Surprise surprise, the NHS can't make it's minds up. No Help Supplied here then !
A couple of queries to help make things a wee bittie clearer :
You say you have been put on medications for the inflammation - what are they ?
You say they have done tests; presumably this includes a wbc (white blood cell) and cbc (complete blood cell) count and possibly also an IgE (Immunoglobulin E) level to check for signs of active inflammatory disease, but have they done a colonoscopy, or a sigmoidoscopy ? (I'm guessing no as people tend to mention when they've had a camera shoved up their backside, it sticks in their...memory somehow !
Also, what made them decide that you definitely DO have CD ? It often takes years and lots of scopes before they get enough "hard evidence" to diagnose. I don't think the NHS does the Prometheus Test that is used in the USA.
Asacol is really quite a lightweight drug, as is Buscopan (I think that is even available OTC). Steroids do tend to be the first drug of choice and Pred is the main one of those. If you were only on that for six months I would be surprised if that was long enough to thin your bones by any major amount; six months is the maximum length of steroid treatment used in the UK but in the USA it can be that many years. (And yes, that leads to problems, not least the body stopping its own manufacture of steroids.)
Remicade and the other biologics have a lot of side effects, and they tend to work for a limited time only in many people. Probably a long way off for those reasons and because of NHS timescales and budgets.
Cyclazine and ADCAL D3 I don't know of - I am guessing that ADCAL is Vitamin D3 and that Cyclazine is an antibiotic, but frankly it strikes me at first impression that you are being treated for a fairly minor ailment (IBS) rather than a much more severe one, CD. And anyone who reckons that there is no disease activity when there is visible inflammation on a scan, you can't sleep for pain, have frequent problems with bowel movements, are going to A&E once a month and have had your appendix removed, needs his @rse kicked loudly in front of other colleagues pour encourager les autres !
On the plus side, at least they are thinking about
your diet - better than I've ever had from a gastroenterologist - and are giving you supplements, hopefully including vitamin B12 which will help keep up your energy levels and ward off pernicous anaemia.
The only recommendation I would have for you is to discuss the SCD diet with your dietitian - bearing in mind that good though they are, NHS dietitians are not trained to know about
abnormal nutrient absorption in great depth and won't necessarily know about
various diets that Crohnies use to manage whatever variety of CD thay have. (Low residue works great for some, is dire to others who need high residue. Go figure....
Oh, and take probiotics ! They cannot do harm, although you may get a dose of the trots as they wipe out nasty strains of bacteria - but by gum, there are a lot of people on this forum that swear by them !
Please note, I am only a lowly patient, and an impatient one at that, the above are only opinions !