated with antibiotics
Flare up in Feb 09 resulted in 2 week hospital stay
Now out and on Modulen - no food for ideally 8 weeks ARGH!!!!!
Also on Azathioprine 125mg
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/8/2009 3:57 PM (GMT -7)   
Stay strong, Colin. I know it's hard, but once you get over this "hump" I think things will get easier.

Ivy.
Co-Moderator Crohn's Forum.


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/8/2009 4:30 PM (GMT -7)   
I've gone through periods where I've been unable to eat (I've never HAD to), and I know what you mean by cravings. I get strange cravings for foods I haven't eaten since I was a child, along with just about everything else on the face of the planet. Stay strong, it won't be hard like this every day :) Before you know it, the 6 weeks will be over and you'll appreciate food that much more after not being able to eat for so long. I hope everything goes well! Good luck :)
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