This time though they did a capsule endoscopy which came back normal, and biopsies from my small bowel also show no inflammation. This was done at the leading St Marks Hospital in London which is the best in Europe for gastric disease.
My GI now thinks I might not have IBD after all and it is Colitis that is being made worse by Asacol. He wants to try me without meds and with VSL#3 which works amazingly for me by the way. I am scared to give up the drugs though as the problem I have is that I have an active patch of colitis on the right hand side of the bowel with the rest of the bowel in remisson - this was seen on the capsule endoscopy. I don't have bleeding from it as such and I don't get any symptoms from it. But surely leaving that patch alone will only make things worse and increase my risks of cancer in the long term?
The GI says that with IBD or Colitis it is best to treat symptoms and not get too bothered by a red patch in my colon as normal people often have some inflammation in the GI tract without medication... also does a lack of small bowel involvement make Chrohns "less likely" as the GI says?
Should I take his word for it? I am scared, and have been through a lot and many hospital stays with blood loss for the duedonal ulcers. My colitis or Chrohns isn't severre but enough for me to worry.
Diagnosis Oct 07 and then Aug 08: Inditerminate Colitis currently under some. Current Medication: 500mg Asacol Suppositories, 800mg Asacol Tablets x 2 a day.
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