Two Humira related questions

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mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 3/8/2009 8:29 PM (GMT -7)   
Hi all,

1) When I started my Humira, the nurse told me the doctors would order blood tests every 3 months or so to keep everything in check and watch out for signs of lymphoma. I began Humira in October and haven't been back to the GI since--they haven't made any effort to make an appointment or tell me I need to come in. I haven't had any blood work done since the summer. Should I call to schedule some?

2) I was supposed to take my Humira tonight, but can't find any alcohol swabs! Grr, I'll have to do it tomorrow evening, then. I'm know one day won't make a difference but for future reference, how long can you be between shots before the effectiveness of the medicine starts diminishing?

Thanks!
20 y/o, diagnosed 6/2007. On Humira, no wheat or corn syrup, low sugar, low dairy.


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 3/8/2009 9:04 PM (GMT -7)   
1. Yes, I would go ahead and call. I have a standing appt with my GI every 3 months or so and we run labs usually every visit or every 2 visits. Since you haven't run labs since starting, I would call and arrange to have them done.

2. In my exp, I've been fine doing it within a few days window. If I go more than 3-4 days late, I start having issues but as soon as I do the shot, I'm usually right back to normal.

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 3/9/2009 10:10 AM (GMT -7)   
I've been on Humira since July and have only had labs done once, I think.  My GI just likes to do them every other appointment or so, which are usually about 4 months apart.  But, most of what you read says you should have them more often, so it wouldn't hurt to call your doctor's office and ask. 
 
mkl11, does your Humira not come with alcohol swabs?  The boxes I receive already have alcohol swabs in them.  My shots only work for about a week and the second week I can really feel each day that it's wearing off more.  I've inquired about weekly shots but my docs 9both GI and rheumy) say they can't get them approved by insurance for more than bi-weekly.  But, I don't understand because a lot of people get them weekly. 
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 3/9/2009 2:49 PM (GMT -7)   
ZenaWP said...
I've been on Humira since July and have only had labs done once, I think.  My GI just likes to do them every other appointment or so, which are usually about 4 months apart.  But, most of what you read says you should have them more often, so it wouldn't hurt to call your doctor's office and ask. 
 
mkl11, does your Humira not come with alcohol swabs?  The boxes I receive already have alcohol swabs in them.  My shots only work for about a week and the second week I can really feel each day that it's wearing off more.  I've inquired about weekly shots but my docs 9both GI and rheumy) say they can't get them approved by insurance for more than bi-weekly.  But, I don't understand because a lot of people get them weekly. 

I would push back on the weekly Humira. I went to weekly awhile back and it was a nonissue. GI faxed over new script and it was filled, no questions asked.

mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 3/9/2009 4:34 PM (GMT -7)   
thanks aimee and zena! might as well go ahead. i was hesitating at first because those co-pays add up, but as long as the labwork is normal i'm guess i won't need an appointment.

zena--yes they do but the second one disappeared! this was annoying to find out at 11 pm...oh well, i picked some up today.
20 y/o, diagnosed 6/2007. On Humira, no wheat or corn syrup, low sugar, low dairy.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 3/9/2009 5:54 PM (GMT -7)   
I started Humira last July (I hadn't seen my GI since May), and didn't see my new GI until 2 weeks ago. My hematologist does a CBC on me every 2 months though, so hopefully that's good enough.

My Humira always has alcohol swabs packed in with it. I usually do injections on a Saturday, but at times have had to do on a Sunday without issue.

kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 3/9/2009 6:38 PM (GMT -7)   
When I got my loading doses, the nurse told me that cleaning with soap and water was fine and that I didn't need to use an alcohol swab. I was surprised and later asked a friend who is a nurse and she said that it was true. She told me that if I did use the alcohol to wait at least 30 seconds for the alcohol to dry. I haven't used an alcohol swab once, just good old liquid Dial and warm water! I figure it must be ok because I know alot of diabetics who don't swab before pricking their fingers or arms, they just wash up first!
diagnosed w/Crohn's 11/06. 35f with 2 boys and a wonderful husband. 150 mg Imuran, bentyl, entocort, vicodin as needed, Humira, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.

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