Question About Imuran

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MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 3/8/2009 5:00 PM (GMT -7)   
Ive been on Imruan for about 4 weeks now, I havent had really any side effects.  The first couple nights that I took it I did feel like I was going to throw up, but now I dont get the feeling anymore.  Im only on 50mg, my question is I take it at night, and when I wake up in the morning I dont have any D, but mid morning the D starts and continues until I take it again at night.  Im wondering if I should talk to my doctor about upping the dose, or what.  Really all the medications for Crohns scare me to death, to think of all the side effects they can cause is crazy, especially at my age.  But for anyone thats over 50mg, do you take it all at once? Or do you split it up.  When you first started, did you notice that it wore off throughout the day or is it just me?  Thanks!
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Humira (bi-weekly)
 

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 3/8/2009 5:17 PM (GMT -7)   
I'm also considering Imuran, I was on it about 5 years ago for maybe a month. I did not have any side effects from it at all.I see that you are also on Humira, Is it not working and that swhy they want you to go on Imuran?
I see that you had 2 resections already, where is your Crohns?
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 3/8/2009 6:05 PM (GMT -7)   
Ive actually stopped taking the Humira (I need to update that).  Humira didnt do anything for me but give me the WORST joint pains Ive ever had, I could barely stand, I felt like I was 90 yrs old.  My Crohns is all in my small intestines, and a tiny bit in my colon.  Yeah, Ive had 2 resections already, my GI is very concerned with that fact because I am only 22, so we are doing trial and error right now to hopefully find something to put me into remission (Ive never been in remission).  Btw, I also have a Chocolate Lab, her name is Abby :)
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Humira (bi-weekly)
 

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 3/9/2009 6:13 AM (GMT -7)   
I think they check after you have been on it for 6 wks. Have them do the prometheus propredict metabolite test (I'm pretty sure that is what it is called). It shows you if you are in your theraputic level without toxicity. I was on imuran for 3 yrs., and I needed to be on 200 mg to reach my theraputic level. And I could really tell a difference in how I felt and my symptoms, so you really need to make surethat you are taking enough to do you good. We kept upping mine and then rechecking with the prometheus test. I did take it all at once, at night.

catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted 3/9/2009 11:39 AM (GMT -7)   
My GI just increased my dosage from 50 mg to 100 mg, and he instructed me to take both pills at once. Based on your weight, you should have a maximum dosage that your body can tolerate. My doc said my tolerance is 100 mg. He started me on 50 mg just to make sure my body could handle it, and once the blood work showed I was ok, he increased the dosage. (I get weekly blood work for the first month of being on it, then biweekly blood work for a few months thereafter).

I've only been on it for a few weeks, and it hasn't helped my symptoms yet. Hopefully it will soon! I can relate to being terrified of the side effects.
Diagnosed with Crohn's Disease; Meds: Entocort & Asacol; female in late 20s.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 3/9/2009 4:44 PM (GMT -7)   
MAG102886 said...
Ive actually stopped taking the Humira (I need to update that). Humira didnt do anything for me but give me the WORST joint pains Ive ever had, I could barely stand, I felt like I was 90 yrs old. My Crohns is all in my small intestines, and a tiny bit in my colon. Yeah, Ive had 2 resections already, my GI is very concerned with that fact because I am only 22, so we are doing trial and error right now to hopefully find something to put me into remission (Ive never been in remission). Btw, I also have a Chocolate Lab, her name is Abby :)



Thats to bad that you've had 2 surgeries already. I wish all the best and I really hope that you can get the disease into remission soon. You've got a long life to live yet and I hate to see young people suffer there whole life not knowing what being healthy is.
Live,Love and Laugh!!!!!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

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