Ospray101 & crazyharry - maple syrup ?

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chachka
Regular Member


Date Joined Apr 2006
Total Posts : 21
   Posted 3/11/2009 3:27 PM (GMT -7)   
Hello,
 
I have a question for you regarding maple syrup and SCD/MD. I know it's not legal on both diets but my son, who is almost 13, can't tolerate honey – even tiny bit coses relapse but he is fine with maple syrup.

A little introduction. My son has been Dx with CD three years ago. I didn't want him to use steroids and we went exclusive enteral nutrition way. He gotten well, started to grow again but... That's it. We are stock now. We have tried very slow reintroduction of foods on several occasions (one food for 10-14 days) but sooner or later failed. Unfortunately I n my son's case it wasn't enough to take bothersome food away from his diet – he had to go back on the formula exclusively. My son could tolerate rice and maple syrup (his SED rate once was 0). We have tried home maid (the SCD way) goat yogurt and curd while visiting family in Eastern Europe but he had pains from those.

Now he developed continues upper stomach pains and stopped drinking his formula since Sunday afternoon. All he has now – peppermint tea. So, literally he is starving. I'm not pushing the formula because I always wanted him to try ether of this two diets but was afraid he'll loose too much weight w/o the formula which ingredients are far from being legal for both diets. And now I'd like to use the opportunity and go ahead with one of these diets but don't really know were to begin (even though I have both books) since looks like my son can't tolerate key foods of those diets.

I appreciate any input.

Thanks

Chachka (12 y.o. son, exclusive enteral nutrition (Modulen/Nutren 2.0), Digestinol, LDN cream)

Post Edited (chachka) : 3/11/2009 10:33:00 PM (GMT-6)


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 3/11/2009 8:45 PM (GMT -7)   
real maple syrup is allowed on the maker's diet, but not on the scd. i use it myself, but sparingly and in small amounts, but i do that with all sweeteners (honey and agave nectar). i wouldnt worry too much if he cant tolerate sweeteners, even if they are natural. get him eating whole foods as this is a good opportunity to ween him off processed junk and sugars and rebuild his digestive tract with a probiotics and a diet more conducive to his digestive susceptibilities. but imho, bottom line when you are flaring and feeling miserable is to eat what you can as your body needs nourishment.

if he is doing really bad, it might be worth it to use prednisone for a bit to get things under control and then taper off of it while concurrently implementing dietary measures. that may help him tolerate some foods a bit better. but of course talk to your doctor before doing anything like that on your own.

i hope i've been some help.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/12/2009 9:00 AM (GMT -7)   
Ok this has nothing to do with the post, but I am suddenly very hungry for waffles.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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