Colonscopy prep - Advice needed!

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Valerie3
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Date Joined Feb 2009
Total Posts : 529
   Posted 3/8/2009 1:11 PM (GMT -7)   
So as some of you know, I was just diagnosed with Crohn's about a month ago, but it was done through a barium enema. My colonscopy is scheduled for Tuesday, so tomorrow I have to do the dreaded prep. Last time I did the prep, I took Pico-Salax, which I've heard is the easiest to take (I'm not sure if they mean to drink, or easiest on your system). However, I threw it up immediately after taking it so took about another 1/3 of a glass of it to try to counterbalance me not keeping it down. After about 30 minutes, I had pain so bad I was in tears and thought I was dying, dizzy, chills, fever, vomiting, and so on. The effects lasted for almost 6 hours for me on just the first glass, so I was unable to do the second. Luckily, it cleaned me out well enough to do the test, but I'm afraid of repeating that experience.

After I got the results of my barium enema, I was finally referred to a G.I. She started me on Pentasa which has sort of worked... it has improved my nausea a lot, and my pain occurs less often, but tends to be more intense when I do get it. No D either! Anyway, she scheduled me for a colonoscopy just be sure and take biopsies. I told her about my prep experience (neither her or the radiologist really reacted to it when I told them). She told me that she was originally going to suggest that I do the Pico-Salax, but she told me that I could try Golytely instead, but because of my small size, start it at 10 in the morning instead of at 4 PM. She also told me to take some Gravol before, to help with my nausea. She said that if I couldn't finish more than half of the prep, to take one envelope of the Pico-Salax instead of two.

So basically, I have heard a lot of really bad things about Golytely. Due to my size (I've gained a bit of weight back since I can eat again, but I'm still hovering somewhere between 90 and 95 lbs) I am worried about the large volume, and of course, I am not very thrilled about the prospects of drinking something that apparently tastes as bad as Golytely does. What I am wondering though, is if Golytely is even easier on the system? I am worried that if I reacted so badly to Pico-Salax, I may have an even worse reaction to the Golytely.

I am considering just doing the Pico-Salax prep, knowing what to expect this time, and hopefully not having to take an extra amount from vomiting. Part of me wonders if the extra 1/3 of a cup that I took was what made me react so badly in the first place.

I am just wondering what everyone here would do. Would you take the good-tasting prep that you reacted to badly once already and just suck it up, knowing what to expect at worst this time, or would you take Golytely and suffer through the bad taste and large volume, still having the possibility of having just as bad (or worse) of a reaction.

Thanks!

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/8/2009 1:39 PM (GMT -7)   
The gravol will probably help some with the vomiting. If you have both in the house you can try the Golytely and see if you can tolerate the taste and if not then just proceed with the Pico-Salax. A few things I have found that help are to hold my nose while swallowing. If you can't smell something, you can't taste it as much. You might look a bit funny, but really, who cares. And have some very flavorful hard candy to suck on to change the taste in your mouth. Also try Popsicles to freeze your taste buds a bit before swallowing each glass, just not red.

Is there any chance you can get your GI to Rx one of the pill preps? I know you are suppose to start in the morning, but can you call first thing and see about getting a change of prep. I have done so many preps that I can't even think about them with out starting to gag. I will NOT do any preps except the pills. Some GI's don't like the pill preps because they can irritate the intestines, but really, don't they all. They are toxic substances. I swear most GI's won't even mention that there are pill preps available, but if they had to actually DO the preps, they would be all for them. The ones I have done are Osmo-Prep and Visicol, but there may be others, or generic available.

I will be sending good wishes your way (((hugs))))
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/8/2009 1:46 PM (GMT -7)   
Yeah, my hope is that the gravol will at least help me keep it down so I'll have one less symptom to deal with.. I've been vomiting less in general anyway, so I'm not really too worried about that. My G.I. is actually on vacation until Tuesday, which is why I had to wait to get the test done, so that option is a no-go too. I wish I had asked though, I'd rather take pills than the liquid any day.
I will definitely pick up some popsicles. I also heard that you can mix the Golytely with Gatorade or Crystal Light somewhere, not sure how much it helps though...

Do you know if Golytely is any easier to tolerate? I'm not sure if it would logically have less side effects or not, considering it's such a huge volume, it may be easier on the system, but it isn't from what I've heard. I think my biggest concern is that I'd react even worse to the Golytely than to the Pico Salax, especially considering that the extra 1/3 of a glass I took last time could have been the reason why I reacted so badly..no one ever told me why it happened.

I was also sort of wondering if it could have had something to do with my size - maybe I should only take 1/2 a glass of Pico Salax at a time due to my weight? I'm pretty run down at the moment. It says for children 12 and under, to only drink 1/2 a glass at once of it, and I'm just about the size of a 12 year old, hah. I don't know!! I'm also wondering if I could do half a glass at a time, but 2 hours apart instead of 4. I don't know if it would still work if I did that, but if it did, it MUST be easier on my intestines.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 3/8/2009 2:15 PM (GMT -7)   
The volume of Golytely is nor more than the volume of clear liquids one must consume after the two sachets [ envelopes] of Picosalax. Yes, it is kind of nasty tasting plain, but my pharmacy put a flavoring in it. Still not the best tasting stuff, but I could get it down if it was really cold and I used a straw. My last scope I used Fleet phospho soda prep and I got very ill. That stuff messed up my electrolytes.

Good luck with your prep!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/8/2009 3:47 PM (GMT -7)   
Hi I used the pico to and it wasn'y so bad because I knew it was just one glass then I drank a glass of water every hour..Maybe as you say you might not mind it so much now ...I just drink it and get it over with .. Zanne has a good idea there..good luck and let us know how you do.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/8/2009 3:47 PM (GMT -7)   
Hm, I wonder if that was my problem with the Pico-Salax. I didn't drink anywhere near 4 litres of liquid, I drank probably closer to 1 (this is what worries me, I have a really hard time drinking large amounts of liquid). Could that have caused me to have more severe side effects, do you think? Maybe it was just a matter of me not keeping properly hydrated.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/8/2009 4:21 PM (GMT -7)   
Hi I mixed the pico with one glass of water then I drank it and some clear water then after that a glass every hour.. It might be better then trying to drink alot of water at one time.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/8/2009 4:26 PM (GMT -7)   
I'm going to buy the Golytely and start it at 10 am as my doctor suggested..If I start to react badly (at least as badly as I did to the Pico Salax), I'll stop right away and switch to the Pico Salax and hope that it won't be as bad as last time if I stay hydrated.

I was just really scared last time, I almost had to go to the ER (I was nearly being dragged out of my house). My grandmother died from being given the wrong bowel prep a few years ago (I don't know which one), so it really scared me and my family because I've never been that bad because of anything in my life. Hopefully this time it'll go better because even if I react badly, I'll know that I pulled through it last time with no long lasting effects.

pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 3/8/2009 4:49 PM (GMT -7)   
Good luck Val...
You have a good plan...
You should be fine...
diagnosed 1981
remission until 2006
Remacade,resection
B-12,Pentasa,Loperamide,
Entocort, 6mp,Hydrochlorothiazide
Remission since surgery
and 8-week Remacade.
d since 1981(enjoy the look
on Dr's faces)


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/8/2009 5:52 PM (GMT -7)   
Thanks! I just got back from the pharmacy, it took me AN HOUR AND A HALF of driving around to different pharmacies to look for it.. Every one I went to carried it, but was out of stock. I ended up getting the Colyte, it says it's flavored on the jug. Hopefully it goes OK! I'll let you guys know how badly I react to it tomorrow, haha. It actually smelled similar to the Pico-Salax though to me , which surprised me a bit.

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/9/2009 10:07 AM (GMT -7)   
The Golytely tasted way too disgusting for me to drink. I knew there was no way I'd be able to finish it after about 3 glasses so I took the Pico-Salax instead a few minutes ago.. Hoping it'll go better than last time. I only took about 3/4 of it this time as an experiment, if it works well like that I'll do the same for my second satchet of it. I'm hoping taking slightly less of it will help to avoid what happened last time. I know they say 1/2 a satchet for a 12 year old, so I figured 3/4 would be good for someone my size. The Gravol is working wonders though, I wanted to throw up after taking the Golytely and it didn't seem to want to let me, hah.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/9/2009 2:24 PM (GMT -7)   
I'm glad things are going better for you than last time. Prep day is the worst!

Sending you good thoughts!!!!
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/9/2009 2:52 PM (GMT -7)   
It's really going smoothly this time. I managed to take a nap and when I woke up, things finally started moving, but I've only had 2 liquid BMs and 2 solid ones all day. (It's been 6 hours since I took the Pico Salax). No pain whatsoever though, other than being a bit sore, so I'm really glad that I didn't force down more of the Golytely stuff, haha. I'm not being cleaned out anywhere near as fast as last time though, last time after 6 hours everything was clear, but it also started working much quicker. I'm just hoping it cleans me out well enough!

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 3/9/2009 3:46 PM (GMT -7)   
The best of luck to you, Valerie! Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg three times a day, 1mg at bedtime (for anxiety attacks)
 
 
 
 
 


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/10/2009 10:43 AM (GMT -7)   
Thanks for the support everyone :) The cleanout didn't go as well as I expected, I was still not totally cleaned by 1 in the morning and I had to get up at 5 to drive to the hospital, so I just hoped for the best, haha. Not sure why it didn't affect me as much as last time, but it was good enough because I was able to complete the colonoscopy successfully. I was so nervous about getting the IV, I had never had one before. It was weird though, because the Versed and Fentanyl did absolutely nothing for me, and apparently they gave me a really strong dose. I was 100% alert and normal throughout the procedure and after it was over. Apparently I'm getting a little bit better, but my ileum still looked pretty bad to me. I'm going back in 2 weeks once the biopsy/blood test results are back (I had blood tests today for my Iron/CBC/B12/Cholesterol/Triglycerides/Liver function and about a million others). She wants to start me on blood transfusions most likely as well. I told her about all my nasty side effects I've been getting from the Pentasa too, and she seemed pretty concerned. Luckily she wants me on Entocort instead anyway, so hopefully I'll get less side effects on it than on the Pentasa. One thing that concerns me a bit is that I have tachycardia pretty much all the time - my resting heart rate tends to be in the 130+ range. Hopefully that'll change! lol. All in all though, not as bad as I expected at all, the procedure went pretty smoothly, the only pain I felt was from the air really. I definitely won't be nervous next time!

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/10/2009 1:04 PM (GMT -7)   
I'm glad it went well for you and it is all over. Strange how the meds affect us all differently. I'm relatively small too and I need the maximum amount of meds and it barely makes a dent. I'm usually wide awake. Last time I was beside a 300lb man who had half as much medication and was snoring like a truck, while I argued with the nurse to please just let me have my book so I could read. She insisted that I must be tired and why didn't I take a nap!
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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