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LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 3/12/2009 1:57 PM (GMT -7)   
I feel like I haven't posted as much lately, and I just wanted to know where everyone was in their lives and dealing with Crohn's. I finally realized how much this disease means and its changes physically, mentally, how you act towards others, and how they perceive you. It is definitely a boot camp for preserving relationships with family, friends, and significant others.

Anyway, if you have the time I'd really like to know how all of you are doing...I was just talking to my fiance about how I really don't know where I would be without all of you, and that I think I've been here for almost a year now. Time really flies I guess.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 3/12/2009 2:05 PM (GMT -7)   
That's very thoughtful of you, LMills. :)... *Hugs*

As for how I'm doing, I'm doing pretty good tummy-wise.... Have to put up with joint pain pretty much everyday... but some days, it can be pretty mild... so, I'm thankful for that. I'm in college, studying... Spring Break is next week, so that'll be cool. I've been doing fairly well emotionally, too... :)
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 3/12/2009 2:09 PM (GMT -7)   
My Spring Break is next week too. I just finished two exams today and am SO excited. Any special plans?
I'm sorry to hear your joints are hurting...mine just make a lot of noise hah...almost like percussion. I'm glad to hear you're making it through college :) It's so hard sometimes.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 5 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 3/12/2009 2:14 PM (GMT -7)   
I plan on spending my Spring Break on my home planet, Whatchamacallit, and battling evil pink world-conquering bunnies... :)

......... That is...... I WISH I was doing that... but... I don't have any plans. //^_^\\'... Nothing special... I'll just do what I always do...

Maybe I'll go visit my mom if I can get a ride there (and am able to get a ride back to the dorms before school starts again)... She's been feeling very lonely... And she's slipping on her medication for schizophrenia... Maybe if I was there she wouldn't feel so bad... and I could watch her to make sure she takes her medication...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/12/2009 2:30 PM (GMT -7)   
It's definitely true about what you said about it being a relationship boot camp. I've had a lot of ups and downs lately, on the bright side I'm finally getting my treatment and things are looking up health-wise, but my boyfriend just broke up with me after being with me through this for the last year that I've been suffering with this because of "how I've changed", how I don't satisfy him sexually anymore, I feel like just a friend, he can't talk to me, blah blah blah. Even though I did want to be with him, I'm not really that upset over it because I really don't want to deal with any more drama right now, and if he can't deal with how I am, there's no point. Oh well.

How are you doing other than with your father? I read your other thread, my parents are slowly starting to understand this disease but I've gotten a few insensitive comments and it definitely isn't fun. :(

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 3/12/2009 5:03 PM (GMT -7)   
I thought you were talking about Earthworm Jim for a second Celey hah...I hope you have a good relaxing break though! I'm sorry to hear about your mom..schizophrenia runs in my family here and though so I know how upsetting it is when they start to slip on medication because you just want them to be okay...I hope your mom feels better soon too!

Valerie-I'm so sorry to hear that happened...as if relationships aren't difficult enough we have this disease thrown in to really see. But on the bright side at least it shows us who is strong enough to be our significant other. I'm doing all right though. Things are a still just a little off because it's such a huge blow to my self-esteem which I think you definitely understand. I just have a lot to come back from with what happened between my fiance and I...definitely made me feel less than worth it. And yeah the insensitive comments I just..don't know what to say...I guess I know that a lot of people still don't understand so I can give them that, but I just wish people would take the time to learn about these things you know? I hope you're doing all right...keep me updated on all of that. I just hate that that happened to you :(
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/12/2009 5:11 PM (GMT -7)   
Hi Glad you asked I have been doing fairly well with the bowels ,hemmie issue a bit better ...lungs not the greatest and still have my hernia.Got a GI app. soon haven't been to one in awhile.. Had a plan to get away for a night that got cancelled and at least I am starting to get out for walks... Spring will be here next week end so loving that... still have my teen home and spring break next week so hope to get some sleep..early mornings are getting tiresome.Have done a bit of extra cleaning like my cupboards which are looking much improved.. what plans have you made? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 3/12/2009 6:38 PM (GMT -7)   
LMills said...
Valerie-I'm so sorry to hear that happened...as if relationships aren't difficult enough we have this disease thrown in to really see. But on the bright side at least it shows us who is strong enough to be our significant other. I'm doing all right though. Things are a still just a little off because it's such a huge blow to my self-esteem which I think you definitely understand. I just have a lot to come back from with what happened between my fiance and I...definitely made me feel less than worth it. And yeah the insensitive comments I just..don't know what to say...I guess I know that a lot of people still don't understand so I can give them that, but I just wish people would take the time to learn about these things you know? I hope you're doing all right...keep me updated on all of that. I just hate that that happened to you :(


Well I feel bad in a way, because he has been through a lot with me over this past year, but he has never been sick in his life so he just doesn't seem to be able to understand how much it can affect your mood. He called me after and told me he wanted to work things out and he was just worried that I wasn't interested in him, but I'm giving him a really hard time about it because lately it seems like he's been on the edge of breaking up with me all the time, and seems to be getting worked up over everything I say, and I told him that the last thing I want to deal with is more drama. We'll see what happens there though, I know I'll be fine either way. I'm pretty strong when it comes to emotional stuff!

Is everything sorted out between you and your fiance now? I remember reading your thread that you made a couple of weeks ago. I really hope so, because from what I've read, you two have been through a lot and seem to have a pretty good dynamic to your relationship. I also get frustrated about people not taking the time to learn about my disease though, my dad is a huge culprit there, but he's a busy guy so I can understand. My mom has read up on it a little bit and is more sensitive to me health wise than emotionally because she has epilepsy and has been through a lot with it. The guy I was with TRIED to read up, but even then he just seems to have a hard time understanding all of the implications of a chronic illness. I'm the type to explain anything that people want to know about what I'm going through though, I tend to be very verbal about it with my friends and family because it helps keep me calm.

Thanks for the reply and I hope you're doing well too. I know you've gone through a lot lately and you really don't deserve it!
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