I started Humira and a ?

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Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 3/11/2009 9:10 PM (GMT -7)   
After a LONG 3 week battle with insurance and the mail-order pharmacy (I h.a.t.e. medco!), I finally got it worked out. Received my pens yesterday. Did them immediately.

For those who are on Humira. (I'm doing the normal dose. 4 pens on day 1, 2 pens on day 15, and 1 pen every 2 weeks). When did you start to feel better? I know it would take a minimum 48-96 hours to kick in and get into my system fully. But, the loading dose is technically 2 weeks apart. So, I'm thinking I should really begin to know if this is going to work in about 3 weeks? I'm still eating VERY safely... and still taking 6-9 pain pills a day. I'm scared to death to start cutting back on pain meds...and then scared to add to my diet. But, I realize the ONLY way to know if this is going to work is to start weaning of meds and slowly introducing foods back in.

For those considering Humira.. SUPER easy. I've done in-vitro before, so I wasn't naive. But, just like one of my IVF drugs, I refer to Humira as the medicines for dummies! ;) Love how easy it is and no re-consitution of the drug is awesome! Oh, and my nurse gave me a tip. She said if you don't have a sharps container....she said to use an empty laundry detergent bottle. She said the plastic is just as strong if not stronger and then dispose of it that way.

Oh, and they are switching me from Celexa to Zoloft. I'm nervous about that.
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 3/11/2009 9:39 PM (GMT -7)   
I started feeling better at around 2 months or so. The pain went away, and my anemia was resolved. The only big problem I still have is fatigue, and I still battle constipation now and again.

You can get a free sharps container on the Humira website too. They even pay the postage for sending it back when it's full.

Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 3/11/2009 9:55 PM (GMT -7)   
Thanks Spooky - I had read that about myHumira, but was so upset with my mail-order pharmacy I truly forgot to do it. I planned on calling them, but thought it was a great idea about the laundry detergent bottle!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


Wonderwen
Regular Member


Date Joined Mar 2009
Total Posts : 52
   Posted 3/12/2009 11:10 AM (GMT -7)   
I just started Humira yesterday and  the pens where super easy to use. It did sting while the medicine went in but only for a few seconds. My nurse mentioned the fatigue, but I haven't felt it yet.

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 3/12/2009 3:45 PM (GMT -7)   
Is fatigue a side effect of Humira?
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/13/2009 5:48 PM (GMT -7)   
Hi Kaycie Wow you finally went for Humira ..hope this helps I know you have had a go of it lately and glad you made your decision.. really excited to hear how you are doing on it.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 3/13/2009 8:04 PM (GMT -7)   
I did my 2 week shots today. Good luck to both of us!
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira. 22.5mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.


goldy3
Regular Member


Date Joined Feb 2009
Total Posts : 139
   Posted 3/15/2009 9:01 AM (GMT -7)   
I was supposed to start humira last thursday but I had a low grade fever and thought I had a urinary tract infection...turns out I don't and I'm supposed to have my first shot this Tuesday...I'm really scared about starting given the potential side effects...and to be honest, I have been feeling really good for the last 2 weeks since I added xifaxin to my mix which is 500mg cipro 2x daily, 9mg entocort and and 800mg xifaxin...my doc wants me on humira b/c I have been really ill these past few months and he wants me off entocort (started 12/22/09)...I tried weaning off entocort a month ago but my stricture (above my Jpouch at the connection to the ileum) starting closing...so now, to be honest, I'm trying to get in with another doc for a second opinion...I tried imuran but had a reaction after 2 weeks...my doc won't let me try 6mp or methotrexate b/c it's in the same family as imuran and said I would have the same response....my liver functions went high on imuran...now, I trust my GI but I just need another pair of eyes to tell me the same thing before I take the leap of faith and start humira...my GI has no problem with me seeing this other doc and sent over my records but he wants be to start humira asap...I think he is going to get frustrated with me if I postpone the humira again but it's my body and I need to feel comfortable with this decision...I have to say that it's great to hear that people are doing well on humira...it's helps with the decision...
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